Episode 117 | [Repost] Ashlyn’s Story: A Son with VACTERL Association - a podcast by Katie Taylor, Certified Child Life Specialist
from 2022-04-27T06:00:44
This is a very worthy repost episode, as April is Limb Difference Awareness Month. We first shared Ashlyn’s story over a year ago, but I wanted to bring it back. The two things that I continue to take away from this story is the true partnership between Ashlyn and her husband, as well as the importance of having fun with the cards you’re dealt. I encourage you to listen to her story, follow her on Instagram, and share her page and this episode so others can learn more about limb differences.
In this episode, we talk about…
[4:55] Ashlyn’s family
[6:07] Ashlyn’s pregnancy with her son
[14:47] Getting the results from the fetal MRI
[23:45] How Ashlyn and her husband renewed their partnership
[30:29] Myles’s birth and NICU stay
[41:17] Getting the diagnosis of VACTERL Association
[42:34] Bringing Myles home from the hospital
[49:37] How Ashlyn changed her mindset and coped with grief
[51:40] Connecting with other parents of children with special needs
[57:58] What Ashlyn has learned from her son
[1:01:24] An update on Myles
[1:03:25] Ashlyn’s advice for other parents
CONNECT WITH ASHLYN:
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Further episodes of Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist
Further podcasts by Katie Taylor, Certified Child Life Specialist