Podcasts by RealTalk MS
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
Further podcasts by Jon Strum
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Episode 328: Cognitive Rehabilitation and MS with Dr. Nancy Chiaravalloti from 2023-12-11T23:00
Cognitive dysfunction is a common symptom of multiple sclerosis, affecting more than half of the people living with MS. While cognitive issues like changes in memory, difficulty maintaining atte...
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Episode 327: Cannabis and MS with Dr. Michelle Cameron from 2023-12-04T23:00
A growing number of people living with MS are turning to cannabis for symptom management. But which MS symptoms have responded to being treated with cannabis? Where should someone buy medical ca...
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Episode 326: A Happy Ending That Almost Wasn't with Chris Holland from 2023-11-27T23:51
Chris Holland had a successful career working as a paralegal when he was diagnosed with MS in 2004. And, while everyone reacts differently to being diagnosed with MS, no one could have predicted...
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Episode 325: Making Your Home Safe and Accessible with Tracy Carrasco from 2023-11-20T23:00
According to the CDC, 36 million falls are reported each year, resulting in 3 million adults being transported to the Emergency Room and 32,000 adults dying from their falls. Studies have shown ...
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Episode 324: Avoiding the Risks of Misdiagnosing MS with Dr. Andrew Solomon from 2023-11-13T23:00
MS is misdiagnosed too often, which leaves some people who don't have MS receiving expensive disease-modifying therapy that they don't need, while leaving other people who do h...
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Episode 323: Support for Veterans with MS with Izzy Abbass and a New Project for Jamie-Lynn Sigler from 2023-11-06T23:00
More than 70,000 U.S. veterans are living with MS. That's why the only federal funding specifically earmarked for MS research comes from the U.S. Department of Defense. It's why the U.S. Departm...
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Episode 322: Women's Research in MS with Rachel Horne and Dr. Rhonda Voskuhl from 2023-10-30T22:00
Rachel Horne is a journalist who was diagnosed with MS in 2009. Since then, Rachel has developed a first-hand understanding of the knowledge gaps that remain when it comes to understanding the i...
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ECTRIMS EXTRA: Dr. Robert Motl from 2023-10-28T22:00
With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.
During the meetin...
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ECTRIMS EXTRA with Dr. Daniel Ontaneda from 2023-10-27T22:00
With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.
During the meetin...
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ECTRIMS EXTRA: Dr. Annette Langer-Gould from 2023-10-26T22:00
With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.
During the meetin...
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ECTRIMS EXTRA with Dr. Anthony Feinstein from 2023-10-25T22:00
With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.
During the meetin...
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Episode 321: More from the 2023 Joint ECTRIMS-ACTRIMS Meeting with Dr. Helen Tremlett from 2023-10-23T21:30
This week, we're sharing more from the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Res...
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ECTRIMS EXTRA with Dr. Jiwon Oh from 2023-10-19T22:45
With about 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.
During the meeting, I...
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Episode 320: From ECTRIMS-ACTRIMS 2023 with Bonnie Higgins and Dr. Tim Coetzee from 2023-10-16T22:00
Last week, more than 9,000 MS research scientists and clinicians from more than 110 countries traveled to Milan to attend the largest MS research conference in the world, the 2023 joint ECTRIMS ...
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Episode 319: Global Survey Results Support a New Framework for Describing MS with Dr. Tim Coetzee from 2023-10-09T18:00
We've been using the same MS clinical course descriptors (relapsing-remitting, secondary progressive, and primary progressive) for almost three decades. As research has provided so much addition...
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Episode 318: Understanding Shared-Decision Making with Dr. Lilyana Amezcua from 2023-10-02T22:00
In this episode of RealTalk MS, we're talking about what you should be talking about with your neurologist or MS Specialist. Shared decision-making is a key component of patient-centere...
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Episode 317: It's Our 6th Anniversary! These Are the Most Impactful Conversations We've Had Over the Past Six Years from 2023-09-25T22:00
RealTalk MS is now 6 years old! We've covered a lot of ground in more than 300 episodes over the past 6 years. And I'm marking our 6-year anniversary by highlighting the most impactful conversat...
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Episode 316: Sex and MS with Madelyn Esposito from 2023-09-18T22:00
It's not unusual to see sex and intimacy become unintended and unnecessary collateral damage in the day-to-day-challenges of living with MS. But it doesn't have to be that way.
M...
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Episode 315: Understanding Generic and Biosimilar Drugs for MS with Dr. Jiwon Oh from 2023-09-11T22:00
Just a couple of weeks ago, the FDA approved the first biosimilar medication for treating MS. As generics and now, biosimilars, become more available, it seems like the right time for us to get ...
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Episode 314: Pelvic Floor Health and MS with Jill Ehrmantraut from 2023-09-04T22:00
When you're living with MS, managing your pelvic floor health may not be among the first things you think about. But pelvic floor dysfunction, and the problems that arise from it, like bladder a...
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Episode 313: Disaster Preparedness for People Affected by MS with Mary Casey-Lockyer from 2023-08-28T22:00
Fire, flood, record-setting heat, tropical storm, earthquake -- we've seen it all in the past several weeks! Natural disasters can present a whole series of unique challenges for people affected...
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Episode 312: Adapting Exercise for MS with Dr. Gretchen Hawley from 2023-08-21T22:00
Contrary to what was once believed to be true, we now know that exercise and physical activity can deliver several important benefits for people living with MS, and actually improve your quality...
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Episode 311: Prehabilitation with Dr. Kathy Zackowski from 2023-08-14T22:00
Rehabilitation can help people regain, keep, or improve the physical or cognitive abilities they need to successfully navigate their daily lives, which makes it an important aspect of managing M...
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Episode 310: The Face Laughs While the Brain Cries with Dr. Stephen Hauser from 2023-08-07T22:00
Dr. Stephen Hauser's research as a physician-scientist has revolutionized our understanding of the genetics, immunology, and treatment of MS. It was Dr. Hauser's research that led to the develop...
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Episode 309: Solving Speech and Swallowing Problems in MS with Dr. Marissa Barrera from 2023-07-31T22:00
The ability to speak is something so basic to our day-to-day lives that you may not ever stop to consider it until you realize something about your speech may be changing. And swallowing is some...
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Bonus Episode: Everything You Need to Know About Clinical Trials with Dr. Aaron Boster from 2023-07-28T00:45
This special episode of RealTalk MS is sponsored by Sanofi.
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Episode 308: Improving Your Balance and Walking When You're Living With MS with Dr. Nora Fritz from 2023-07-24T22:00
Experiencing difficulty walking is one of the most common mobility challenges faced by people living with MS. The good news is that there are things you can do -- both with a physical therapist ...
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Episode 307: Managing Stress and Anxiety When You're Living With MS with Dr. Bree Wannamaker from 2023-07-17T22:00
Learning to effectively manage stress and anxiety is important for everyone. And if you're living with the unpredictability of MS, it may be doubly important.
Joining me to discuss the i...
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Episode 306: Making Meal Planning and Prep Easier When You're Living with MS with Trevis Gleason from 2023-07-10T22:00
Living your best life with MS often means planning ahead and, when circumstances require, knowing when and how to adapt. Many of us find ourselves in the kitchen every day. And, while cooking ca...
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Episode 305: 30 Years Later -- Looking Back (and Ahead) with Dr. Fred Lublin and Dr. Stephen Krieger from 2023-07-03T22:00
2023 marks 30 years since the very first MS disease-modifying therapy received FDA approval. To say that changed everything would be an understatement.
Two of the top MS experts in the wo...
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Episode 304: The International Progressive MS Alliance Scientific Congress (Part 2) from 2023-06-26T22:17
Just a couple of weeks ago, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS lea...
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Episode 303: The International Progressive MS Alliance Scientific Congress (Part 1) from 2023-06-19T22:00
Last week, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including p...
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Episode 302: De-Stressing Air Travel If You're Living With MS with Dr. Scott Crawford from 2023-06-12T19:00
When you’re living with MS, air travel can sometimes get complicated. We’re heading into the summer vacation season, so the timing couldn’t be better to talk with Dr. Scott Crawford.
Dr. ...
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Episode 301: From the Consortium of Multiple Sclerosis Centers Annual Meeting from 2023-06-05T22:00
Last week, the Consortium of Multiple Sclerosis Centers brought together over 2,000 neurologists, MS nurses, rehabilitation specialists, and other healthcare professionals in Aurora Colorado, fo...
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Episode 300: Healthcare Disparities Among Minority Populations with Dr. Lilyana Amezcua from 2023-05-29T22:00
Welcome to the 300th episode of RealTalk MS! Yikes!
In last week's episode of the podcast, Dr. Bruce Bebo walked us through the latest research on the prevalence of MS in the Uni...
