Guerilla Aspies Podcast 2. Autistic Grandmother and legendary researcher Dr. Dinah Murray - a podcast by Paul Wady

THE SECOND GUERILLA ASPIES PODCAST

Contents.

 

 

0:52 Introduction to Dinah by PW, and a quick purr by Pushkin the Wondercat.

 

2:50  I explain that I will be splicing the start of our interview at the very end, and commencing the podcast with a more ‘meaty’ bit from when the pace had picked up.  

 

3:00  Dinah explains how she started.  Giving talks with Mike Lesser in the 1990’s and meeting Wenn Lawson.  

 

5:17 Discovering Broom Hill school and a useful book by Rita Jordan and Stuart Powell.  Getting in touch with them.

 

6:20 Durham Conferences and Paul Shattock.  How his association with Andrew Wakefield ruined everything.

 

6:32 Witnessing Andrew Wakefield’s first public talk about measles in 1998.  This isn’t Science!  

 

7:56  PW discuss Wakefield as a waste of time but a fascination for me, and Dinah agrees.

 

8:38  Negativity around positivity around being autistic.

 

8:20  Not being very visible and being fairly equitable are skills I developed to survive.

 

9:50  I never talked about left/right male brain.

 

10:18  The rise of female representation in autism.  She shifting to a less gendered set.

 

11:10  The AQ questions format…all biased.

 

11:35  Professor Declan Murphy and his ‘normal’ brains…Dinah rails against such projections.

 

12:12  Uta Frith/Franke Happe and following the leaders in science.  No!

 

13:00  Michelle Dawson and the research into emotion in autistics.  The use of fake computer - generated images.  Nothing to do with genuinely connecting with people’s emotions.

 

13:45  It is clearly not the case that there is a standard limited set of responses you can call on.

 

14:00  Academic representations of autism are still ‘the wild west’.

 

14:50  The Universities will pay you to do these tests.  What it is like doing them.

 

15:30 Learning and training the mind.  If I’m no good at something I’d rather not do it at all.  Why should autistics have to do things against our natures?

 

16:15 Habituation is a thing.  Conquering the supermarket meltdowns…

 

 17:00  We are good at training our minds.

 

17:35 The children were being monitored but the information was going straight to the teacher and not the children.  When a classroom did not use the bio feedback they should have.

 

18:45 When teachers don’t relate to the children as people, but instead only see the parents.

 

19:04  How to cope with intense feelings.

 

19:40  Child cruelty as helping?  Judge Rotenberg and extreme ABA.

 

20:15  The future of ABA.  Will it mutate and soften?

 

21:05  On films on YouTube by young autistic people.

 

21:35 How it can be used as ‘ammunition’ by the people who say we are not really representative of those who cannot communicate.

 

22:00  Parents should partly own the process, but not all of it.  How families can be and the great power struggles in our world.

 

22:44  An autistic person, a mother and a grandmother.

 

22:50  I did not have children who cannot speak, although I do know one person who is non - verbal that I have been close to for over 20 years.  

 

23:15  The Mason family.  Three autistic children.  One non - verbal and the others got degrees etc.

 

23:55  Learning disabled issues are the ones that the National Autistic Taskforce has come into existence to engage with and make a difference.

 

25:01  Telling the outside world what is going on inside.  That to me is really important.  That and showing ‘capacity’.

 

25:30  Allowing autistics to access fun content online.

 

25:50  Parents of autistic children (who don’t like them being autistic) and the whole Autism Speaks phenomenon.

 

26.50  PW explains how he micro melts down all the time and contains it.

 

27:48  We all frighten people sometimes…

 

28:10  Women reacting against the whole women must avoid being a threat world…I think all of that is a bit overcomplicated.

 

29:02  The autism world as being in the grip of the researchers/parents mafia’s.

 

30:00  Every child should have an education that explains the power structres around them.

 

30:20  How LGBTI/Feminism/political views exploded the simplicity of the world we grew up in.

 

31:20  The pharmaceutical industry and it’s desire to have more of a handle on the world of autism.

 

31:45  The rise of the power of medical doctors.

 

32:18  Medicating and mucking around with genes….eugenic attitudes and live testing on children.

 

33:14  Changing autistic behaviours equals changing how people’s brains are…

 

34:50  When autistics do not qualify to be disordered.  When you cannot make absolute statements about disability or ability, whilst needing to in order to get support and understanding.

 

35:20  When you have to portray yourself as inadequate in order to have any chance of getting the support you need from the sources that might be available.

 

36:30  Neither of us can do pity porn.

 

37:20  The no win scenario is just that.  Diagnosis as being damned.

 

37:47  The Bridge and The Tunnel tv shows are discussed.

 

38:20  How things are and where you would like them to go, Dinah?

 

38:50  There is a possibility we could attract the right attention and get the right support.

 

39:50  Dinah discusses her history with Autscape and the people involved.  

 

41:30  Martijn Dekker and Jim Sinclair.

 

42:12  Being asked to speak.  Launch of 1996 Autism Computing Webisite and the Upana website – Autistic People Against Neuroleptic Abuse.

 

42:50  David Andrews, Heta Pukki, Cassie Ann Sibley, Amanda Baggs.

 

 

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