Podcasts by About IBD
Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
Further podcasts by Amber J Tresca
Podcast on the topic Medizin
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IBD in the Hispanic Community With Oriana Damas, MD from 2023-12-05T05:00
As an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Coli...
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Positivity Beats IBD With Josef Miller from 2023-11-28T05:00
What is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book abo...
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Designer $hit: A Microbiome Love Story With Saffron Cassaday from 2023-11-14T14:00
Coping With IBD While in Military Service With Dr Anish Patel from 2023-11-08T22:00
Learning to Accept IBD from 2023-10-24T04:00
IBD and Menopause from 2023-10-17T04:00
Having a Screening Colonoscopy from 2023-09-26T04:00
Managing IBD Diet and Lifestyle With Clemmie Oliver from 2023-09-12T04:00
Where to Invest Money: Healthcare Disparities in IBD from 2023-08-08T04:00
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse ba...
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We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott: Healthcare Disparities in IBD from 2023-08-01T04:00
Healthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the...
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I Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD: Healthcare Disparities in IBD from 2023-07-25T04:00
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse ba...
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I'm Letting You In With Cedric Pulliam, PhD: Healthcare Disparities in IBD from 2023-07-11T04:00
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse ba...
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I Want Someone Who's Going to Understand Where I'm Coming From With Selvi Vasudevan, MD: Healthcare Disparities in IBD from 2023-07-04T04:00
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse ba...
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You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD from 2023-06-27T04:00
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse ba...
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These Disparities Have Been Going on for a Very Long Time With Dr Aline Charabaty: Healthcare Disparities in IBD from 2023-06-20T04:00
In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD.
Why is there a lack of people of diverse backgrou...
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Pregnancy and IBD: The PIANO Study With Uma Mahadevan, MD from 2023-06-06T04:00
Pregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now ...
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Yoga for IBD With Desiree Schmidt from 2023-05-23T04:00
Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with ...
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An Ostomy Is a Beginning With Brad Watson-Davelaar from 2023-05-09T04:00
Brad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy ...
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I Pooped My Pants With April Michelle Harris from 2023-04-25T04:00
When is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shar...
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RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie from 2023-04-18T04:00
Going to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it’s difficult to know when to duck...
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Accommodations for IBD in College With Sari Grossman from 2023-03-28T04:00
What happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her ex...
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Up and Adam: A Patient's Experience on Winning with IBD from 2023-03-14T05:00
Is it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a...
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Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health from 2023-02-28T05:00
Caitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing...
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CDPATH: A Prognostic Tool for Crohn's Disease from 2023-02-14T05:00
Are we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in...
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The Plant-Based Crohn’s and Colitis Cookbook from 2023-01-31T05:00
For years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in te...
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Pelvic Health With Amanda Olson, DPT, PRPC from 2023-01-24T05:00
Caring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in ph...
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Amber's Year in Books 2022 from 2022-12-26T13:01
What did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the b...
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Recovering from Medical Catatonia from 2022-12-13T05:00
For some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Laur...
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Understanding Resilience With Mara Shapiro from 2022-11-21T01:02
Does living with Crohn’s disease or ulcerative colitis make a person more resilient? And is resilience something that should be a part of management plan for people with inflammatory bowel disea...
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Serving in the Navy With Crohn’s Disease, With Daniel Rausa, DO from 2022-11-08T05:00
When it comes to people with Crohn’s disease or ulcerative colitis serving in the military, the usual policy is that the two things are incompatible. The reason being that people living with an ...
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IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD from 2022-07-11T04:00
What if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these ...
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Don’t Google Your Symptoms With CJ Papuro from 2022-06-27T04:00
The Restroom Access Act from 2022-06-19T04:00
Have you ever been out in public and needed a toilet — but there wasn’t one available?
This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn’s disease or ...
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Cannabis and IBD from 2022-06-06T04:00
There are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that ...
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How Physical Therapy Can Help People With IBD from 2022-05-23T04:00
How to Be Happy&Healthy With IBD: The Psychosocial Impact of IBD from 2022-05-16T04:00
There are tools available to address the psychosocial impact of inflammatory bowel disease (IBD). Learn what’s available to you from Dr Jessica Naftaly, a GI behavioral health fellow at the Univ...