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Episode 299: Update on the Prevalence of MS in the United States with Dr. Bruce Bebo from 2023-05-22T22:00
Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky pro...
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Episode 298: From the Pathways To Cures Global Summit (Part 2) from 2023-05-15T22:00
Don't miss the second installment of our Pathways To Cures Global Summit coverage. For this unprecedented event, the National MS Society brought together the best and brightest minds in MS resea...
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Episode 297: From the Pathways to Cures Global Summit (Part1) from 2023-05-08T22:00
This past week, the National MS Society hosted the Pathways To Cures Global Summit, bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives...
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Episode 296: Everything You Should Know About MS Relapses with Dr. Sam Hooshmand from 2023-05-01T22:00
This week, we're in New York, attending the Pathways To Cures Global Summit. The National MS Society is convening the world -- bringing together the best and brightest minds in MS research, the ...
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Episode 295: Numbness, Tingling, Pain, Itch -- Managing Common MS Sensory Symptoms with Dr. Jeffrey Hernandez from 2023-04-24T22:00
In this week's episode, we're talking about a set of MS symptoms that can range in intensity from mildly annoying to completely debilitating. These symptoms include numbness, tingling, pain, tha...
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Special Episode: Barancik Prize Conversations -- Part 2 from 2023-04-19T22:00
Welcome to Part 2 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research.
The Barancik Prize is awar...
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Episode 294: Disclosing Your MS in the Workplace with Christina Forster from 2023-04-17T22:00
Special Episode: Barancik Prize Conversations -- Part 1 from 2023-04-12T22:00
Welcome to Part 1 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research.
The Barancik Prize is awar...
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Episode 293: An Update on Diet and MS with Dr. Ilana Katz Sand from 2023-04-10T22:00
You've told me that the subject of diet and MS is one of your top three interests. And a quick scan of social media platforms reveals that a lot of people living with MS agree!
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Episode 292: Could This Be the Cause of MS? With Dr. Richard Rudick and Dr. Timothy Vartanian from 2023-04-03T22:00
If you've listened to this podcast before, you already know that we avoid hype, and we stick to talking about evidence-based science. So, let me say right up front -- today, the cause of multipl...
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Episode 291: Disclosing Your MS to Friends and Family with Dr. Victoria Leavitt from 2023-03-27T22:00
To tell or not to tell. When it comes to disclosing your MS to friends and family, that is the question. Choosing when to disclose and to whom to disclose is a deeply personal decision. Joining ...
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Episode 290: Creating Change Through MS Advocacy with Holly Pendell and Angel Hardy Heinz from 2023-03-20T22:00
If you're a regular listener, you've heard me say that the things that people affected by MS want the most -- access to quality healthcare, affordable prescription medications, and funding for M...
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Episode 289: Living with the Uncertainty of MS with Sarah Wolfe and Dr. Laura Hancock from 2023-03-13T22:42
For many people, one of the most challenging aspects of living with MS is living with uncertainty. Living with unanswerable questions like, "Is today the day I experience a relapse?" "<...
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Episode 288: Oceans of Hope with Robert Munns from 2023-03-06T23:00
When you visit the Oceans of Hope U.K. website, it reads, "Oceans of Hope is for people with MS, led by people with MS." It goes on to say, "Our aim is to offer pe...
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Episode 287: Meet the Winner of the 2023 Barancik Prize for Innovation in MS Research with Dr. Ruth Ann Marrie from 2023-02-27T23:00
Last week in San Diego, the Americas Committee for Treatment and Research in Multiple Sclerosis convened their annual meeting, the ACTRIMS Forum. One of the highlights of this meeting is the pre...
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Episode 286: Embedding Diversity, Equity, and Inclusion Into the MS Movement with Neisha Fredericks from 2023-02-20T23:00
Two years ago, the National MS Society made a public commitment to do more to ensure that the MS movement was open to and reflective of everyone affected by MS.
When you...
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Episode 285: MS in Kids and Teens with Dr. Brenda Banwell from 2023-02-13T23:45
Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of wh...
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Episode 284: Finding Support When You're Living with MS with Debby Bennett and Ricky Maxwell from 2023-02-06T23:00
MS can sometimes feel isolating. And the ironic thing about those feelings of isolation is that you can experience them even when you're with other people. It's the feeling that, while everyone ...
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Episode 283:12 Years Old and Diagnosed with MS with Faith Bigam from 2023-01-30T23:00
Faith Bigam was diagnosed with MS in 2014, when she was 12 years old. She didn't know what MS was because, well, why would any 12-year-old kid know what MS is? But Faith quickly learned...
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Episode 282: Preventing Falls (And Staying Safe When You Can't!) with Dr. Sara Migliarese from 2023-01-23T23:50
The CDC tells us that 36 million falls are reported each year, resulting in 3 million adults being transported to the emergency room and 32,000 adults dying from their falls.
Studies have...
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Episode 281: Autologous Hematopoietic Stem Cell Transplantation (aHSCT) for MS with Dr. Richard Burt from 2023-01-16T23:00
Today, we're talking about a topic that you've told me is the topic that you'd most like me to cover on this podcast -- autologous hematopoietic stem cell transplantation, or HSCT. And ...
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Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee from 2023-01-09T22:30
Last week, in Episode 279 of RealTalk MS we talked with Professor T...
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Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann from 2023-01-02T23:00
Episode 278: Re-Visiting My Conversation with Tyler Campbell from 2022-12-26T23:00
When people ask me how I go about deciding who to interview for this podcast, my answer has always been the same. I look for difference-makers. People whose efforts are making a real difference ...
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Episode 277: Re-Visiting Pathways to Cures with Dr. Carol Whitacre and Professor Alan Thompson from 2022-12-19T23:00
For me, the holiday season is a time for joy, celebration, and reflection. And when I reflect upon the advances in MS research that we've seen in the past year, it's hard not to feel encouraged....
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Bonus Episode: MS in the 21st Century -- Are We Nearly There Yet? Achieving Freedom from Disease from 2022-12-15T21:39
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
In this special episode of RealTalk MS, I'm joined by Professor Peter Rieckmann, Stanca...
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Episode 276: ECTRIMS Research Update Part 2 with Dr. Bruce Bebo from 2022-12-12T22:00
Some of you might remember that at the end of October, I was in Amsterdam, attending the 2022 ECTRIMS Congress. ECTRIMS is an acronym for the European Committee for Treatment and Research in Mul...
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Episode 275: Choosing the Right Disease-Modifying Therapy with Ross Tingen, PharmD, BCPS, MSCS from 2022-12-05T23:00
The first step in living well with MS is establishing a treatment plan with your neurologist or MS specialist. And a disease-modifying therapy, or DMT, should be the foundation of that plan. Joi...
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Bonus Episode: MS in the 21st Century -- The Impact of Cognitive Symptoms on Employment from 2022-11-30T23:00
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
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Episode 274: Disaster Preparedness for People Living with MS with Mary Casey-Lockyer from 2022-11-28T23:00
A quick scan of the news on any given day should remind all of us that natural disasters can strike anywhere at any time. Whether it's massive snowstorms, earthquakes, wildfires, hurricanes or f...
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Episode 273: Spasticity and MS with Dr. Michelle Cameron from 2022-11-21T23:00
Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so pai...
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Episode 272: Live from the National MS Society Leadership Conference with Lori Turley and Dr. Brad Zuchero from 2022-11-14T23:00
This week's episode of RealTalk MS was recorded in front of a LIVE audience at the National MS Society's 2022 Leadership Conference.
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Episode 271: Acupuncture and MS with Jennifer Mohr-Boscaino and Ken Bandler from 2022-11-07T23:00
Episode 270: From the 2022 ECTRIMS Congress with Dr. Bruce Bebo from 2022-10-31T22:00
Episode 269: How and When the Inflation Reduction Act Will Affect The Price of Your MS Medications with Steffany Stern and Judy Wilson from 2022-10-24T22:00
Episode 268: What You Need to Know About Open Enrollment with Nicole Vasquez from 2022-10-17T22:00
Episode 267: All You Need to Know About Vaccines and MS with Dr. Lisa Doggett from 2022-10-10T22:00
Episode 266: Making Life with MS Easier with Dr. Kathy Zackowski from 2022-10-03T22:00
Episode 265: Making MS Research Accessible to People Affected by MS and Why That Matters with Sharon Roman from 2022-09-26T22:00
Living with MS comes with its own set of sometimes significant challenges. But being in the dark, unaware of the noteworthy and remarkable advances being made in MS research is one challenge th...
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Episode 264: It's Our 5-Year Anniversary with CNN's John King and a Dawnia Baynes Takeover from 2022-09-19T22:00
We're celebrating the 5th anniversary of RealTalk MS and we're kicking it off with my exclusive conversation with CNN national correspondent and anchor, John King. John was diagnosed with MS in ...
