Podcasts by Seizing Life

Infantile Spasms: The Facts, The Research, and The Hope for the Future from 2023-11-29T17:30:51

This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment....

Epilepsy in Women: Challenges, Concerns, and Considerations from 2023-11-15T17:30:16

This week on Seizing Life® Dr. Elizabeth Gerard discusses concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, we explore manag...

NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research from 2023-11-01T17:30:09

This week on Seizing Life® Peter Burpee shares his experiences with absence and tonic clonic seizures and explains why he’s running for Team CURE Epilepsy in the upcoming NYC Marathon.

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Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child from 2023-10-18T18:41:14

This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and t...

Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book from 2023-10-04T17:56:37

This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-di...

An Extraordinary Life of Autism, Epilepsy, and Advocacy from 2023-09-20T17:59:50

This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite ...

A Young Woman’s Journey with Jeavons Syndrome from 2023-09-06T21:02:48

This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of ge...

Pursuing Effective Epilepsy Treatment and Running for Research from 2023-08-23T17:30

This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.

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From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey from 2023-08-09T18:02:40

This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness.

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A Teen Uncovers the Emotional Impacts of Childhood Seizures from 2023-07-26T17:44:17

This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.

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Comprehensive Epilepsy Centers: An Insider’s Guide from 2023-07-12T18:10:45

This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access...

Love, Marriage, and Epilepsy from 2023-06-28T17:53:49

This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives.

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The Caregiver Journey: A Father’s Story from 2023-06-14T17:56:12

This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease.

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Epilepsy Researcher Compounds Lab Work with Fundraising from 2023-05-31T17:42:09

This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.

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A Daughter’s Diagnosis Inspires Concerts for Epilepsy from 2023-05-17T17:38:55

This week on Seizing Life® Matt Perrone shares his epilepsy journey, discusses the impacts of epilepsy on his mental health, and explains how his daughter’s diagnosis spurred him to create EpiPa...

Teen Tennis Player Remains on Court Despite Seizures and Stigma from 2023-05-03T19:25:57

This week on Seizing Life® Reid Rainwater and his father Ryan share Reid’s epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top ...

From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey from 2023-04-19T19:57:33

This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life.

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The Crucial Role of Nurses in Epilepsy Care from 2023-04-05T19:06:07

This week on Seizing Life® Advanced Practice Provider Lucretia Long shares her 30 years of experience in the epilepsy field and discusses the crucial role nurses and other non-physician provider...

From Desperation to Hope: The Founding and Future of CURE Epilepsy from 2023-03-22T19:02:16

This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research. Listen

Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research from 2023-03-08T18:44:23

This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing h...

Epilepsy Can’t Stop Young Girl’s Competitive Spirit from 2023-02-22T18:54:20

This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitiv...

After Decades of Seizures, an Epilepsy Diagnosis Begins to Provide Answers from 2023-02-08T19:31:52

This week on Seizing Life® Ara Carbonneau shares her decades-long epilepsy journey from initial febrile seizures caused by meningitis at seven months old to her epilepsy diagnosis at the age of ...

Recent Advances in Diagnostic and Surgical Tools for Epilepsy from 2023-01-25T18:34:45

This week on Seizing Life® we look at diagnostic and surgical tools that assist physicians in localizing and removing areas of the brain that produce seizures.

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Unleashing Your Inner Mama Bear from 2023-01-11T19:31:40

Epilepsy advocate Kate Neale Cooper and host Kelly Cervantes share their experiences parenting children with epilepsy and offer advice on advocating for your child’s epilepsy care.

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Kids Ask Docs the Darndest Things About Epilepsy from 2022-12-28T18:50:16

This week on Seizing Life® kids ask pediatric neurologists about epilepsy. Dr. Kristen Park of Children’s Hospital of Colorado and Dr. Adam Numis of the UCSF Benioff Children’s Hospital answer q...

