A Fatal Family Disease & the Flip of a Coin - a podcast by Grey Genetics
from 2018-06-05T09:30:04
Rachelle Dixon shares her story of growing up around "the family disease," eventually diagnosed as HSAN1E--a rare, hereditary, degenerative neurological condition that claimed the lives of her mother and two of her siblings. Rachelle is the President and Co-Founder of the HSAN1E Society, an advocate for rare diseases, and a frequent speaker on caregiving for individuals with rare diseases.
Links and Resources
NORD (National Organization of Rare Diseases)
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