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Episode 263: Managing Your Mental Health When You're Living With MS with Dr. Dawn Ehde from 2022-09-12T22:00
In addition to its physical symptoms, MS can also affect your emotional well-being. Depression, persistent anxiety, and extreme irritability are common. And, just like the physical symptoms of M...
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Episode 262: Making Shared Decision-Making Work For You with Dr. Marijean Buhse from 2022-09-05T22:23:09
The conversation between a doctor and patient is evolving from a time when that conversation was often limited to the doctor prescribing a particular disease-modifying medication and the patient...
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Episode 261: Service Dogs for People Living With MS with Trevor Hardy from 2022-08-29T22:00
When you're living with MS, even the most mundane daily tasks can sometimes be challenging. There are days when opening a door, taking things out of a drawer or a cupboard, or picking something ...
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Episode 260: MS and Men with Dr. Robert Shin from 2022-08-22T22:00
Women are roughly 3 times more likely to develop MS compared to men. But when men develop MS, they're more likely to experience a more aggressive disease course. Men are more likely to experienc...
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Episode 259: How Lack of Sleep Affects MS (and What You Can Do About it!) with Dr. Katie Siengsukon from 2022-08-15T22:00
More than half of the people living with MS report significant disruptions in their sleep and difficulty maintaining a consistent sleep schedule. Sleep-related problems can lead to additional he...
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Episode 258: Living with the Invisible Symptoms of MS with Kathy Costello from 2022-08-08T22:00
One of the realities of living with MS is that you're often dealing with invisible symptoms. And because symptoms like numbness and tingling, fatigue, depression, vision issues, and pain aren't ...
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Episode 257: Dating With MS with Alaya McKinney and Akeem McMichael from 2022-08-01T22:00
Dating can be tricky for anyone. And it doesn't get any easier if you happen to be living with MS. In addition to all the typical dating considerations, you also have to think about things like ...
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Episode 256: How NeuraLight May Revolutionize Drug Development and MS Care with Co-Founder and CEO Micha Breakstone from 2022-07-25T20:53:17
Imagine that, using your smartphone, you log into a Zoom call from home. You connect with your MS specialist and, while you're chatting, an artificial intelligence-based system is analyzing biom...
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Episode 255: Aging With MS with Dr. John Corboy from 2022-07-18T22:00
In last week's episode, we looked at talking with kids about MS. This week, we'll visit the opposite end of the spectrum as Dr. John Corboy discusses some of the things you'll want to think abou...
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Episode 254: Talking to Kids About MS with Erin Martin from 2022-07-11T22:00
Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological co...
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Episode 253: Managing Grief and MS with Dr. Rosalind Kalb from 2022-07-04T22:16:43
Everybody remembers the day -- sometimes, even the moment -- when they were diagnosed with MS. And in that moment, you may not have known very much about living with MS, but you probably felt li...
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Episode 252: The Journey from MS Diagnosis to Podcaster to Patients Getting Paid with Kathy Reagan Young from 2022-06-27T22:00
When I began thinking about launching RealTalk MS, one of the first things I did was listen to other podcasts for the MS community. Five years ago, there weren't nearly as many podcasts focused ...
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Episode 251: MS in the LGBTQ+ Community with Dr. William Conte, Payshunz Nagashima, and Andreina Barnola from 2022-06-20T22:00:43
Health disparities, systemic inequities, and discrimination often stand in the way of gaining access to MS care for members of the LGBTQ+ community.
Episode 250: At the Consortium of MS Centers Annual Meeting with Dr. Saud Sadiq, Dr. Kathy Zackowski and Marijean Buhse, PhD, RN, NP-C, MSCN from 2022-06-15T18:04:11
One afternoon during the Consortium of Multiple Sclerosis Centers Annual Meeting, I set up my equipment at the National MS Society's booth in the conference exhibit hall and recorded some conver...
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Episode 249: The Ball Came Out with Tyler Campbell from 2022-06-06T22:00
In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis.
Episode 248: Pregnancy and MS with Dr. Annette Langer-Gould from 2022-05-30T22:00
Starting a family is a big step for anyone. And when you're living with MS and you're on MS medications along with other symptom management medications, planning a family creates a lot of questi...
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Episode 247: Biomarkers Can Help Diagnose MS, Predict MS, and Telegraph MS Progression with Dr. Tanuja Chitnis from 2022-05-23T22:00
Think about how much faster, easier, cheaper, and less invasive it would be if MS could be diagnosed by a simple blood test.
Scientists have identified biomarkers that can be used to dia...
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Episode 246: The High Cost of MS Medications with Steffany Stern from 2022-05-16T22:00
When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000.
We cannot allow the insanity assoc...
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Episode 245: The Journey to an MS Diagnosis with Dr. Michael Robers from 2022-05-09T22:00
For some, the journey to their MS diagnosis is relatively quick and straightforward. For others, it can be lengthy and convoluted, sometimes taking years.
Episode 244: Financial Planning For People Living with MS with Financial Advisor Dick Bell from 2022-05-02T22:00
Planning for your financial future is good advice for everyone. But when you're living with MS, financial planning is an important part of the game plan for living your best life.
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Episode 243: The Economic Burden of MS with Dr. Bruce Bebo and Bari Talente from 2022-04-25T22:00
Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results ...
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Episode 242: No Masks or Proof of Vax? Staying Safe in the Next Normal If You're Living with MS with Dr. Nancy Sicotte from 2022-04-18T22:00
Episode 241: American Academy of Neurology Annual Meeting Recap with Prof. Xavier Montalban from 2022-04-11T22:00
I spent last week attending the American Academy of Neurology (AAN) Annual Meeting and in this week's episode of RealTalk MS, I'm sharing an overview of what I saw and what I heard.
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Episode 240: Hypnosis and MS with Dr. Mark Jensen from 2022-04-04T22:00
Research has shown that hypnosis is an effective treatment for managing chronic pain, including pain associated with MS.
My guest, Dr. Mark Jensen, is a Professor and Vice-Chair of the D...
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Episode 239: New Research Goals Set by the International Progressive MS Alliance with Dr. Robert Fox from 2022-03-28T21:00
A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS res...
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Episode 238: The Pathways to Cures Research Roadmap with Dr. Carol Whitacre and Prof. Alan Thompson from 2022-03-21T22:00
The Pathways to Cures initiative is focused on stopping MS progression, restoring lost function, and ending MS forever. This bold initiative has already been endorsed by more than 20 MS research...
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Episode 237: Raising MS Awareness with Marti Hines from 2022-03-14T22:30
It's MS Awareness Week and my guest is Marti Hines. Marti is a successful event producer, entrepreneur, film producer, and director. She was diagnosed with MS in 2018, and Marti has been very trans...
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Episode 236: How MS Affects Mind, Mood, and Memory with Dr. Anthony Feinstein from 2022-03-07T23:00
If you're living with MS, there's a good chance that, at some point, you're going to deal with depression, cognitive issues, or both of these common MS symptoms.
Episode 235: National MS Society Public Policy Conference Preview with Bari Talente from 2022-02-28T23:00
I've always believed that the things people affected by MS want most -- things like access to quality healthcare, affordable prescription medications, and funding for MS research -- are all func...
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Episode 234: Managing Your Emotional Health As COVID-19 Becomes Endemic with Dr. Meghan Beier and Emily Reilly from 2022-02-21T23:00
Many of our local, state, and national leaders seem to be declaring that the pandemic has ended and it's back to business as usual. But if you're living with MS, how comfortable are you with the...
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Episode 233: COVID-19: Going from Pandemic to Endemic When You're Living with MS with Dr. Nancy Sicotte from 2022-02-14T23:00
With hospital rates starting to decline and mask mandates being lifted in several states there seems to be a general sense that we're seeing COVID-19 becoming an endemic virus. And we ...
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Episode 232: Managing MS and Comorbidities with Dr. Ruth Ann Marrie from 2022-02-07T23:00
Research shows that about 50% of the people living with MS will develop another chronic health condition, or comorbidity, in their lifetime. Whether it's high blood pressure, diabetes, ...
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Episode 231: Evidence Shows EBV Triggers MS -- Understanding the Impact of This Breakthrough Research with Dr. Bruce Bebo from 2022-01-31T23:00
Now that Harvard researchers have presented compelling evidence that MS is triggered by the Epstein-Barr Virus (EBV), what does it mean in terms of ending MS in the world? What does it mean for ...
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Episode 230: Managing MS Fatigue with Dr. Elizabeth Gromisch from 2022-01-24T23:00
Fatigue is one of the most common symptoms of MS. It just gets in the way of fully engaging in life, making fatigue one of the most bothersome symptoms of MS. And because MS fatigue is ...
