Fighting for Sons with Duchenne - a podcast by Grey Genetics
from 2018-08-28T13:14:16
As a new mother and young college student, Jennifer McNary noticed that her first son, Austin, wasn’t meeting his developmental milestones, but it wasn’t until he was 3 years old that Austin was diagnosed with Duchenne Muscular Dystrophy. The same diagnosis would follow for his younger brother, Max. Today, Jenn is the mother of four children as well as an advocate, public speaker and consultant in the rare disease space.
Story Reference Points:
What is Duchenne Muscular Dystrophy? @ 1:05
Austin’s diagnosis with Duchenne @ 3:10
Raising sons with Duchenne @ 7:32
Spotlight on Duchenne advocacy organizations @ 13:57
Jenn’s work as a consultant in the rare disease space @ 25:53
Links and Resources
Jenn on Twitter
Parent Project Muscular Dystrophy
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