Managing Epilepsy with the Stress of The Holidays from 2022-12-14T18:43:58

This week on Seizing Life®  Neuropsychologist Eva Alden joins us to offer advice for those with epilepsy and their caregivers for coping with stress, anxiety, depression, and travel during the h...

A Mother Shares her Daughter’s Journey from Infantile Spasms to Brain Surgery from 2022-11-30T20:29:13

In support of Infantile Spasms Awareness week , Monica Diaz-Greco shares her daughter’s epilepsy journey from initial onset and diagnosis of infantile spasms through a VNS implant and brain surg...

The Impact of Epilepsy and Seizures on Cognition and Memory from 2022-11-16T20:42:18

This week on Seizing Life® we speak with neurologist Dr. Alice Lam about the potential impacts of seizures on cognition and memory. We discuss both the possible short-term and long-term effects ...

A Marine Explains the Value of Receiving An Accurate Epilepsy Diagnosis A Decade Late from 2022-11-02T17:32:59

This week on Seizing Life® former Marine Captain Jack Somers shares his long and sometimes frustrating  journey to an epilepsy diagnosis, after living for more than a decade with a diagnosis of ...

Remembering a Brother Lost to SUDEP and Finding Hope in Community from 2022-10-19T17:39:35

CURE Epilepsy Board Member Hannah Whitten shares her experiences growing up with a brother with epilepsy and the tragedy of losing him to SUDEP.

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Celebrating 100 episodes: Community, Impact, and Hope from 2022-10-05T17:47:35

Guest host David Axelrod interviews Seizing Life host Kelly Cervantes about turning her epilepsy experience into advocacy, hope, and scientific advances.

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Working to Overcome Disparities in Epilepsy Care in the Hispanic Community from 2022-09-21T17:57:03

This week we talk to Dr. Refugio Sepulveda about challenges faced by the Hispanic community in accessing quality epilepsy care and learn about a program aimed at addressing these issues.

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Medical Cannabis: A Life Changing Journey for Mother and Son from 2022-09-07T17:34:53

This week we look at medical cannabis as a treatment for epilepsy with Sarah O’Hanlon. Sarah shares her journey to find relief for her son’s seizures from Colorado to advocacy to a master’s in m...

Seizure Dogs: Predicting Seizures and Providing Comfort from 2022-08-24T17:55:04

This week on Seizing Life® we talk seizure alert dogs. Jessa Kenworthy of 4 Paws for Ability provides everything you always wanted to know about seizure alert dogs and how they serve those livin...

Determination and New Technology Lead to Successful Epilepsy Surgery from 2022-08-10T17:49:54

This week epilepsy advocate and mother Kate Neale Cooper explains how a new diagnostic tool enabled doctors to localize her daughter’s seizures after 16-years and ultimately perform successful e...

Growing Up with Epilepsy Leads to Making Movies About It from 2022-07-27T18:04:14

Filmmaker Miles Levin discusses growing-up with epilepsy and turning his experiences into the award-winning short film “Under the Lights”.

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Inflammation’s Role in Epilepsy and How it Might be Prevented from 2022-07-13T17:36:15

This week on Seizing Life, epilepsy researcher Dr. Nicholas Varvel explains the connection between inflammation and epilepsy, the promising research being done, and the potential treatment.

A Parent’s Guide to Your Child’s Epilepsy Diagnosis and Treatment from 2022-06-22T17:52:13

Child neurologist, Dr. Doug Nordli provides a guide for parents of children with epilepsy to help navigate diagnosis, physicians, and treatment decisions.

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Epilepsy Stories and the Research Making a Difference from 2022-06-08T17:45:48

This week on Seizing Life we present personal stories of three key areas of epilepsy research: Post-Traumatic Epilepsy, SUDEP, and Drug-Resistant epilepsy.

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Rare Epilepsy: Collaborating for Advocacy, Research, and Community from 2022-05-25T18:05:24

Yssa DeWoody of Ring14 USA and the Rare Epilepsy Network provides a primer on rare epilepsies: what they are, how they are diagnosed and treated, and where to find resources and support.