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Bonus Episode: MS In the 21st Century -- Challenges of Communicating About MS Progression With Your Healthcare Provider from 2022-01-19T23:00
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
Episode 229: Evidence Shows MS is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi from 2022-01-17T23:00
Last week, a research team at the Harvard T.H. Chan School of Public Health presented compelling evidence that the Epstein-Barr Virus (EBV) triggers multiple sclerosis. So, we're taking a deep d...
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Bonus Episode: MS in the 21st Century --The Impact of Cognitive Symptoms on Patient Engagement with Care with Dr. Sarah Morrow and Paola Kruger from 2022-01-12T23:00
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
Episode 228: Headaches and MS with Meagan Adamson, DNP, FNP-BC, MSCN from 2022-01-10T23:00
For some people, getting a headache means experiencing mild discomfort. For others, it can mean debilitating pain, compromised vision, and other serious effects. You don't have to be living with...
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Episode 227: Why Your New Year Resolutions Matter if You're Living with MS (And How To Keep Them!) With Dr. Brooks Wingo from 2022-01-03T23:00
We're four days into 2022 and, for a lot of us, that means that we're four days into a new diet, four days into a new exercise regimen, or four days into some other life-changing behavior. Makin...
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Episode 226: Re-Visiting Our ECTRIMS 2021 Research Review with Dr. Bruce Bebo from 2021-12-27T23:00
Today, we're re-visiting my favorite conversation of the entire year and it seems that you and I agree! You've made it this year's most downloaded and listened-to episode.
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Episode 225: Two of This Year's Most Important Conversations on RealTalk MS from 2021-12-20T23:00
I've always believed that the holiday season is an ideal time for reflection. For looking back and looking ahead. And in that spirit, today we're re-visiting two of the most important conversati...
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Episode 224: The Secrets to Having a Low-Stress/No-Stress Holiday Season with Megan Weigel, DNP from 2021-12-13T23:00
The 2021 holiday season is underway, and the availability of the COVID-19 vaccines means that this year, many of us are getting caught up in cooking, eating, drinking, shopping, and connecting f...
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Episode 223: Assistive Technology for People with MS with Alex Burnham and Bill Binko from 2021-12-06T23:00
If you're living with MS, you know by now that quitting smoking, getting exercise, and making smart food choices have all been shown to improve your physical health and your quality of life. The...
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Episode 222: The Poetry of MS with Tamara Kaye Sellman from 2021-11-29T23:00
Tamara Kaye Sellman is a poet, short story writer, journalist, and essayist. So, when she was diagnosed with MS in 2013, Tamara did what she does best -- she began writing about it. That writing...
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Episode 221: Diet, Nutrition, and MS with Mona Bostick, RDN from 2021-11-22T23:00
Eating well is an important part of a wellness plan. At first glance, making healthy food choices seems simple. But with so much conflicting information and opinion masquerading as fact on websi...
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Episode 220: New MRI Recommendations for MS with Dr. Scott Newsome from 2021-11-15T23:00
Before the availability of MRI technology in the 1980s, MS was frequently misdiagnosed or even missed completely. Today, an MRI exam is a valuable tool in diagnosing MS, following disease progre...
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Episode 219: Update on an Investigational T Cell Therapy with Dr. AJ Joshi from 2021-11-09T16:31:37
We met Dr. AJ Joshi, Chief Medical Officer at Atara Biotherapeutics, at ECTRMS 2019, when he gave us our first update on ATA 188, Atara's investigational cell therapy for MS.
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Episode 218: ECTRIMS 2021 Research Wrap-Up with Dr. Bruce Bebo from 2021-11-01T22:00
Just a couple of weeks ago, 9,000 MS research scientists and clinicians from 100 countries gathered virtually for the annual meeting of the European Committee for Treatment and Research in Multi...
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Episode 217: Living with MS and Managing Comorbidities with Dr. Alissa Willis from 2021-10-25T22:00
Research shows that more than 50% of the people living with MS will experience another chronic health condition in their lifetime. These additional health conditions, known as comorbidities<...
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Episode 216: Open Enrollment with Nicole Vasquez from 2021-10-18T22:00
The annual health insurance open enrollment period has begun! And a lot of people tend to get through open enrollment on autopilot, assuming that the health insurance that they had last year wil...
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Episode 215: Stem Cell Therapy for MS with Dr. Jeffrey Cohen from 2021-10-11T22:00
After reviewing evidence on the use of autologous hematopoietic stem cell transplantation (aHSCT) for the treatment of multiple sclerosis, the National MS Society has concluded that aHSCT is a g...
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Episode 214: Managing Sleep and MS with Dr. Abbey Hughes from 2021-10-04T22:00
Getting a good night's sleep is often easier said than done. About half of the people living with MS experience sleep disorders. Dr. Abbey Hughes is joining me to talk about how sleep and lack ...
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Bonus Episode: MS in the 21st Century -- Family Involvement in MS Care with Dr. Alice Laroni and Trishna Bharadia from 2021-09-30T22:00
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
Episode 213: COVID-19 Vaccine Booster Update for People Living with MS with Dr. Amit Bar-Or from 2021-09-27T22:00
If you're on an MS disease-modifying therapy and you're concerned about how effective your COVID-19 vaccination might be, or you aren't sure whether having MS qualifies you as being immunocompro...
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Episode 212: Mobility Rehabilitation Early and Late in Your MS Journey with Dr. Herb Karpatkin and Cinda Hugos from 2021-09-20T22:00
Early in your MS journey, it's not uncommon to experience minor walking and gait issues. And people living with advanced MS often face more serious mobility challenges. The good news is that reh...
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Episode 211: The Ins and Outs of Employment and MS with Dr. Phillip Rumrill from 2021-09-13T22:00
Having a job matters. Most obviously, employment provides the economic resources that people need to more easily manage every other aspect of their lives. Perhaps less obviously, we tend to defi...
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Episode 210: Getting that Cognitive Assessment with Cathy Chester from 2021-09-06T22:00
Cognitive issues affect a majority of people living with MS and experts often recommend a cognitive assessment as the first step in managing cognitive dysfunction. But what's that cognitive asse...
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Episode 209: MS Superheroes with Madison Copot from 2021-08-30T22:00
Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. T...
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Episode 208: COVID-19 Vaccine Update: The Third Dose and MS with Dr. Nancy Sicotte and Victoria Holmes from 2021-08-23T22:00
The FDA has authorized a third dose of the COVID-19 mRNA vaccines. What does this mean for people living with MS? Are you eligible for a third dose now? Are you eligible in September? How will y...
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Episode 207: The Benefits of Art and Music Therapy in MS with Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman from 2021-08-16T22:00
Imagine being able to see improvement in cognition, motor function, and self-esteem, while enhancing neurological functions like walking and speech without taking another pill or even b...
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Episode 206: The Importance of Advocacy with MS Activist Jenna Green from 2021-08-13T17:00:35
If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes:
- $10 Million increa... Listen
Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff from 2021-08-02T22:00
Just a few weeks ago, life sciences company Abata Therapeutics came out of stealth mode, unveiling a $95 million dollar investment in a novel cell therapy to treat progressive MS.
Joining...
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Episode 204: Creating Greater Diversity and Ensuring Patient-Centricity in MS Clinical Research with Tanja Keiper from 2021-07-26T22:00
Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. -- more severe symptoms, shorter time to disability, and greater levels of...
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Episode 203: How To Enjoy Summer Activities While Staying Safe and Keeping Cool with Dr. Colin Lenington from 2021-07-19T23:30
Summertime traditionally means getting out of the house, enjoying outdoor activities, and being active. But if you're living with MS, outdoor activity and summertime temperatures can raise red f...
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Episode 202: The MS Prodrome with Dr. Helen Tremlett from 2021-07-16T16:41:21
In medicine, a prodrome is a set of signs or symptoms that can appear years before the major symptoms of an illness develop. Recognizing the prodromal phase of MS could mean that, one day, someo...
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Episode 201: Our Conversation with Charcot Award Recipient Professor Alan Thompson from 2021-07-05T22:00
Every two years, the MS International Federation awards the Charcot Award, recognizing lifetime achievement in outstanding research into the understanding and treatment of MS. My special guest i...
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Episode 200: Celebrating 200 Episodes of RealTalk MS with National MS Society CEO Cyndi Zagieboylo from 2021-06-28T22:00
Episode 199: MS and the LGBTQ+ Community with Matoaka Kipp from 2021-06-21T22:00
Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received...
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Episode 198: Anxiety and Depression in MS with Dr. Anthony Feinstein from 2021-06-14T22:00
At some point, about 50% of the people living with MS will experience clinical depression. This goes beyond simply feeling sad. Left unchecked, MS-related depression can sometimes lead to tragic...