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How to Be Happy&Healthy With IBD: Reducing the Day-to-Day Burden from 2022-05-02T04:00
Whether in remission or not, the day-to-day of life with IBD can be challenging. Living with Crohn’s disease or ulcerative colitis, even when feeling well, might mean making lifestyle changes, g...
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How to Be Happy&Healthy With IBD: Common Misconceptions About IBD from 2022-04-18T04:00
Myths and misconceptions about IBD are common. Even amongst patients, there’s things that take time and education to understand because the things that swirl around in the public consciousness a...
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How to Be Happy&Healthy With IBD: Tips for Navigating Health Insurance from 2022-04-04T04:00
People who live with chronic illness don’t get training on how to deal with health insurance. Yet it is a major part of living with conditions such as Crohn’s dise...
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How to Be Happy&Healthy With IBD: Discussing IBD With Family and Friends from 2022-03-21T04:00
People who live with Crohn’s disease or ulcerative colitis don’t want to feel like a burden. They may feel guilty about changing or canceling plans. Sometimes, people with IBD may not even want ...
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Colitis Conversations: Shared Decision-Making from 2022-03-07T05:00
Ulcerative colitis and Crohn’s disease are complicated. There are choices to make along the treatment journey, which means that patients and their healthcare providers need to work together to f...
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Colitis Conversations: Approaches to Treatment from 2022-02-21T05:00
After being diagnosed with a form of IBD, it can be a real challenge to understand that treatment is ongoing. Which might mean taking medications for long periods of time. It also means adding i...
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Colitis Conversations: Treating to Target from 2022-02-07T05:00
Setting goals is an important part of managing IBD. But after controlling symptoms: what other goals do patients have? They can be anything from being able to go up and down the stairs, to cooki...
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Colitis Conversations: The Impact of Ulcerative Colitis from 2022-01-24T05:00
Inflammatory bowel disease (IBD) affects our quality of life. What that means, however, is going to be different for each person. It may depend on many factors including disease severity, access...
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Colitis Conversations: Getting an Accurate Diagnosis from 2022-01-10T05:00
Once people understand that symptoms like ongoing diarrhea and bloody stools are not normal, they need a way to overcome embarrassment and talk their symptoms over with a health care provider. H...
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Every Kid We Take Care of, We Become Part of Their Family from 2021-12-06T05:00
How is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What’s next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Di...
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What Remission Means to a Teen With Ulcerative Colitis from 2021-11-21T05:00
Inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric pat...
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Living With Ulcerative Colitis as an Air Force Pilot from 2021-11-07T04:00
Did you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automa...
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J-Pouch Surgery for Ulcerative Colitis With Vikram B. Reddy, MD, PhD from 2021-10-25T04:00
Ulcerative colitis surgery is sometimes viewed as the last stop for treatment but it can be a good option to treat inflammatory bowel disease (IBD). Dr. Vikram Reddy, Division Chief of Yale Medi...
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Finding Success with Nutrition Therapy from 2021-10-11T04:00
IBD is not a condition that is easy to diagnose or treat. People who live with Crohn’s disease or ulcerative colitis have needs that include guidance on nutrition. Diet is notoriously difficult ...
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Every Mom Matters: The MELODY Trial from 2021-09-27T04:00
What should people who live with inflammatory bowel disease (IBD) eat? What diet plans are available? Barbara Olendzki, the Director of the Center for Applied Nutrition and an Associate Professo...
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The Snuggles Are the Thing from 2021-09-13T04:00
How do your pets help you with your IBD? I speak to Meredith Mangold, "The Bowel Battling Badass,” about the role her dogs have played in her life. She became seriously ill with ulcerative colit...
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Making a Plan for Back to School With Dr Brad Jerson from 2021-08-08T04:00
The back to school period is already a time of so much change but once again in this pandemic, parents and school systems are also facing difficult choices. The experiences of families during th...
