S3 Ep5: A Tale of Two Misdiagnoses - a podcast by CURE Talks Cancer

Learning of one’s increased risk for cancer can be an overwhelming experience, but imagine also being told of the wrong results from your genetic testing.

 

Maureen Boesen and Connie Busch are forever connected to one another. After they participated in a genetics study at Creighton University led by Dr. Henry Lynch in the mid-1990s, both of their test results actually came back wrong. Maureen, who tested BRCA-positive and underwent preventive surgeries, was in fact negative for the genetic mutation, while Connie tested negative and only learned much later she was actually positive with an increased risk for cancer.

 

In this week’s episode, we feature a conversation between the pair, who discussed the revelation that changed both of their lives.

 

“Is there any advice that you would offer?” Maureen asked.

 

“Don't be afraid of information,” Connie responded. “For me, knowing is better than not knowing. Sticking your head in the sand is not going to get you anywhere. If you have the information upfront, you're making the decision, you’re not letting cancer make that decision for you.”

 

Maureen agreed, adding “For you, your family, your children and their children. It goes far beyond just us.”