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Episode 197: Everything You Need to Know About MS Relapses with Dr. Michelle Cameron from 2021-06-07T22:00
Some people call them flares, some people call them exacerbations, and some people call them MS attacks. But all those terms refer to the very same thing -- an MS rela...
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Episode 196: Diagnosing and Misdiagnosing MS with Dr. Andrew Solomon from 2021-05-31T22:00
The challenge of living with MS often begins with the challenge of getting a timely and accurate diagnosis. There are no symptoms, physical findings, or laboratory tests that can, by themselves,...
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Episode 195: Dr. Nancy Sicotte Shares an Update About Vaccines and DMTs, Variants, Masks, and More from 2021-05-24T22:00
As the United States begins to move past the pandemic and toward something much closer to life as we once knew it, I've received a lot of questions from members of the RealTalk MS listener commu...
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Episode 194: Innovation in MS Rehabilitation with Pierluigi Montovani from 2021-05-17T22:00
When Pierluigi Montovani saw what was available to help his father rehabilitate his MS-related foot drop, he was motivated to invent something better. Pierluigi recruited a couple of friends and...
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Episode 193: Managing the Emotional Fallout of the Pandemic with Dr. Gayle Lewis from 2021-05-10T22:00
The COVID-19 pandemic has created what experts are calling a mental health crisis of unparalleled proportion. Many people affected by MS have had to add pandemic-related stresses and anxieties t...
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RealTalk MS Bonus: MS in the 21st Century with Dr. Mitzi Joi Williams and Carolyn Kaufman from 2021-05-06T02:00
This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.
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Episode 192: Next-Generation MS Therapies with Dr. Michael Kornberg from 2021-05-03T22:00
In today's special episode of RealTalk MS, Dr. Michael Kornberg is going to give us a glimpse into emerging research and the future of MS treatments. So, if you'd like to peer into the not-too-d...
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Episode 191: COVID-19 Vaccines and MS -- What You Need to Know Before You Go with Dr. Dorlan Kimbrough from 2021-04-26T22:00
With 200 million Americans having already received their COVID-19 vaccination, public health officials are warning that vaccine hesitancy is a growing challenge to our nation's ability to fully ...
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Episode 190: MS Rehab in the Real World with Sally McAllister and Dr. Carol-Ann Nelson from 2021-04-19T22:00
Their website says that Destination Rehab takes an "innovative, out-of-the-box approach to physical therapy." This week, my guests are Sally McAllister and the founder of Destination Re...
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Episode 189: Research on Sex Differences in MS Leads to Potential Treatment with Dr. Rhonda Voskuhl from 2021-04-12T22:00
MS affects almost 3 times as many women as men. Have you ever wondered why? When it comes to investigating sex differences in MS, my guest, Dr. Rhonda Voskuhl, has done more than just think abou...
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Episode 188: Managing Your Cognitive Health in MS with Dr. Victoria Leavitt from 2021-04-05T22:00
More than half of all the people living with MS will develop problems with cognition. And while experiencing cognitive dysfunction can be challenging and frustrating, these kinds of changes can ...
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Episode 187: Progressive MS Research, Treatment, and Rehabilitation with Dr. Kathy Zackowski and Dr. Daniel Ontaneda from 2021-03-29T22:00
About 80% of the people with relapsing-remitting MS will eventually be diagnosed with secondary progressive MS. At that point, their remissions stop and their MS symptoms continue to worsen. And...
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Episode 186: Building Your Resilience with Dr. Meghan Beier from 2021-03-22T22:00
Living through a lockdown can be challenging, and it's resilience that helps us get through life's challenges and recover from setbacks. And while resilience may have become a new topic of conve...
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Episode 185: MS Advocacy and the 2021 Virtual Public Policy Conference with Bari Talente from 2021-03-15T22:00
We're less than one week away from the National MS Society's Public Policy Conference. This year, the Public Policy Conference is virtual, which means that you have an opportunity to attend and ...
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Episode 184: MS Awareness Week with Tracey Cooper-Harris and Sarah Quezada from 2021-03-08T23:00
It's MS Awareness Week and we're talking with two remarkable women, Sarah Quezada and Tracey Cooper-Harris, who are living their lives out loud, refusing to let MS define them.
Episode 183: Racial and Ethnic Disparities in MS with Dr. Mitzi Joi Williams from 2021-03-01T23:00
When it comes to accessing care and even the disease course itself, MS is not an equal-opportunity disease. We're talking with Dr. Mitzi Joi Williams about the disparities that affect members of...
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Bonus Episode: ACTRIMS 2021 from 2021-02-27T22:30
Episode 182: COVID-19 Vaccine Myth-Busting with Dr. Scott Newsome from 2021-02-22T23:00
Episode 181: Sex and MS with Dr. Linda Mona from 2021-02-15T23:00
Episode 180: Dr. Jaime Imitola Explains Timing Your MS Medications with the COVID-19 mRNA Vaccines from 2021-02-08T23:00
Episode 179: The Importance of Exercise in MS with Dr. Nora Fritz and Judy Boone from 2021-02-01T23:00
Episode 178: Diet and MS with Dr. Ilana Katz Sand from 2021-01-25T23:00
Episode 177: Dr. Nancy Sicotte Answers Your Questions About the COVID-19 Vaccines and MS from 2021-01-18T22:00
Episode 176: The National MS Society Issues a COVID-19 Vaccine Guidance from 2021-01-11T23:00
Episode 175: People-Powered MS Research with the CEO of iConquerMS Sara Loud from 2021-01-04T23:00
Episode 174: MSVirtual2020 Research Recap with Dr. Bruce Bebo from 2020-12-28T23:00
In this episode of RealTalk MS, we're re-visiting my conversation with Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, about some of the most interesting res...
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Episode 173: Creating the COVID Vaccine Guidance for People with MS with Dr. Nancy Sicotte from 2020-12-21T23:00
Episode 172: Preventing Holiday (and Pandemic) Stress with Megan Weigel, DNP, ARNP-C from 2020-12-14T23:00
Episode 171: The Country with One of the Highest Rates of MS in the World with Dr. Pamela Valentine from 2020-12-07T23:00
Episode 170: Managing MS Pain with Dr. Dawn Ehde and Dr. Heidi Maloni from 2020-11-30T23:00
Episode 169: MSTranslate with Brett Drummond from 2020-11-23T23:00
Episode 168: Remyelination in MS with Dr. Jeffrey Cohen and Dr. Ian Duncan from 2020-11-16T23:00
Episode 167: A Veteran's MS Journey with Karla Clay, Capt USAF from 2020-11-09T23:00
November 11 is Veterans Day in the United States, giving us an opportunity to honor the men and women who have served in America's armed forces. More than 70,000 U.S. veterans are living with MS...
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Episode 166: Managing MS-Related Fatigue with Dr. Bardia Nourbakhsh and Dr. Kathy Zackowski from 2020-11-02T23:00
Episode 165: Understanding MS Clinical Research with Dr. Sandi Cassard and Diane Kramer from 2020-10-28T12:13:28
Episode 164: Understanding Pediatric MS with Hannah Schnitzler, Melissa Fisher, and Dr. Brenda Banwell from 2020-10-19T22:00
Episode 163: MSVirtual2020 Research Wrap-Up with MS Society Executive VP of Research Dr. Bruce Bebo from 2020-10-12T22:00
The ECTRIMS (European Committee for Treatment & Research in MS) meeting is the largest MS research conference in the world. This year, of course, the ECTRIMS conference was virtual, and so was m...
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Episode 162: MS Conference Updates with EJ Levy and Dr. Kathy Zackowski from 2020-10-05T22:00
Episode 161: Sleep Issues and MS with Dr. Katie Siengsukon from 2020-09-28T22:00
Episode 160: The Emotional Impact of the Pandemic on People Living with Progressive MS with Dr. Anthony Feinstein from 2020-09-21T21:00
Bonus: The MSVirtual2020 Conference from 2020-09-17T23:00
Episode 159: Resilience and MS with Dr. Dawn Ehde from 2020-09-14T22:00
Episode 158: A Deep Dive Into MS Disease-Modifying Therapies with Dr. Scott Newsome from 2020-09-07T22:00
Episode 157: The Future of Telehealth with Mei Wa Kwong from 2020-08-31T22:00
Episode 156: Managing Cognitive Dysfunction in MS with Dr. Meghan Beier from 2020-08-24T22:00
Episode 155: Managing Caregiver Stress with MaryAnne Sterling from 2020-08-17T22:00
Episode 154: Vaccinations for People Living with MS with Dr. John Ciotti from 2020-08-10T22:00
Episode 153: Improving Your Health Literacy with Dr. Kalina Sanders and Managing MS with Wellness Coach Kate Costello from 2020-08-03T22:00
MS patients experience better treatment outcomes when they actively participate in their own care. And that requires high health literacy. One of my guests is health literacy expert Dr. Kalina S...