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A Wee Spark of Inspiration With Author Kathleen Nicholls from 2021-07-26T04:00
This is the second part of my conversation with Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: A Handbook for Today's (Disease...
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Wine, Biscuits, and Drinking Water With Author Kathleen Nicholls from 2021-07-12T04:00
Life with inflammatory bowel disease (IBD) brings challenges and many life changes but it can also sometimes bring unexpected opportunities.
Kathleen Nicholls, author of "Go Your Crohn Wa...
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Fatherhood and IBD With Jordan McConnell from 2021-06-20T04:00
The patient advocacy space is lacking the voices of men and especially men of color. The result is that the IBD community is not diverse enough to provide the kind of support that they need.
... Listen
Kelly Owens: Vagus Nerve Girl from 2021-06-14T04:00
What is the next innovation in the treatment of inflammatory bowel disease (IBD)? Is it the microbiome? Stem cells? Or, is it the emerging field of bioelectric medicine?
IBD is a complica...
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Single Motherhood and IBD With Brooke Abbott from 2021-05-31T04:00
Motherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ign...
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Motherhood Unplugged With Natalie Hayden from 2021-05-17T04:00
It's one thing to talk to your physicians about becoming pregnant when you live with ulcerative colitis or Crohn's disease. But what about getting the benefit of experiences from the mothers wh...
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IBD and Pregnancy With Jill Gaidos, MD from 2021-05-03T04:00
We used to be told that women with IBD couldn’t have children. We were also told people with IBD shouldn’t have children.
The truth is this: women with IBD get pregnant ...
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Healthcare Disparities in IBD from 2021-04-05T04:00
Hey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD.
IBD used to be thoug...
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Derek Mari of Crohnie: It's Not Impossible from 2021-03-23T04:00
Have you ever seen a person who lives with inflammatory bowel disease (IBD) in a movie or TV show? If so: was the depiction positive or negative?
My guest is actor, writer, and filmmaker ...
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Fully Vaccinated Against COVID-19 from 2021-03-08T05:00
Telling your Crohn's disease or ulcerative colitis story is powerful. It can be freeing but it can also come with some unexpected side effects.
Welcome back Rosanne Mottola, who originall...
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Living With Crohn's Disease and a Rare Disease from 2021-02-21T05:00
Living with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with st...
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Living With Crohn's Disease and a Rare Disease from 2021-02-21T05:00
Living with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with st...
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Leaning Into Pleasure With Passion by Kait from 2021-02-08T18:41:08
During times of stress, our personal relationships may suffer. In the pandemic, we are finding ourselves spending a lot of time with those in our households, and for couples, that can start to t...
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COVID-19 Vaccination With UC Patient Rosanne Mottola from 2021-01-25T05:00
People with IBD and other chronic conditions have questions about receiving the COVID-19 vaccination. Rosanne Mottola works at a hospital and was therefore eligible to receive a vaccination thro...
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Double Baggin' It With Joe and Danielle from 2021-01-11T05:00
Did an IBD diagnosis change the direction of your life? For Danielle Golden and Joe Teeters, being diagnosed as a young adult had a profound influence on their lives. The plans they had for thei...
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Amber's Reflections on 2020 from 2020-12-29T23:00
What does it mean to act with intention? The pandemic altered the course of our year and divorced us from our intentions. However, there were learnings that we can build on to create a better, m...
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Dr David Rubin Answers COVID-19 Vaccine Questions from 2020-12-18T20:31:52
From the beginning of the COVID-19 pandemic, people with inflammatory bowel disease (IBD) have had many questions. Now that vaccines against the virus are becoming available, people living with ...
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Find the Pony With Justin Baker from 2020-12-14T05:00
For many of us who live with a form of IBD, being a performer seems like it would be impossible. Some of the problems include needing a job that provides health insurance, the stress of audition...
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The Streamers From Gaming4Guts from 2020-11-30T05:00
Crohn's and Colitis Awareness Week is full of events that aim to raise funds and understanding of inflammatory bowel disease (IBD). One of these is Gaming4Guts, a gaming marathon to raise funds ...
