Transitioning from Youth to Adult through the medical system: Episode 3 - Part 2 - a podcast by CRN: Adult Leadership Board

from 2020-08-22T13:00

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This episode focus's on living within Cystinosis transitioning out of youth and into adult care.  Topics include medication routine and side effects, support systems and taking on a more independent role as aging occurs. This episode shed's light on a very real conversation about daily life and aging in the rare disease community. 


We have four special guests living with cystinosis along with your hosts Jana and Sara Healy, Cheryl Simoens and Steve Scheudler.

Further episodes of Cystinosis Rare: A Journey Into the Unknown

Further podcasts by CRN: Adult Leadership Board

Website of CRN: Adult Leadership Board