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Monitoring Mental Health in Kids with Epilepsy from 2022-05-11T17:46:41

We focus on mental health in children and teens with epilepsy. Pediatric neuropsychologist Madison Berl discussers potential issues and what to do.

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A Remarkable Journey to Seizure Freedom Through the Ketogenic Diet from 2022-04-27T17:37:55

This week on Seizing Life® Jim Abrahams, creator of some of the biggest comedy films of all-time, shares his son’s troubling and remarkable epilepsy journey to seizure freedom through the ketoge...

A Post-Traumatic Epilepsy Journey: Diagnosis Acceptance Leads to Career Helping Others from 2022-04-13T18:15:56

Mark DeFee shares his years-long journey with post-traumatic epilepsy from his diagnosis following multiple concussions, through his years of denial in college, to his acceptance and efforts to ...

Finding Solutions and Pursuing Passions with Drug-Resistant Epilepsy from 2022-03-30T17:51:10

This week on Seizing Life ®, Channing Seideman shares her epilepsy story from her first seizure to a diagnosis of juvenile myoclonic epilepsy and tells us how she found safe ways to continue ski...

A Young Woman’s Epilepsy Journey of Acceptance, Empowerment, and Advocacy from 2022-03-16T17:55

This week on Seizing Life college student Kiara Mowat shares her epilepsy journey from her diagnosis in 2018 at age 14 to her first year in college. Hear this personal epilepsy story from an ama...

Addressing and Reducing Epilepsy-Related Deaths from 2022-03-02T18:25:52

Today on Seizing Life®, Gardiner Lapham discusses the creation of PAME (Partners Against Mortality in Epilepsy) a group that aims to raise awareness of mortality in epilepsy in order to reduce e...

Learning to Manage Cognitive Challenges for People with Epilepsy from 2022-02-16T19:09:37

Today on Seizing Life®, Dr. Elaine Kiriakopoulos explains the HOBSCOTCH program, a personalized program that helps people with epilepsy manage and improve memory and cognition to lead happier, m...

Personal Epilepsy Experience Inspires International Epilepsy Advocacy from 2022-02-02T18:47:44

This week in honor of International Epilepsy Day we speak with Julianna Shinnick about epilepsy care, stigma, and advocacy in the Mahenge region of Tanzania in East Africa.

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Genetic Testing&Counseling for Epilepsy From Genome to Exome and More from 2022-01-19T19:19:53

This week on Seizing Life we take a deep dive into genetic testing and counseling; what it is, how it works, what it can provide for patients and families, and what it may promise for the future...

The Best of Seizing Life 2021 from 2022-01-05T18:52:42

This week on Seizing Life, we revisit several compelling conversations from the past year in our Best of Seizing Life 2021 compilation episode.

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Infantile Spasms – part 2: The Hope of Research from 2021-12-15T18:43:15

This week on Seizing Life® we conclude our two-part episode about infantile spasms (IS) by focusing on the research being conducted to improve understanding, detection, and treatment options for...

Infantile Spasms–Part 1: A Medical Emergency from 2021-12-01T18:47:18

This week on Seizing Life®, we focus on infantile spasms (IS), a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. Our panel of experts addresse...

A Family’s Epilepsy Journey: From Diagnosis to Surgery from 2021-11-17T18:55:08

This week on Seizing Life we speak with Daniel, Paula and David Allbeck about their family’s journey with epilepsy from Daniel’s initial diagnosis over 15 years ago to the results of his recent ...

Post-Traumatic Epilepsy and Our Veterans: Impact, Research, and Hope from 2021-11-03T17:45:06

This week on Seizing Life ® we focus on traumatic brain injury (TBI) and post-traumatic epilepsy (PTE) in veterans with Dr. Lauren Harte-Hargrove, Associate Director of Research at CURE Epilepsy...

SUDEP: What To Know and What To Do from 2021-10-20T17:48:07

In observance of SUDEP Action Day on Wednesday, October 20, we speak with Dr. Elizabeth Donner about all aspects of SUDEP (Sudden Unexpected Death in Epilepsy). In this thorough and thoughtful d...