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If I Take Care of Myself, I'm Also Taking Care of You from 2020-11-26T05:00
After hearing from my 10-year-old daughter, it’s now time to hear from my 13-year-old son. My kids are in hybrid school, and for my 8th grader, this means he goes to school in person two full d...
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How Would You Feel if I Got COVID? from 2020-11-23T12:22:32
How often do you check in with your friends and family about how they're doing during the pandemic? Families have had to make difficult choices regarding school, playdates, and extracurricular a...
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Am I Forgiven? from 2020-11-16T05:00
Do you worry that inflammatory bowel disease (IBD) will get in the way of finding a romantic partner? Crohn's disease or ulcerative colitis can make dating challenging but they can also simplify...
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The Girl That Was Missing from 2020-10-26T04:00
Inflammatory bowel disease (IBD) affects more than the digestive system. Crohn’s disease or ulcerative colitis can also affect the eyes, joints, and skin. Jordan Ditty was diagnosed with IBD as ...
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Promo: PSC Mami from 2020-09-21T20:32:18
I'm taking some time off from producing new episodes of About IBD. But I don't want to leave you without great Crohn's disease and ulcerative colitis content for your ears. That’s why I’m sharin...
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Promo: Crohn's Veteran from 2020-09-07T11:26:05
I'm taking some time off from producing new episodes of About IBD. But I don't want to leave you without great Crohn's disease and ulcerative colitis content for your ears. That's why I'm sharin...
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Sending Chronically Ill Kids to School, Featuring Dr Brad Jerson from 2020-08-17T04:00
Kids with chronic illness face special issues when going back to school because they’re at risk of their accommodations becoming eroded. In particular, children who live with Crohn’s disease or ...
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Back to School in a Pandemic With Dr Brad Jerson from 2020-08-10T04:00
Back to school will be quite different for families across the United States and the world this year. There aren’t many answers to be had to our questions, yet we must make decisions with the be...
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About IBD Preview - Crohn's Disease and Ulcerative Colitis from 2020-08-09T20:38:13
About IBD Preview - Crohn's Disease and Ulcerative Colitis from 2020-08-09T20:38:13
The Footprints Program with Arielle Radin of Gali Health from 2020-07-27T04:00
What’s in your microbiome and how does it interact with your IBD? The bacteria that’s in the gut of someone that lives with IBD is different from the bacteria in the the gut of someone that does...
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The Sherman Prize With Dr Dermot McGovern from 2020-07-03T04:00
The Sherman Prize is an award created by Bruce and Cynthia Sherman to recognize those who are making great contributions to the field of research and care in inflammatory bowel disease (IBD). Th...
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Find Those Things That Make You Happy from 2020-06-29T04:00
Being diagnosed with inflammatory bowel disease (Crohn’s disease or ulcerative colitis) can upend your entire life. Then being diagnosed with a rare liver disease? It could truly leave you feeli...
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You've Got to Find the Humor in Things from 2020-06-22T12:00
Do you have a sense of humor about your IBD? Jenna Ziegler of The Comical Colon found that keeping her sense of humor has helped her through the challenges she faced after being diagnosed with u...
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I Had Contemplated Keeping It a Secret from 2020-06-01T04:00
What has been your experience with ostomy surgery? If you know someone who lives with an ileostomy or a colostomy, you'll likely get your impression about having a stoma from them. But what if t...
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I Evaluated What Was Really Important to Me from 2020-05-18T04:00
How does being diagnosed with a chronic illness affect your path in life? For Mariah Leach, a rheumatoid arthritis diagnosis came out of the blue and put her at a crossroads. She decided to take...
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I'm Not Doing This By Myself from 2020-05-04T20:51:52
How would you answer these questions about your inflammatory bowel disease (IBD)?
- What is the best part of having IBD?
- What is the hardest part of your day?
- What i... Listen
Tips for Telehealth Appointments During the Pandemic from 2020-04-27T04:00
Telehealth has become part of our new normal as we practice physical distancing during the COVID-19 pandemic. Several of the barriers that prevented us from being able to see our doctors for an ...