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Episode 152: Managing MS-Related Cognitive Issues and Depression with Dr. Meghan Beier from 2020-07-27T22:00
Episode 151: Managing MS Pain and Fatigue with Dr. Heidi Maloni from 2020-07-20T22:00
Episode 150: The Cost of MS Medications, Drug Development, and More: My Conversation with Genentech CEO Alexander Hardy from 2020-07-13T22:00
Episode 149: A Biomarker to Predict MS Progression with Dr. Robert Fox and Caroline Sincock from 2020-07-06T22:00
Episode 148: New Guidance for MS Disease-Modifying Therapies with Dr. Aaron Miller from 2020-06-29T22:00
Episode 146: An Integrative Medicine Approach to Treating MS with Dr. Allen Bowling from 2020-06-24T18:42:44
Episode 147: Racial Disparities in MS Care with Dr. Jackie Bhattarai from 2020-06-22T22:00
Episode 145: Managing MS Through Different Stages of Life with Dr. Jennifer Graves from 2020-06-08T22:00
Special Episode: CMSC 2020 Virtual Meeting Recap with Cherie Binns from 2020-06-06T00:00
Don't miss our recap of the Consortium of Multiple Sclerosis Centers Annual Meeting with Internationally Certified MS Nurse, Cherie Binns. We're talking about aging with MS, managing mood and de...
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Episode 144: Emotional Wellness and MS: A Check-In with Dr. Amy Sullivan from 2020-06-01T22:30
Episode 143: MS Research Update with Dr. Ellen Mowry from 2020-05-25T22:00
Episode 142: An MS Research Update with Dr. Bruce Bebo from 2020-05-18T22:00
Episode 141: How COVID-19 Affects People With MS with Dr. Robert Shin from 2020-05-11T22:00
Episode 140: Vitamins, Nutrition&Stress Reduction -- Managing MS Symptoms with Dr. Elizabeth Crabtree from 2020-05-04T22:00
Episode 139: She's Living with MS and Diagnosed with COVID-19 with Nancy Guerrera from 2020-04-27T22:00
This week, we're going to hear from 3 experts on very different aspects of COVID-19 and MS.
Kathy Costello, the Associate Vice-President of Healthcare Access for the National Multiple Scl...
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Episode 138: COVID-19&MS In Minority Populations with Dr. Mitzi Joi Williams from 2020-04-20T22:00
This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS.
Returning as my guest on the podcast is Dr. Mitzi Joi W...
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Episode 137: COVID-19&MS Update with Dr. Tanuja Chitnis from 2020-04-13T22:00
This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS.
Joining me as my guest is Dr. Tanuja Chitnis, a board-c...
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Episode 135: Coping With the Uncertainty of MS and COVID-19 with Dr. Kevin Alschuler from 2020-03-30T22:30
This week, and for the foreseeable future, we're committed to sharing the most updated and reliable information on COVID-19 and MS.
Joining me as my guest is Dr. Kevin Alschuler, a Rehabi...
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Episode 134: COVID-19 and MS Updates with Dr. Aaron Miller from 2020-03-24T00:00
This week, and for the foreseeable future, we're committed to sharing the most updated reliable information on COVID-19 and MS.
Joining me as my guest is Dr. Aaron Miller. Dr. Miller is t...
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Episode 133: The Coronavirus (COVID-19) and MS Disease-Modifying Therapies from 2020-03-17T00:00
The National MS Society's National Medical Advisory Committee has issued its recommendations for MS disease-modifying therapies and the coronavirus (COVID-19), and we're sharing them in this epi...
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Bonus Episode: MS Awareness Week with Damian Washington and Dan&Jen Digmann from 2020-03-12T00:00
Episode 132: The Coronavirus (COVID-19) and MS with Dr. Abbey Hughes from 2020-03-10T00:00
It's hard to talk to anyone about anything without talking about the coronavirus. And because the CDC has announced that people with weakened immune systems may be particularly vulnerable to thi...
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Episode 131: Racial Disparity in MS Symptomatology with Dr. Jackie Bhattarai from 2020-03-03T03:49:20
Bonus Episode: ACTRIMS 2020 from 2020-02-29T23:46:58
Episode 130: MS Advocacy with MS Activist Diane Kramer from 2020-02-25T01:00
Episode 129: MS Advocacy in 2020 with Bari Talente from 2020-02-21T19:19:27
Episode 128: Pregnancy&MS with Dr. Riley Bove from 2020-02-11T01:00
Episode 127: MS Activism with California Assemblymember Jim Wood from 2020-02-04T01:00
Episode 126: Access to MS Medications with Tim Coetzee and Bari Talente from 2020-01-28T01:00
Episode 125: The Pathways to Cures Think Tank from 2020-01-21T01:00
Episode 124: First Descents with Brad Ludden from 2020-01-14T01:00
We're exploring the healing power of adventure. My guest is Brad Ludden, the founder of First Descents, a non-profit organization that, since 2001, has taken over 10,000 young adult oncology pat...
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Episode 123: My MS Toolkit with Dr. Anna Kratz from 2020-01-07T01:00
Episode 122: An Epic Bike Ride Across Canada for MS with Marc Boyer from 2019-12-31T01:00
Episode 121: ECTRIMS 2019 Research Recap With Dr. Bruce Bebo from 2019-12-27T05:21:20
Episode 120: Closing Out 2019 with Prof. Gavin Giovannoni from 2019-12-17T01:24:32
RealTalk MS Bonus: MS Mindshift with Cathy Chester from 2019-12-16T01:00
This episode is sponsored by Celgene and the MS MindShift Initiative, which aims to educate about the important role the brain plays in MS.
My guest i...
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Episode 119: Gaining Access to MS Medications with Lisa Aquillano, PharmD, BCPS, MSCS from 2019-12-10T01:00
RealTalk MS Bonus: MS MindShift with Jodi Johnson from 2019-12-06T01:00
This episode is sponsored by Celgene and the MS MindShift Initiative, which aims to educate about the important role the brain plays in MS.
My guest is Jodi Johnson, who is a paid spokesp...
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Episode 118: MS Sucks: Singing for a Cure with Stubhy Pandav from 2019-12-03T01:00
Episode 117: Caregiver Strategies with Penny Patnaude from 2019-11-26T03:00
RealTalk MS Bonus: MS MindShift with Caroline Craven from 2019-11-21T19:39:06
This episode is sponsored by Celgene and the MS MindShift Initiative, which aims to educate about the important role the brain plays in MS.
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Episode 116: Dual-Tasking&MS with Dr. Soha Saleh from 2019-11-18T17:00
Episode 115: Secondary-Progressive MS with Dr. Mary Bailey from 2019-11-12T01:00
RealTalk MS Bonus: MS MindShift with Yvonne DeSousa from 2019-11-07T23:00
This episode is sponsored by Celgene and the MS MindShift Initiative, which aims to educate about the important role the brain plays in MS.
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Episode 114: Understanding&Treating Cognitive Impairment in MS with Dr. Silvana Costa from 2019-11-05T01:00
Episode 113: The Things You Should Be Doing When You've Been Diagnosed with MS with Montel Williams from 2019-10-29T00:00
RealTalk MS Bonus: MS MindShift with Ashley Ringstaff from 2019-10-25T00:00
This special episode of RealTalk MS is sponsored by Celgene and the MS MindShift initiative, which aims to educate about the important role the brain plays in MS.
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Episode 112: The MSIF People with MS Forum with Dr. Laura Musambayi and Gabriela Hidalgo from 2019-10-22T00:00
Episode 111: The Changing Face of MS Over 20 Years -- The CLIMB Study with Dr. Tanuja Chitnis from 2019-10-14T14:00
Episode 110: Coping with MS&Work Stress with Dr. Lauren Strober from 2019-10-08T00:00
Episode 109: On Becoming an MS Research Scientist with Dr. Anisha Doshi from 2019-10-01T00:00
Episode 108: Social Cognition&MS with Dr. Helen Genova from 2019-09-24T03:34:23
Episode 107: Resilience in the Face of MS with Dr. Brandon Beaber from 2019-09-17T00:00
Bonus Episode: ECTRIMS 2019 Day Three from 2019-09-13T20:44:06
Bonus Episode: ECTRIMS 2019 Day Two from 2019-09-12T21:29:29
Bonus Episode: ECTRIMS 2019 Day 1 from 2019-09-11T07:00
Episode 106: Palliative Care for MS with Cherie Binns from 2019-09-10T00:00
This week, we're talking about palliative care for MS. It's a topic that a lot of people living with MS still don't know enough about, but palliative care can offer real benefits in attaining th...
