Podcasts by Kaleidoscope: The Cortical Visual Impairment Podcast

Sweet Valentina | Cindy Younan | 17 from 2020-07-25T10:00

Cindy Younan, founder of cvijourney.com and mother to Valentina (1.5 years), describes the day during her pregnancy when she found out about her daughter’s complications. There have been highs, ...

Hindsight and Insight | Kira Brady | 16 from 2020-06-06T10:00

Kira Brady tells the journey to her son’s diagnoses, which include cerebral palsy (CP), periventricular leukomalacia (PVL) and cortical visual impairment (CVI). We marvel at how it can be so dif...

The PhD and the IEP | Barbara Lopez Avila | 15 from 2020-04-25T10:00

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Grace Unfiltered | 14 from 2020-02-17T10:00

Grace (8) is a vibrant second grader with lots to say. She describes what it’s like to live with cortical visual impairment – the things that upset her and the special characteristics she relies...

Team Archer! | Cheyanne Marcy | 13 from 2019-12-09T10:00

Cheyanne Marcy has been an advocate on big stages, on everyday social media platforms and in day-to-day life on behalf of her son, Archer (5). She values action and advocacy – and has navigated ...

This Mom With a Blog | Mia Carella | 12 from 2019-07-24T09:00

Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daught...

Word Bubble Much? | Tommy Szalapski | 11 from 2019-04-30T19:00

Tommy Szalapski – Google accessibility engineer and CVI dad – has created a new app for CVI literacy. The Roman Word Bubbling project auto...

Rosalie, Small but Mighty| Stephanie Kung | 10 from 2019-03-27T15:00

Rosalie (1.5) has hydrocephalus, a build-up of fluid in the cavities deep within the brain, which comes with the risk of vision problems. She received a cortical visual impairment (CVI) diagnosi...

Emma’s Renaissance | Lynn Elko | 9 from 2019-02-15T11:00

When Emma (16) received a cortical visual impairment diagnosis at age four, CVI literature was not widely available. The consensus was “this is just what she has, live with it,” says her mother,...

Helping River Read | Judy Endicott | 8 from 2019-01-24T20:00

Judy Endicott works with her grandson River (9) on his reading skills, relying on her background as a special educator and continuing education in CVI principles and practices. How does she mana...

Mini-Episode | Year of the CVI Advocate | 7 from 2018-12-19T17:00

I’m reflecting on 2018. For me, this has been the Year of the CVI Advocate. My life has been transformed by my interactions with fellow CVI parent advocates – online, at conferences and through ...

When Your Daughter Has a Visual Impairment, and Your Niece Does Too | Anna Ault&Lori Kinney | 6 from 2018-10-31T11:00

Sisters Anna Ault and Lori Kinney are raising daughters with visual impairments. One has cortical visual impairment, the other an ocular visual impairment. We discuss their parallel but unique e...

Life With CVI and Perfect Pitch | Dagbjört Andrésdóttir | 5 from 2018-09-23T10:00

Opera performance student Dagbjört Andrésdóttir gives us a glimpse into her life with cortical visual impairment, describing music and strong parental support as her saving grace.

“I kind...

What Happens When Things Go Right? | The Rastogi-Wilsons | 4 from 2018-08-18T10:00

Krish (6) received an early CVI diagnosis and guidance from a teacher of the visually impaired who knew how to intervene appropriately, based on his CVI Range score. With neuroplasticity and ded...

Going All In: From Phase I to Phase III | Alisha Waugh | 3 from 2018-07-18T09:00

When Alisha Waugh and her husband learned that their son Griffen (10) has a cortical visual impairment (CVI), they committed to improving his functional vision above all else – and with stellar ...

The Early Days: A Mother's First Year on the CVI Journey | Rachel Bennett | 2 from 2018-06-05T11:09:03

Henry (5) has a new cortical visual impairment (CVI) diagnosis. His mom, Rachel, now understands why he is so frustrated. He can't interpret what he sees. Relying on the 10 characteristics of CV...

Testing. Are CVI Parents Out There? | The Marquardts | 1 from 2018-05-17T17:30:04

Grace (6) reads sight words, enjoys hearing chapter books and shows an affinity for math. Yet she can’t interpret illustrations in a children’s book or recognize the faces of her mother and fath...