Cystinosis Rare: A Journey into the Unknown - Episode 2: Part 1 - "Intro: Host Stories" - a podcast by CRN: Adult Leadership Board

Grief and loss in the Cystinosis community with a Q&A section facilitated by a certified social worker and professor with many years of experience in the Cystinosis community. We also share our perspectives and stories on the current Covid-19 pandemic with two special guests living with Cystinosis. 

Produced by : Jana and Sara Healy, Steve Scheudler and Cheryl Simoens

Special Guest: Maya Doyle

Further episodes of Cystinosis Rare: A Journey Into the Unknown

Further podcasts by CRN: Adult Leadership Board

Website of CRN: Adult Leadership Board