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Episode 105: BBQ For MS? It's the Southern Smoke Festival with Chris Shepherd from 2019-09-03T00:00
Episode 104: MS Fatigue with Dr. Ekaterina Dobryakova from 2019-08-27T00:00
Episode 103: Kyra Millich's MS Journey from 2019-08-20T00:00
Episode 102: MS Disability Progression&Socioeconomic Status with Professor Helen Tremlett from 2019-08-13T00:00
My guest is Professor Helen Tremlett, who holds the Canada Research Chair in Neuroepidemiology and Multiple Sclerosis at the University of British Columbia, in Vancouver, Canada. Professor Treml...
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Episode 101: With Charcot Award Recipient Professor Catherine Lubetzki from 2019-08-06T00:00
Episode 100: Some of the Best Moments From Our Last 100 Episodes from 2019-07-29T23:50:54
Episode 99: Standing Up in MS with Professor Jenny Freeman from 2019-07-23T00:00
Episode 98: Navigating Social Security Disability Benefits with Jamie Hall, Esq. from 2019-07-17T21:54:30
Episode 97: The Power of the Bike with Mike Zimits&Cat Tsigakos from 2019-07-08T16:00
Episode 96: The TREAT-MS Clinical Trial (and why it's so important) with Dr. Ellen Mowry from 2019-07-02T00:00
Episode 95: Ambiguous Loss with Dr. Pauline Boss from 2019-06-25T00:00
Episode 94: Shady Stem Cell Clinics And Their Shady "Clinical Trials"&An MS Rehab Study with Dr. Laura Rice from 2019-06-18T03:35:54
Episode 93: Stem Cells Are In the News&A Research Update from Dr. Karen Lee, V.P. of Research at the MS Society of Canada from 2019-06-11T00:00
Episode 92: MS Research with Dr. Jeffrey Huang from 2019-06-04T00:00
Bonus: From the CMSC Annual Meeting Day 3 (5/31/2019) from 2019-06-01T05:51:19
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, talking about mental health care for people living with MS, coping with anxiety, and the real advanta...
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Bonus: From the CMSC Annual Meeting Day 2 (5/30/2019) from 2019-05-31T06:12:23
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about community based programs to enhance comprehensive MS care, understanding the ...
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Bonus: From the CMSC Meeting Day 1 (5/29/2019) from 2019-05-30T07:17:55
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about MS Navigators, Myelocortical MS, a new paradigm in how patients and doctors s...
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Episode 91: International Progressive MS Alliance Research Update from 2019-05-28T00:55:14
Episode 90: The MS Association of America with President&CEO Gina Murdoch from 2019-05-20T14:00
Episode 89: Exercise&MS with Dr. Lara Pilutti from 2019-05-14T00:00
Bonus: From the AAN Annual Meeting (Tues 5/07) from 2019-05-08T17:12
We're at the American Academy of Neurology Annual Meeting in Philadelphia, and we're talking about teleneurology, stem cells, a new algorithm, and a new research network with ambitious goals. To...
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Bonus: From the AAN Annual Meeting (Mon. 5/06) from 2019-05-07T16:54:41
Get the latest news from the American Academy of Neurology Annual Meeting. We're looking into the future of applying precision medicine to treat MS. We're talking about an artificial intelligenc...
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Bonus: From the AAN Annual Meeting (Sun. 5/05) from 2019-05-06T20:13:06
It's my first day at the American Academy of Neurology Annual Meeting, and we're talking about a great presentation on Progress in Progressive MS and some eye-opening news about the amo...
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Episode 88: Fighting for A Cure with MS Activist Yvette Brisco from 2019-04-29T13:00
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Episode 87: Robots&MS Rehabilitation with Dr. Maja Mataric from 2019-04-23T00:00
Robots?? Really??? The answer is YES! World renowned robotics expert Dr. Maja Mataric joins us on the podcast, and we're talking about how socially assistive robots could be real game-changers f...
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Episode 86: Cannabis&MS with Aryn Sieber from 2019-04-16T00:00
Episode 85: Meat Fight with MS Warrior Alice Laussade from 2019-04-08T22:30
In less than a decade, Meat Fight has actually grown from a backyard barbecue to a non-profit organization that hosts several different fundraising events, offers some unique programs f...
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Episode 84: A New Way of Measuring Mobility&Evaluating Disability with Dr. Valerie Block from 2019-04-01T23:59:16
Episode 83: Progressive MS Day with MS Warrior Kevin Reid from 2019-03-26T00:00
Episode 82: Minority Participation in MS Clinical Research with Dr. Mitzi Joi Williams from 2019-03-19T00:00
Episode 81: Almost One Million! The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo,&Dr. Ruth Ann Marrie from 2019-03-12T00:00
Episode 80: Access to Affordable MS Medications with MS Activist Diane Whitcraft from 2019-03-04T22:00
Episode 79: Caregiver Assurance -- A Better Way of Connecting Caregivers to the Support They Need from 2019-02-26T01:00
No matter what sort of challenge a caregiver may be facing -- financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is m...
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Episode 78: The Importance of MS Advocacy with Bari Talente from 2019-02-19T01:00
Episode 77: Shift.ms with Founder George Pepper&Aoife Kirwan from 2019-02-12T02:39:45
Episode 76: MS Rehabilitation With Dr. Deborah Backus from 2019-02-05T01:00
Episode 75: MS Risk Factors with Epidemiologist Dr. Farren Briggs from 2019-01-29T01:00
Episode 74: How Your Neurologist's Treatment "Style" Affects Your MS Treatment Plan with Dr. Aaron Boster from 2019-01-22T01:00
We know about the importance of disease-modifying therapy (DMT) in managing MS and slowing its progression. But you may not know that there are two very different schools of thought whe...
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Episode 73: Making Connections with MSPals Mary Pettigrew from 2019-01-15T01:00
Recent research suggests that loneliness is one more invisible symptom of MS. But social outreach and interaction have never been more accessible. My guest is Mary Pettigrew, an MS War...
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Episode 72: MS Cognitive Rehabilitation with Dr. Nancy Chiaravalloti from 2019-01-08T05:33:04
Episode 71: Our Look Back at 2018 from 2018-12-31T01:00
Episode 70: When A Couple Is Living With MS with Dan&Jennifer Digmann from 2018-12-24T01:00
Episode 69: MS&Travel with Tarita Davenock, CEO of Travel For All from 2018-12-18T01:00
Episode 68: MS&AI with Dr. Chase Spurlock, CEO of iQuity from 2018-12-11T01:00
Episode 67: MS Research with Dr. Larry Sherman from 2018-12-04T01:00
Episode 66: Embracing Carers with EMD Serono's Scott Williams from 2018-11-27T01:00
Episode 65: Answering Listener Questions with Certified MS Nurse Cherie Binns from 2018-11-20T01:00
Episode 64: Patient-Driven MS Drug Development with Laura Kolaczkowski from 2018-11-13T01:00
Episode 63: Overcoming Caregiving Challenges with Dr. Amy Sullivan from 2018-11-06T01:00
Episode 62: New Guidelines for Managing MS Cognitive Dysfunction with Dr. John DeLuca from 2018-10-30T00:00
Episode 61: Voting IS MS Advocacy with MS Activist Karen Jackson from 2018-10-23T00:00
Episode 60: ECTRIMS Wrap-Up from 2018-10-15T23:30
I'm back from Berlin, Germany, where I attended the 34th annual ECTRIMS Congress, and the single biggest challenge that I faced during the 3-day conference was trying to decide which sessions I ...
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Episode 59: Live from Day 3 of ECTRIMS 2018 from 2018-10-12T23:38:17
Episode 58: Live from Day 2 of ECTRIMS 2018 from 2018-10-12T00:17:15
Episode 57: Live from Day 1 at ECTRIMS 2018 from 2018-10-10T22:39:24
Episode 56: On the Road to ECTRIMS from 2018-10-09T04:00
Episode 55: Minority Inclusion&MS -- We are illmatic with Victoria Reese from 2018-10-02T00:00
Episode 54: MS&Wellness -- A Paradigm Shift with Dr. Aaron Boster from 2018-09-25T01:44:51
The RealTalk MS podcast is celebrating its one-year anniversary this week! And to kick off our 2nd year, I'm launching the RealTalk MS app! You can download the iOS version of...
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Episode 53: iConquer MS with Dr. Robert McBurney&David Gwynne from 2018-09-18T03:18:59
I spent this past weekend attending the iConquer MS Leadership Summit in Boston. iConquer MS is a people-powered research network created by the Accelerated Cure Project for MS. Instead of just ...