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What It's Like to Have IBD and COVID-19 from 2020-04-13T04:00
People living with IBD who have suppressed immune systems because of medication are understandably concerned about their risks surrounding the novel coronavirus and COVID-19. Jamie Horrigan, a m...
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Tips on Getting An Infusion During the Pandemic from 2020-04-01T19:35:02
We’re living through an usual time and people living with Crohn’s disease or ulcerative colitis have many questions about how the pandemic may affect them. IBD experts agree that it’s important ...
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I Just Needed Something to Change from 2020-03-24T04:00
This is the second episode of my series talking to people who live with a permanent ostomy and exploring why they share their stories publicly and what it means to the ostomy community. I connec...
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I'm Going to Make the Best of This from 2020-03-17T04:00
Ostomy surgery is a life-saving procedure that can improve quality of life, but that doesn’t mean it is always easy to accept. Stephanie Hughes founded The Stolen Colon after having surgery to p...
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My Life Would Never Be the Same from 2020-02-25T05:00
Finding meaning in an illness journey can be a catalyst for purpose and hope. Dr Selvi Vasudevan endured severe Crohn’s disease that resulted in several surgeries and a relentless series of comp...
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Health Insurance, Accommodations, and IBD at Work from 2020-02-11T05:00
People who live with Crohn’s disease or ulcerative colitis have more to consider when it comes to the workplace. The cost of inflammatory bowel disease (IBD) means that a comprehensive insurance...
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Managing IBD Alongside a Career from 2020-01-27T23:49:25
How does having Crohn’s disease or ulcerative colitis have an impact on your career? The symptoms of IBD, as well as the cost, can affect the ability to work in the same way as healthy people. T...
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Reporting from Advances in IBD 2019 from 2020-01-14T05:00
In December 2019 I went to Advances in IBD, which is a medical meeting that's focused entirely on Crohn's disease and ulcerative colitis. The understanding that IBD is more than a "bathroom dise...
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Managing IBD Is a Team Sport With Dr Aline Charabaty from 2019-12-02T05:00
This episode is sponsored by AbbVie.
How do you think about your connection with your gastroenterologist? The patient/physician relationship is important in managing inflammatory bowel di...
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Providing the Best Start for Baby With MotherToBaby from 2019-11-19T05:00
Crohn’s disease and ulcerative colitis are diseases of young people. Women are often diagnosed during their childbearing years, which means that inflammatory bowel disease (IBD) enters into the ...
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Don't Stop the Things That You Love from 2019-11-05T05:00
Being diagnosed with ulcerative colitis as a child and undergoing j-pouch surgery in high school hasn’t slowed Sneha Dave down at all. In fact, it spurred her to found two groups that are focuse...
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I Really Don't Think About My Ostomy Anymore from 2019-10-29T04:00
Living with a permanent ileostomy as a result of Crohn’s disease hasn’t stopped Ryan Stevens from participating in the sport he loves. He worked his way back from crushing IBD flare-ups and mult...
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This Is Still Better Than Surgery from 2019-10-22T04:00
A diagnosis of Crohn’s disease and an ileostomy hasn’t stopped Ryan Stevens from competing in triathlon races. He swam through high school and college and was sidelined by Crohn’s just after fal...
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You Have to Take Care of Yourself from 2019-10-08T04:00
Being diagnosed with inflammatory bowel disease (IBD) at any time or at any age is challenging. However, the pre-biologic era was especially difficult because of the lack of treatment options an...
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I Would Have Missed the Window for a Child from 2019-09-24T04:00
People with IBD are often faced with unexpected challenges that are outside of those being experienced by their peer group. Jen Mcgregor of Crohnie Clothing found herself grappling with question...
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He Would Do the Same for Me from 2019-09-10T04:00
Caregivers play an important role in the disease journey. For Rebecca Kaplan, whose husband, Dan, lives with Crohn’s disease, caregiving has been a large part of her life at times. When...
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Summer of Activism: Connecting the Numbers to a Story from 2019-08-27T04:00
Summer of Activism: It's Now or Never from 2019-08-19T04:00
Summer of Activism: Have Your Voice Heard on the Hill from 2019-08-13T04:00
The inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back ...