A Brave Little Girl’s Journey with Sturge-Weber Syndrome from 2021-10-06T17:43:17

Today on Seizing Life®, we speak with Cindy and Elvin Angulo about their daughter Vera’s Sturge-Weber Syndrome diagnosis and its connection to epilepsy.

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One Family, Two Different Epilepsy Diagnoses from 2021-09-22T17:41:37

The numerous types of seizures and the widely varying impacts of epilepsy are two key factors contributing to the public’s misunderstanding of the condition. This week on Seizing Life® we speak ...

Epilepsy… It’s Complicated (rebroadcast) from 2021-09-01T19:47:39

In a rebroadcast of an episode from June 2019, Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at Rush University Medical Center in Chicago, explains why epilepsy is so misunderstood, di...

Funding Epilepsy Research: How CURE Epilepsy Advances Science to Find a Cure from 2021-08-18T17:48

CURE Epilepsy CEO Beth Dean explains how the organization funds research, why it remains “patient-focused” in its mission, and what areas of epilepsy research offer the most promise for finding ...

Epilepsy and College: Students and Parents Share Advice and Recommendations from 2021-08-04T17:32:38

With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents share experiences and offer advice about choosing...

From Epilepsy Researcher to Epilepsy Patient: A New Perspective from 2021-07-21T17:30:31

Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White.  Dr. White has been involved in the field of epilepsy research for over 40 years, is a former CUR...

Infantile Spasms: Awareness, Observation, and Intervention from 2021-07-07T17:30:58

A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.

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Living and Thriving with Epilepsy from 2021-06-23T17:30:40

Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts ...

After SUDEP: A Journey of Grief and Hope from 2021-06-09T17:30:09

After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.

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Epilepsy Education and Seizure Safety in Schools from 2021-05-26T17:30:04

When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on...

Finding Balance: Managing Epilepsy and Work from 2021-05-12T17:30:16

For many people, their 20’s are an exciting time of personal and professional growth.  It may be the first time you’re on your own, beginning a career and making new friends. Your world is a mix...

A Mother’s Determination: Advocating for Your Child’s Epilepsy Care from 2021-04-28T17:33:19

Elissa Moore recounts her son Cormac’s journey to a diagnosis and details the challenges they encountered in pursuit of the right treatment for his epilepsy.

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Raising A Child with Both Autism and Epilepsy from 2021-04-14T17:33:30

Author and journalist Liane Kupferberg Carter speaks to us about her journey raising a son with a dual diagnosis of autism and epilepsy.

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Growing Up Alongside a Sibling with Epilepsy from 2021-03-31T17:33:39

College students Emma Cardwell and Nathan Bliss discuss their experiences growing up with a sibling who has epilepsy.

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Community, Fatherhood, and Seizures from 2021-03-17T17:31:43

Alek Stewart has lived with seizures since he was a teenager. But a sudden and dramatic increase in frequency caused Alek and his wife Brittany to make adjustments to their daily lives, and insp...

Helping Your Teen Navigate Epilepsy from 2021-03-03T21:07:58

We talk to Angie Froehlich about parenting a teenage daughter living with epilepsy.

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Epilepsy Advocacy and Education: Determining The Care You Need from 2021-02-17T18:34:38

A newly diagnosed patient educates herself on epilepsy to advocate for the treatment and therapy that works best for her.

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The Best of Seizing Life 2020 from 2021-02-03T19:22:31

We revisit just a few of the amazing conversations from 2020. From growing up with epilepsy to an Army Captain’s battle with PTE, examining the epilepsy/mental health connection and finding hope...

Epilepsy Drug Development: Clinical Trials – A Patient’s Perspective from 2021-01-20T18:39:03

In the finale of our 4-part series exploring the drug development process, we get the patient perspective on participating in clinical trials.

