Multiple Sclerosis 009 Diagnosis Rachael Tomlinson Pt. 1 - a podcast by Bron Webster - diagnosed 1996, mum with MS, expert MS patient and still mob

Initially diagnosed with PPMS in 2018 - now aged 53 - Rachael Tomlinson is an MS force to be reckoned with.

Initially had a mini-stroke diagnosis in 2013 and went on to be diagnosed with benign MS in 2013 but never told. Used to have stressful job involving lots of travelling and hours. Fatigue was a massive problem - she calls it her enabler to knowing she needs to take things easier.

The frustrations of cognitive problems have really featured in Rachael’s symptoms.

“probably the most frustrating part of it for me” … “to leave that [work] was devastating and I still grieve for it”.

“I don’t think I was as open about the things that were going on with me”.

“I’m disappointed that 5 years earlier I’d had what they thought was a TIA”  

You can find Rachael here:

 

copyright: Bron Webster 2020 PPMS diagnosis in 2018 - now aged 53

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