Making Sense of a Senseless Death - a podcast by Grey Genetics
from 2018-05-08T09:30:02
The first genetic counselor to work within a Medical Examiner’s Office, Nori Williams, MS, CGC talks about how she works with families after the loss of a loved one from Sudden Unexplained Death that turns out to have an underlying cardiogenetic cause. She shares stories of grief, resiliency and hope from families she has worked with, helping them to understand what their loved one’s genetic testing results mean for other family members.
Patient story reference points:
Patient story #1 @ 10:10
Patient story #2 @ 14:55
Resources:
CredibleMeds - Up-to-date list of drugs to avoid for people with LQT
Sudden Arrhythmia Death Syndromes Foundation (SADS)
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