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Epilepsy Drug Development: How Patients Can Make An Impact from 2021-01-06T18:37:20

In the third of our 4-part series exploring the drug development process, we share what patients should  know about participating in clinical trials.

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Epilepsy Drug Development: Clinical Trials from 2020-12-16T18:35:59

In the second of our 4-part series exploring the drug development process, we take a deep dive into the clinical trial phases.

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Epilepsy Drug Development: The Journey Begins from 2020-12-02T18:53:03

In the first of a 4-part series about new drug development and clinical trial participation, we explain the complex process starting with basic research through pre-clinical trials.

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The Impact of COVID-19 on Epilepsy Research from 2020-11-18T19:18:03

Mike Coburn of Research!America shares insights on the near- and long-term impacts of the COVID-19 pandemic on epilepsy research and the research community at large.

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A Veteran’s Battle with Post Traumatic Epilepsy from 2020-11-04T18:42:31

Former U.S. Army Captain Patrick Horan and his wife Patty discuss how post traumatic epilepsy (PTE), severely impacted his recovery from a devastating war wound.

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Speaking Up About SUDEP: Two Mothers’ Stories from 2020-10-21T17:38:05

On this episode of Seizing Life, Libby Boyce and Jessica Brandes, two mothers who each lost a son to SUDEP,  Sudden Unexpected Death in Epilepsy, discuss transforming tragedy and grief into acti...

Mourning Your Idealized Life: Resilience, Love and Acceptance from 2020-10-08T14:15:02

Kelly and Miguel Cervantes discuss coping with the impacts and challenges of parenting a child with special needs in a never-seen episode recorded in November 2018.

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Seizing Life Highlights: Epilepsy Surgery from 2020-09-10T15:57:25

What you should know about brain surgery for epilepsy from both the patient and physician perspective.

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A Disability-Friendly Model for Independent Living from 2020-08-26T19:17:20

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All About Seizures: How Understanding Informs Treatment from 2020-08-12T18:31:30

Seizures explained simply. Explore how they happen, why they look different from person to person, and why different treatments options work for different people.

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The “Invisible” Consequences of Traumatic Brain Injury from 2020-07-29T18:11:17

After a military training accident, doctors worked tirelessly to fix this Marine’s hand. But the bigger consequence, the risk of post-traumatic epilepsy, went unnoticed.

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Seeing the Whole Person: Disability, Race, and Healthcare from 2020-07-15T17:40:56

Sherri Brady tells us about the challenges of navigating the healthcare system as a black woman with a daughter who suffers from a rare neurological disorder.

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It’s Personal: Christin Godale’s Path to Epilepsy Research from 2020-07-01T17:41:04

PhD candidate and aspiring epilepsy researcher Christin Godale shares her journey from hiding her epilepsy to becoming an advocate and pursuing a career in neuroscience.

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Growing Up and Gaining Independence with Epilepsy from 2020-06-17T17:45:24

Talks between parents and children with epilepsy can be fraught with concerns and clashes over health, social life, and independence. This mother-daughter duo discusses how to communicate produc...

Epilepsy and Mental Health: What You Should Know from 2020-06-03T18:01:54

The connection between epilepsy and mental health issues is well-established, but is not often addressed during initial diagnosis or evaluated throughout the course of treatment. In this episode...

Seizure Tracker™: Empowering the Community With Data from 2020-05-20T17:55:03

Seizure Tracker is a free app that empowers patients to take an active role in their epilepsy management while making a positive impact on the community at large.

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No One Does It Alone: Finding Support to Navigate the World of Epilepsy Care from 2020-05-06T18:04:57

For decades advocate and educator Pat Gibson has provided patients and families with information and resources to help navigate the unpredictable world of epilepsy care.

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Parenting, Epilepsy and COVID19 from 2020-04-22T21:44:19

Hear how one mother is keeping her three children, one of whom has epilepsy, safe during the COVID-19 pandemic.

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NINDS and Its Role in Epilepsy Research from 2020-04-08T14:54:50

Discover how NINDS funds epilepsy research and fosters collaboration towards cures from Program Director Dr. Vicky Whittemore.

