"I'm not dead, and that's weird" with Adam Hayden - a podcast by Rivers Fog

from 2021-03-24T10:00

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Adam Hayden is a philosopher, writer, advocate, and organizer for the brain tumor community. We met through LinkedIn when I reached out after listened to him speaking at the End Well Project Conference. He shares being diagnosed with a glioblastoma in 2016 in his early 30s while just becoming a new father. He has outlived over 90% of people with this diagnosis. He has a beautiful sense of humor you will hear t which includes celebrating every year he has survived after his brain surgery known as a craniotomy- they eat a cake that looks like a brain! He speaks with us about and writes wonderful articles about “I’m not dead, and that’s weird." We are honored to hear parts of his grief journey and the importance of having difficult conversations while roles change, coping with medical providers trying their best, friends not knowing what to say and talking to your children about terminal illness. 


Whatever your personal beliefs are- please send prayers and positive energy northbound to this wonderful man who is preparing for another scan in April. Also- help us hook him up with a publisher for his book he wants to publish before he dies! If you know how to help contact us at WhatMattersMostEvv@gmail.com or call 812-389-0182


Adam's website: https://glioblastology.com 


Social Media: #AandWTumorTakedown


Wife’s website: http://www.faithhopeandwine.com/


LinkedIn: https://www.linkedin.com/in/haydenadam/


EndWell Conference: https://endwellproject.org/living-while-dying-a-contingency-plan/


Author & Physician he speaks about: That Good Night, by Sunita Puri, https://sunitapuri.com/


Netflix series mentioned:  Lenox Hill: https://www.netflix.com/title/80201728  The Surgeon’s Cut: https://www.netflix.com/title/81004466and After Life: https://www.netflix.com/title/80998491



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