Episode 53 | Teresa's Story - A daugther with Spina Bifida and Tethered Cord - a podcast by Katie Taylor, Certified Child Life Specialist
from 2021-01-06T07:00
Katie, Certified Child Life Specialist interviews Teresa, a mom of a teenage daughter with Spina Bifida.
With no signs of abnormalities during her pregnancy, Teresa was shocked to learn that a fatty lump on her daughter's skin at the base of her spine would lead to a diagnosis of spina bifida occult with a tethered spinal cord.
Teresa walks us through the shock of the diagnosis and the power that a one-on-one discussion with an empathetic doctor had on their ability to cope.
Motivated by their story to help kids like her daughter be able to disguise some of the necessary medical equipment she must wear every day, they created www.hiddenunderwear.com
Follow along with Teresa on Instagram and Facebook.
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Further episodes of Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist
Further podcasts by Katie Taylor, Certified Child Life Specialist