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EEG Testing: Its Critical Role in Epilepsy Diagnosis, Treatment, and Research from 2020-03-25T15:44:29

Learn about how EEG testing provides essential data for patients, doctors, and researchers battling epilepsy.

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From Lab to Clinic: Genetic Research Is Changing Epilepsy Treatment from 2020-03-11T15:37:59

CURE Taking Flight Grantee Dr. Gemma Carvill explains how genetic research discoveries in the lab can lead to precision care in the doctor’s office.

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New Emergency Meds to the Rescue from 2020-02-26T16:42:08

A leading expert discusses how two newly approved rescue medicines can help epilepsy patients, families, and caregivers in dire moments.

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Acting Globally to Fight Epilepsy from 2020-02-12T16:06:18

Explore the impacts and complex challenges of addressing epilepsy in the developing world.

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Mike Adamle Tackles Life with PTE and CTE from 2020-01-29T16:43:33

Mike Adamle was a fierce competitor in both college football and the NFL.  Now, despite a formidable diagnosis, Mike fiercely tackles  life with both epilepsy and CTE.

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What’s Your Plan? Seizure Clusters and Rescue Medications from 2020-01-15T16:40:52

All epilepsy patients and their caregivers should have a seizure action plan, and for those prone to seizure clusters rescue medications are a vital part of that plan. Now two new rescue meds pr...

The Best of Seizing Life from 2020-01-02T18:51:12

To celebrate the first year of the Seizing Life podcast, we take a look back at some of our favorite moments with unforgettable guests.

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Hot Topics in Epilepsy Research from 2019-12-18T16:19:47

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Infantile Spasms: Know the Signs and Take Action (Rebroadcast) from 2019-12-04T16:32:06

In honor of Infantile Spasms Awareness Week, we’re rebroadcasting an important episode on this severe pediatric epilepsy.

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Establishing Your New Normal with Epilepsy from 2019-11-20T17:58:47

Listen to one woman’s story about how developing epilepsy can suddenly change your “normal” in drastic ways.

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You Don’t Have to Be a Brain Surgeon to Understand Epilepsy Research from 2019-11-06T16:28:26

You don’t have to be a neuroscientist to understand epilepsy research.  Learn how people without a science background can be empowered by research.

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SUDEP: What You Need To Know (Rebroadcast) from 2019-10-23T16:16:03

In honor of SUDEP Action Day, we’re rebroadcasting an important episode of Seizing Life exploring Sudden Unexpected Death in Epilepsy (SUDEP), the risk factors, and ways patients, families, and ...

A Mind Unraveled (Rebroadcast) from 2019-10-09T15:18:02

Author/journalist Kurt Eichenwald recounts the struggles and challenges he has faced due to uncontrolled seizures and the severe stigma and discrimination associated with epilepsy.

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Shout from the Rooftops: Your Voice Can Help Find a CURE from 2019-09-25T18:16:49

Kelly Cervantes sits in the guest seat to give fellow advocates tips on making a difference in the battle against epilepsy.

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Advocate Like a Champion: Spreading Epilepsy Awareness and Standing Up for Research from 2019-09-11T19:42:39

Learn how this college student battles epilepsy stigma by speaking up and advocating like a champion.

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Growing Pains: Living with a Sibling with Epilepsy from 2019-08-28T21:25:45

Find out how growing up around siblings with epilepsy shapes children’s lives.

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Fight Stigma: You’re Never Too Young To Be a Hero from 2019-08-14T21:55:56

Henry is a teen on a mission to battle epilepsy stigma and support organizations working toward a cure.

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What to Expect When You’re Expecting…as a Woman with Epilepsy from 2019-07-31T16:12:55

In this episode, learn about the family planning steps one mom took to safely manage her epilepsy while pregnant.

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Infantile Spasms: Know the Signs and Take Action from 2019-07-17T15:21:07

Learn about infantile spasms, a severe form of epilepsy, and what steps to take if you think your baby is having seizures.

