Podcasts by PSC Mami

PSC Mami: Stories at the intersection of PSC and parenthood.

You are diagnosed with a rare, incurable disease. You are young. You had a vision for your future. You wanted kids. But can you? As a parent you want the best for your kids, but then they are diagnosed with PSC, what does their future hold?
People who have been there talk about how a diagnosis of Primary Sclerosing Cholangitis, a rare autoimmune disease, reshaped their vision of their lives and parenthood.

Further podcasts by Monika Aldarondo

Podcast on the topic Medizin

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Joanne from 2022-03-28T02:00:34

Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago

Joanne’s son was diagnosed with Primary Sclero...

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Stuart from 2022-01-23T00:51:58

Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to make time for his children and spouse when his Primary Sclerosing Cholangitis di...

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Laura from 2021-12-09T00:00:18

Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream of becoming an author. Her writing served many purposes at...

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Jennifer from 2021-11-15T17:00

Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient of part of her husband’s liver through a living donor transp...
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Nicola from 2021-10-25T18:06:03

Nicola finds meaning in advocacy after her transplant, post-transplant pregnancy, and surrogacy journey. Family is central to Nicola’s journey. Her younger brother was her donor for her life sav...
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Alicia from 2020-11-18T02:33:13

Alicia finds purpose in her toddler as her PSC progresses Alicia was diagnosed with PSC almost 20 years ago. Her PSC has been relatively quiet until this last year. Alicia shares how she deals w...
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Nika and Roberto from 2020-07-09T23:49:26

Nika and Roberto share what it was like to discuss the risks and benefits of different options for becoming parents. Her diagnoses of Primary Sclerosing Cholangitis and Crohn's caused them to th...
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Bill from 2020-02-12T22:03:31

Bill discusses going through the process of getting his young son’s Ulcerative Colitis and Primary Sclerosing Cholangitis diagnosis, a diagnosis that is incredibl...
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Alex from 2019-11-25T15:26:07

Alex discusses her journey up to and following her young child’s diagnosis of Primary Sclerosing Cholangitis. She reflects on her reaction to the diagnosis, how it affected her relationships, an...
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Amanda from 2019-10-29T00:43:50

Amanda was diagnosed with Primary Sclerosing Cholangitis at 23 and one-year into her marriage. A little over a year later, she received a living donor transplant....
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Heather has 2 girls, a new liver, and joy from 2018-08-20T21:37:57

Heather was diagnosed with Primary Sclerosing Cholangitis young, then made it through nursing training, graduate school, dating, getting married, and having her f...
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Emily has her son post diagnosis and survives UC, PSC, cancer and transplant with optimism from 2018-04-06T23:06:25

Emily has been battling serious illnesses, PSC, UC since she was 19, and liver cancer at 33. As a mother, she has done her ...
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Natalie explains to her young sons that mommy’s liver works a little differently from 2018-03-23T20:09:36

Natalie learned of her PSC diagnosis when her sons were very young. She had been pursuing the “perfect” stay-at-home-mom life and soon discovered that when mother...
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Serbrina and her marriage survive and thrive post-transplant without children from 2018-02-15T05:44:11

Serbrina and her husband survived a 10-year waitlist for her life saving transplant made necessary by the progression of Primary Sclerosing Cholangitis. While her...
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Katrina has second child and peace of mind post PSC diagnosis from 2018-01-25T01:19:14

Katrina’s medical journey began at 15 with her Ulcerative Colitis diagnosis, but as she found experts that provided much needed relief, she was diagnosed with Pri...
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Jessica decides to not have children and has no regrets from 2017-12-21T22:27:11

Jessica’s early and intense introduction to life saving procedures means many discussions about IVF, surrogacy, and adoption with her husband, family and friends....
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Kiersten, a child of a PSCer, has 2 healthy children after difficult pregnancies from 2017-12-07T20:05:57

Kiersten knew the dangers of Primary Sclerosing Cholangitis as a result of her fathe...
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Britt discusses easy 2nd pregnancy after PSC diagnosis from 2017-11-16T02:16:22

Britt was diagnosed with Primary Sclerosing Cholangitis when her daughter was 2 years old. Years later she was surprised to find she was pregnant again with her s...
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