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Summer of Activism: Attending Day on the Hill from 2019-07-30T04:00
Summer of Activism: Getting Kids Involved in Advocacy from 2019-07-23T04:00
How young is "too young" to get kids involved in activism? Gastroenterologist and activist Dr Meenakshi Bewtra started her kids on their activism journey at birth and continues by bringing them ...
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Summer of Activism: Attending a Town Hall from 2019-07-16T04:00
Working with our local elected officials is important to having our voices heard. But attending local town hall meetings held by state or federal congressional representatives is daunting, espec...
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Summer of Activism: Going to Medical Meetings from 2019-07-09T11:47:15
Where Do We Go From Here? from 2019-06-24T04:00
What’s new in inflammatory bowel disease (IBD) treatments and what’s next on the horizon? Dr Peter Higgins, a gastroenterologist, IBD specialist, and researcher at the University of Michigan dis...
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Princesses Poop Too from 2019-06-11T04:00
We Still Don't Know What Happened from 2019-05-21T04:00
Every person that lives with Crohn’s disease or ulcerative colitis in the United States knows the challenges of dealing with health insurance companies. Denials of service are common, particular...
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I Just Said Yes from 2019-05-07T04:00
You Have to Do What’s Best For You from 2019-04-23T04:00
What Are People Going to Think? from 2019-04-09T04:00
People who live with Crohn’s disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a pe...
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Help for Parents With Crohn’s Disease or Ulcerative Colitis from 2019-03-26T04:00
How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patie...
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Your Body Is Depending on You to Be Assertive from 2019-03-12T04:00
It’s common for people with IBD to look online for patients who have a similar disease journey to their own. For men, however, there are fewer places to find such a peer because there are not as...
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I Felt a Lot of Guilt from 2019-02-26T05:30
What compels a person to share their personal journey with IBD? For Rasheed Clarke, author of Three Tablets Twice Daily, his writing began as a way to keep track of everything for himse...
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We Are Only 1% Human With Dr Sarina Pasricha from 2019-02-12T13:28:08
It’s a Pain I Invite Into My Life from 2019-01-28T15:52:21
A diagnosis of IBD can take away the thing that you feel defines you as a person. This is how it felt for Megan Starshak of The Great Bowel Movement, who describes how her ulcerative colitis dia...
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How to Apply Critical Thinking to IBD Research from 2019-01-15T14:52:47
Wrapping Up About IBD for 2018 from 2018-12-04T12:39:05
It's Important to Share Your Stories from 2018-11-27T03:01:11
Community Doesn’t Just Create Itself from 2018-11-20T12:13:11
How Much Information Do You Put Out There? from 2018-11-13T02:04:14
I Just Kept Living With Bad Pain from 2018-11-06T15:00:40
I'm Sick and Nobody Will Help Me from 2018-10-30T00:48:48
I Am Beyond Thankful from 2018-10-16T00:29:02
Welcome to Camp Oasis from 2018-09-11T03:22:17
Why Didn't I Do This Sooner? from 2018-08-07T02:39:56
You're 40 Something Years Old from 2018-07-24T16:29:14
How does IBD impact the family? Couples who are thinking about having children when one or both of them have IBD often have questions about how the disease will affect their family. Amber interv...
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You Have to Have Joy With Sara Ringer from 2018-06-27T01:14:05
With an invisible illness such as IBD, it can be challenging to protect your quality of life. Patient influencers often push themselves in the service of others and that may seem strange to thos...
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I Have Power With Megan Johnson from 2018-06-11T20:52:02
How can we help new ostomates better adjust to their stoma? Megan Johnson, who you might better know as The Front Butt YouTuber, had a unique journey on the way to becoming a permanent ileostoma...
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You Have To Do Your Research With Vegan Ostomy from 2018-05-20T00:00
It’s estimated that half of people who have an inflammatory bowel disease (IBD) try complementary and alternative medicine to treat their disease. Eric Polsinelli of Vegan Ostomy describes how he t...