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VNS: A Small Device Making a Big Difference from 2019-07-03T16:20:24

Discover how Vagus Nerve Stimulator (VNS), a small device which acts like a pacemaker for the brain can reduce, lessen the intensity, or eliminate seizures for some individuals with epilepsy. Listen

My Condition Isn’t Generic: Why Changes to Insurance Coverage Matter from 2019-06-19T19:26:23

What do you do if an insurance company decides to switch your seizure medication? Find out in this week’s episode.

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Food for Thought: The Keto Diet and Epilepsy from 2019-06-06T20:54:14

Explore how the ketogenic diet can be used to control seizures in some individuals with epilepsy.

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Post-Traumatic Epilepsy: A Lasting Impact on our Veterans from 2019-05-29T21:49:07

Seizures resulting from traumatic brain injuries continue to impact American veterans with epilepsy long after other combat wounds have healed.

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How Self-Contained Schools Can Help Special Needs Children from 2019-05-08T14:57:59

Explore self-contained schools and discover why they are a great option for some students with severe disabilities.

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Epilepsy…It’s Complicated from 2019-04-24T18:18:17

Despite 3.4 million Americans being impacted by epilepsy, the public still knows very little about this disorder. Discover the positive impact eliminating stigma can have on those with epilepsy....

Epilepsy Summer Camp: Where Kids Can Be Kids from 2019-04-10T18:36:27

Hear how a personal journey inspired a summer camp for kids with epilepsy.

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Epilepsy and College: How to Survive and Thrive from 2019-04-03T20:42:02

A college student with epilepsy offers advice on not only how to survive, but also thrive.

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School Nurse Shortages: The Challenges Students and Families Face from 2019-03-27T16:17:06

Find out how one family impacted by epilepsy is affected daily by the national school nurse shortage.

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SUDEP: What You Need to Know from 2019-03-20T17:25:30

Learn about Sudden Unexpected Death in Epilepsy (SUDEP) and what preventative steps to take.

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Epilepsy Surgery: Is it right for you? from 2019-03-13T15:18:58

Brain Surgery as an epilepsy treatment? Learn about what you should consider before you decide.

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CBD and Epilepsy: A Promising Treatment from 2019-03-06T19:41:36

Discover why CBD can be an effective treatment for some forms of epilepsy with Dr. Laura Lubbers, Chief Scientific Officer at CURE.

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Epilepsy Genetics: Testing Can Make a Difference from 2019-02-27T15:42:16

Hundreds of genes are associated with epilepsy, but what causes the variations in those genes which lead to this condition? And how do you know if you or your child are a candidate for genetic t...

Epilepsy and IEPs: Supermoms to the Rescue from 2019-02-20T06:13:50

Discover how developing individualized education plans (IEPs) can help children with epilepsy and special needs thrive in the classroom.

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20+ Years of Impact: From the Kitchen Table to Cutting-Edge Research from 2019-02-13T18:17:52

CURE Founder Susan Axelrod details how desperation lead her to reshape the epilepsy research and how the field has evolved since her organization began.

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A Mind Unraveled, a Memoir by Kurt Eichenwald from 2019-02-06T15:30:24

Kurt Eichenwald tells his gripping story about living with intractable epilepsy, as well as what inspired him to write his book A Mind Unraveled.

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Inspiring Kindness and Sparking Friendships Through Empathy from 2019-01-22T16:45:01

In this episode, The Nora Project co-founder and executive director, Lauren Schrero discusses how to teach students to be compassionately curious about differences.

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Married with Children…with Epilepsy from 2019-01-22T16:41:04

Kelly speaks with her husband, Miguel, about navigating the challenges that come with raising a child with epilepsy and how they keep their marriage going strong.

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Welcome to Seizing Life from 2019-01-22T16:37:26

CURE Board Member Kelly Cervantes brings you inspirational and helpful stories about epilepsy, how it impacts lives, and the search for a cure.

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