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Episode 52: Enjoying the Ride with MS Activist&Author Mitch Sturgeon from 2018-09-11T00:00
Episode 51: MS Research From Australia with Dr. Lisa Melton from 2018-09-04T00:00
Episode 50: The MS Comprehensive Care Model with Dr. Jacqueline Nicholas from 2018-08-28T00:00
Episode 49: Taking On a Challenge with MS Warrior Shawn Feliciano from 2018-08-21T00:00
Episode 48: The Intersection of Art&Science with Elizabeth Jameson from 2018-08-14T00:00
Episode 47: Mental Health Technology&MS Depression from 2018-08-07T00:00
You've heard the statistic before -- 50% of the people living with MS will be diagnosed with depression. And research has shown us that some of the most troubling MS symptoms, including fatigue,...
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Episode 46: Using Data&Technology to Improve MS Care with Michelle Mitchell, CEO of MS Society UK from 2018-07-31T00:00
Episode 45: Building Better Caregivers with Dr. Kate Lorig from 2018-07-24T00:00
Gender Differences&MS from 2018-07-17T05:11:31
My guest this week is Dr. Rhonda Voskuhl, Director of the Multiple Sclerosis Program at the David Geffen School of Medicine at UCLA and the Jack H. Skirball professor of Multiple Sclerosis Resea...
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Episode 43: Cannabis&MS from 2018-07-09T21:00
Episode 42: Stem Cell Therapy&MS from 2018-07-03T00:00
When you google the phrase "stem cell therapy for MS", it can feel like you fell into a black hole of conflicting information, misinformation, and dodgy information that can be full of ...
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Episode 41: Becoming an MS Research Fellow with Dr. Elisabeth Mari from 2018-06-26T00:00
We talk a lot about MS research. And when we do, we talk about the "investigators"...the experts...the scientists in the laboratories who are expanding our collective knowledge about MS. But wh...
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Episode 40: An MS Activist Is Running for Office with Marques Jones from 2018-06-19T00:00
Episode 39: MS&Depression with Dr. Amy Sullivan from 2018-06-12T01:00
Experts estimate that depression affects about 50% of the people diagnosed with MS. And, left unchecked, depression can take your vibrant, colorful world and re-draw it in somber shades of gray...
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Episode 38: The CMSC Annual Meeting with Dr. Rosalind Kalb, Marques Jones, Jill Blackburn&More from 2018-06-05T00:00
At the Consortium of Multiple Sclerosis Centers Annual Meeting, I learned about the Pediatric MS Alliance from Jill Blackburn. I met Dr. Miriam Franco and learned about the app that she's develo...
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Episode 37: MS&Sexual Function with Stuart Nixon, MBE from 2018-05-29T01:23:27
Episode 36: Day Two From the International Progressive MS Alliance Scientific Congress on MS Rehabilitation&Symptom Management from 2018-05-25T05:05:14
The RealTalk MS podcast is coming to you from the Sheraton Centre Hotel in Toronto, Canada, where the International Progressive MS Alliance is holding its 3rd Scientific Congress. The theme of t...
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Episode 35: Day One of the International Progressive MS Alliance Scientific Congress on MS Rehabilitation&Symptom Management from 2018-05-24T04:30:22
Episode 34: From the International Progressive MS Alliance Scientific Congress on MS Rehabilitation&Symptom Management from 2018-05-23T04:34:43
Episode 33: From the International Progressive MS Alliance Scientific Congress on Rehabilitation&Symptom Management from 2018-05-22T01:00
Episode 32: MS Rehabilitation&Symptom Management from 2018-05-15T00:00
Episode 31: David Mitchell&Patients For Affordable Drugs from 2018-05-08T00:00
Episode 30: Dr. Matthew Miles&MS Research Australia from 2018-05-01T00:00
RealTalk MS Episode 29: New Treatment Guidelines For MS Announced from 2018-04-24T00:00
RealTalk MS Episode 28: Pediatric MS With Dr. Emmanuelle Waubant from 2018-04-17T00:30
RealTalk MS Episode 27: Tech Tools To Manage MS from 2018-04-10T00:30
As technology advances at an ever increasing rate, it's speeding up the pace of scientific discovery. In this week's podcast, we're looking at new tech tools -- smartphone apps, desktop programs...
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RealTalk MS Episode 26: Stephanie Buxhoeveden Is An MS Nurse Who Also Happens To Have MS from 2018-04-03T00:00
RealTalk MS Episode 25: Progressive MS Day With Dan&Jennifer Digmann from 2018-03-27T02:00
March is MS Awareness Month, and tomorrow we'll be observing the first ever Progressive MS Day, which is being celebrated by several MS advocacy groups and state governments around the United St...
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RealTalk Episode 24: MS&Depression? There's An App For That! from 2018-03-20T02:00
Depression affects over one million people around the world who are living with MS. And when you fail to treat depression, every other aspect of life seems to get worse - and that can include yo...
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RealTalk MS Episode 23: Accelerating the Cure for MS from 2018-03-13T00:00
The Accelerated Cure Project for Multiple Sclerosis is a national non-profit organization dedicated to accelerating advances toward a cure for MS. My guests on this week's podcast are Dr. Robert...
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RealTalk MS Episode 22: All-Star MS Researchers&Their Work from 2018-03-06T01:00
To kick off MS Awareness Month, we'll go inside a private VIP research briefing where you'll hear 3 award-winning MS research scientists tell us how their work is impacting our understanding of ...
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RealTalk MS Episode 21: MS Advocacy: What It Is&Why It's So Important from 2018-02-27T00:37:02
RealTalk MS Episode 20: Help at Home From Helping Hands from 2018-02-20T04:28:18
RealTalk MS Episode 19: MS Navigators - A Seriously Remarkable Service You Need To Know About from 2018-02-13T01:17:10
If you're looking for no-cost customized, personalized, one-on-one expert advice on all sorts of issues that people with MS encounter, you're going to want to pay attention to my conver...
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RealTalk MS Episode 18: Meet the MS International Federation from 2018-02-06T02:11:52
Multiple sclerosis doesn't respect borders, and that's why a global response to MS is so necessary. And that's where the MSIF comes in. My guest this week is Mr. Peer Banake, CEO of the MS Inter...
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RealTalk MS Episode 17: Open Sesame -- A Life-Changing App from 2018-01-30T00:42:13
RealTalk MS Episode 16: Robots&Rehabilitation With Dr. Maja Mataric from 2018-01-23T01:00:27
Robots?? Really??? The answer is YES! Dr. Maja Mataric joins us on the podcast, and we're talking about how socially assistive robots could be real game-changers for people living with MS and ot...
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RealTalk MS Episode 15: We Are Illmatic from 2018-01-15T23:49:13
Jon's guest on the podcast is Victoria Reese, founder of the We Are Illmatic campaign. We Are Illmatic is building awareness and providing support for women of color who are li...
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RealTalk MS Episode 14: New Year News Roundup from 2018-01-09T02:59:26
It's a new year and we have a lot to talk about! There's good news about new clinical trials...the FDA has given a "Breakthrough Therapy" designation for the first MS treatment approved for chil...
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RealTalk MS Episode 13: The International Progressive MS Alliance With Prof. Alan Thompson from 2017-12-12T04:00
RealTalk MS Episode 12: The Difference Between Men and Women With MS from 2017-12-05T05:00
RealTalk MS Episode 11 from 2017-11-28T04:00
RealTalk MS Episode 10: Caregiving from 2017-11-21T08:02:42
RealTalk MS Episode 9: MS&Depression from 2017-11-14T12:00
RealTalk MS Episode 8: The MS MOSAIC Study from 2017-11-07T05:00
RealTalk MS Episode 7: ECTRIMS Round-Up from 2017-10-31T01:42:59
RealTalk MS Episode 5: It's All About MS Research from 2017-10-17T11:30
RealTalk MS: Episode 4 from 2017-10-10T12:00
This week's episode focuses on some of the cutting edge research being done in the Progressive MS arena. Jon's guest, Dr. Tim Coetzee, Chief Advocacy, Services & Research Officer at the National...
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RealTalk MS: Episode 4 from 2017-10-10T12:00
This week's episode focuses on some of the cutting edge research being done in the Progressive MS arena. Jon's guest, Dr. Tim Coetzee, Chief Advocacy, Services & Research Officer at the National...
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RealTalk MS: Episode 3 from 2017-10-03T15:53:05
In this week's podcast, we're talking to Dr. Lilyana Amezcua, the lead investigator in a new research study that looks at how genetics and culture can impact the severity of MS among Hispanic-Am...
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RealTalk MS: The Latest Threat To Healthcare in America from 2017-09-26T00:30:06
Join host Jon Strum as he talks about the serious threat that the Cassidy-Graham healthcare bill poses to the MS community. Jon is joined by former Representative Donna Edwards, who worked to pa...
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RealTalk MS: Episode 001 from 2017-09-22T23:00:14
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts...
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