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You Get Tired With Shawntel Bethea and Brooke Abbott from 2018-05-08T00:43:47
The healthcare space isn’t a level playing field. Minority populations face complex challenges when it comes to accessing and receiving care, which is why April is designated as National Minorit...
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This Is Just The Beginning With Michael Tresca from 2018-04-03T20:48:30
Take a journey back to 1999, when cellphones were a rarity, dial-up internet access was still used, and Amber had her first surgery of the 2-step j-pouch process. Amber’s husband Mike, a writer and...
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Amber Answers the IBD Advocacy Tag Questions from 2018-03-20T12:11:30
Megan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It’s a great way to get to know people in the commu...
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You Have To Be Happy Within Yourself from 2018-03-06T00:00
Pregnancy and birth are different for women with IBD. There are not only challenges that come from the disease itself but the lack of awareness about IBD during pregnancy can lead to less than o...
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When IBD Gets Married With Jaime Weinstein from 2018-02-19T00:00
Getting married is a joyful time in one’s life. Until you have to bring your IBD and body image difficulties along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected ...
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We Are Not Unique With Christy Stone of Crohnie Bologna from 2018-02-06T00:00
Are you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she’s not unique as an inflammatory bowel dis...
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2017 Year End Wrap-Up from 2018-01-04T20:07:02
Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and o...
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We Are All Capable of More Than We Think With Brian Greenberg from 2017-12-03T23:01:02
What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You tells us how he moved from goals after sur...
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Growing Up IBD with Brian Greenberg from 2017-11-02T00:00
Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a youn...
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Don't Let IBD Ruin Your Day from 2017-10-17T01:20:58
Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive...
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Getting Stress Relief With Dr Tiffany Taft from 2017-09-26T20:26:19
How does stress affect IBD? We know that stress does not cause IBD, but it does affect the disease. How does IBD actually cause stress, and what can we do to balance our lives in such a way that it...
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Health Advocacy With Brooke Abbott from 2017-08-30T19:09:34
Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care abou...
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Why Are You Grateful for Your IBD? from 2017-08-05T01:21:08
If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you list...
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Michael Tresca, Well Spouse and Amber's Husband from 2017-07-21T20:55:27
What's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we me...
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Clinical Trials With Michael Osso of the Crohns & Colitis Foundation from 2017-07-06T00:00
On this episode of About IBD, I talk with Michael Osso of Crohn's & Colitis Foundation and learn how important clinical trials are to patients with Crohn's disease and ulcerative colitis, including...
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Traveling With Crohn's disease and Ulcerative Colitis With Jaime Weinstein from 2017-06-21T23:10:11
When you fly, do you board early? Once you get on the plane, what's the first thing you do? What's the second? Veteran traveler Jaime Weinstein, who lives with Crohn's disease, answers these questi...
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Brooke Abbott of The Crazy Creole Mommy Chronicles from 2017-05-30T00:00
Brooke Abbott of The Crazy Creole Mommy Chronicles discusses what it's like to be a parent with a chronic illness and how that affects relationships with our children.
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Ryan Stevens, Competitive Swimmer and Crohn's Patient from 2017-05-16T15:36:36
What's it like to be a competitive swimmer and one day develop Crohn's disease? Well, you don't stop swimming! Hear Ryan Stevens, Crohn's Guy, talk about the work he's doing to raise awareness o...
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My J-Pouch Is My BFF from 2017-04-26T00:00
On this episode of the About IBD Podcast, Amber discusses j-pouches and busts some of the misconceptions that surround them. She also gives her firsthand experience as a j-poucher who gave birth tw...
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Let's Talk About "The Talk" With Your Partner from 2017-04-12T11:59:43
The second edition of the About IBD Podcast where I talk with 3 women with IBD about their experiences in telling their partners about their Crohn's disease or ulcerative colitis.
Feature...
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Let's Talk About That Fungus Thing from 2017-03-26T00:00
The first edition of my About IBD Podcast where I talk about this fungus fracas, how it relates to Crohn's disease and ulcerative colitis, and why I'm not too worked up about IBD research done on m...
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