Podcasts by The One in a Million Baby
This show tells the stories of the children and their parents who find themselves in that one in a thousand, or one in ten thousand, or even one in a million position of having a child with special needs and how they come to cope. Finding those odds apply to you and your child can be one of the most isolating and terrifying experiences of your life. But then sometimes it can also feel like winning the lottery.
Further podcasts by Tessa Prebble
Podcast on the topic Kinder und Familie
All episodes
Education: Ep07 with Denise Astill from 2018-04-23T06:51:53
Denise Astill is the founder of FACS, an organisation set up to support and raise awareness for Foetal Anti-Convulsant Syndrome. Her twin daughters were born with the funding and qualify for ACC...
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Education: Ep 06 with Carla McNeil from 2018-03-08T19:09:47
Carla McNeil comes to this conversation as a mother, an educator and now a professional advocate for children with dyslexia in her role at Learning Matters. In this episode she talks about what ...
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Education: Ep 05 with Kerry Hodge from 2018-03-01T03:53:52
Kerry Hodge and her family were dreading the new school year without the necessary supports for her son, Felix. In this episode she talks about the struggle to get new supports and how she feels...
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Episode 30: Paula Tesoriero - New Zealand's Disability Rights Commissioner from 2018-02-26T06:43:11
Paula Tesoriero is New Zealand's Disability Rights Commissioner. In this episode she talks about what she intends to do in the role and how she came to terms with her own disability caused by am...
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Education: Ep04 with Tansy Sayers from 2018-02-16T07:00:11
People buy houses in specific zones for the schools they offer their children, but when you have a child with learning disabilities and complex needs in New Zealand, you may have to move entire ...
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Education: Ep 03 with Beth Armstrong from 2018-02-05T04:26:14
Beth Armstrong struggled to find equitable education for her daughter Molly. They tried one school after another, and despite some valiant efforts on the part of the schools and teachers, it was...
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Education: Ep 02 with Rebekah Corlett from 2018-01-26T23:18:54
Rebekah Corlett is a fierce advocate for disability rights and equity in education. She does this on behalf of her daughter Sophia, but also on behalf of other children and teens in New Zealand ...
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Episode 29: Pierce and Nicole - life with Moebius Syndrome from 2018-01-23T07:00:10
At 20 weeks pregnant, doctors told Nicole and her husband Ben that something was wrong with their child's brain. When Pierce was born he struggled to breath, and at six weeks he had a tracheosto...
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Education: Ep 01 with Emily Writes from 2018-01-14T08:14:49
To kick off this short series on education in New Zealand and the challenges parents, kids, teachers and teacher aides have, we've got Emily Writes, author of the brilliant Rants in the Dark, an...
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Episode 28: Jasmine, Mylee and The Grief Project from 2017-10-08T00:31:29
Jasmine Platt's daughter was diagnosed shortly after birth as having a catastrophic brain condition known as burst suppression. She was devastated to learn her daughter would never walk or talk ...
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Episode 27: Lucy and Alex - a mom and her daughter from 2017-09-30T22:58:03
Alex knew from early on that Lucy was a unique kid. She was diagnosed with Autism, as her mother suspected, and a few years later she told her parents that she was a girl, she was Lucy. This epi...
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Episode 26: David Jnr, David and Jane - life after a wrongful birth suit from 2017-09-01T00:00
When David and Jane had David Jnr.* they had no idea that anything was wrong. When David Jnr was born with a rare and complex condition that should have been picked up in utero they decided to f...
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Episode 25: Xavier and Adrianne - Schinzel Giedion Syndrome from 2017-07-30T21:16:40
When Adrianne and her husband had their son Xavier, they discovered he had the incredibly rare condition called Schinzel Giedion syndrome. Children with this syndrome typically don't live past t...
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Episode 24: Dr. Robin McEvoy - Child Decoded from 2017-07-01T00:00
Developmental neuropsychologist Dr. Robin McEvoy and LEAP specialist Kim Gangwish field phone calls, day in day out, from desperate parents who want to help their children. Their children are st...
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Episode 23: Liam and Eric - life with Miller Dieker Syndrome from 2017-05-29T03:27:45
When Eric and his wife found out their newborn son, Liam, had Miller Dieker Syndrome, they didn't react the way many couples would. That's because they weren't like many couples. They had alread...
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Episode 22: Charlie and Loretta - life with Oppositional Defiance Disorder from 2017-04-23T02:45:06
When Loretta's son Charlie started behaving in more and more defiant ways, she refused to believe he was just a naughty boy, and sought to find a reason for his anger and aggression. What she fo...
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Episode 21: Kai and Andrea - life with Trisomy 21 from 2017-03-29T06:57:21
Unlike most Trisomy 21, or Down Syndrome, diagnoses which tend to happen in utero or at birth, Andrea and her husband Joe didn't get the diagnosis for their son, Kai, until he was already 14 mon...
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Episode 20: Heather and The Lucky Few from 2017-02-22T06:56:24
When Heather Avis and her husband realised they couldn't have children, they turned to adoption. The adoption journey took them to places they never thought they would go and the now have three ...
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Episode 19: Ellie and Beth - life with LBSL from 2017-01-29T00:05:15
When Ellie and Mike found out their daughter, Ellie, had a rare form of leukodystrophy called leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation, or LBSL for sh...
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Episode 18: Savannah and David - And Yet We Rise from 2017-01-12T07:51:50
Artist, writer and art teacher, David Borden lost his daughter to complications of cerebral palsy in 2015, just shy of her 16th birthday. Since then he has been working on a graphic novel, And S...
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Episode 17: Tre and Latanya - life with arthrogryposis and autism from 2017-01-01T00:00
After two miscarriages LaTanya and her husband Greg had their son, Tre. After Tre's birth he was diagnosed with arthrogryposis, a condition which causes multiple joint contractures throughout th...
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Episode 16: Eva and Tessa with special guest host Kelsey Dilts McGregor from 2016-11-30T23:00
In this episode the tables turn and Tessa gives up her spot as host and becomes the guest to share her own special needs parenting journey. With special guest host Kelsey Dilts McGregor, Tessa t...
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Episode 15: Frankie and Carrie - life with Mowat Wilson and West Syndrome from 2016-11-01T00:00
For the first 18 months of Carrie and Gabe's son, Frankie's, life, he was in and out of hospital trying to get on top of infections and seizures caused by a rare combination of Mowat Wilson Synd...
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Episode 14: Victoria and Ashley from 2016-10-01T00:25:08
Ashley Jones and her husband Keith had no idea of the rollercoaster ride they were going to get on when they had their first child, Victoria. Victoria, who is now a happy toddler, was born with ...
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Episode 13: Amy Street with Bella Pacific Media from 2016-09-11T02:46:30
Amy Street is the new web series from Bella Pacific Media which tells the stories of 9 residents at the Supported Lifestyle Hauraki Trust in Thames, NZ. The Trust is houses and takes care of mor...
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Episode 12: Ali and Angela - living with F.O.P from 2016-09-01T00:00
After years of battling to find a diagnosis, Angela and her husband Gabe finally got one for their daughter Ali when she was five years old. Ali had Fibrodysplasia Ossificans Progressiva, and he...
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Episode 11: Fiona and Heather - living with Wolf Hirschhorn Syndrome from 2016-08-01T00:00
This episode features the amazingly talented writer, Heather Kirn Lanier, who writes the beautiful blog Star in her Eye, telling her story about her daughter Fiona. Fiona was diagnosed with Wolf...
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Episode 10: Dylan and Kim - life with CHARGE Syndrome from 2016-06-30T12:00
When Kim and Roy's son Dylan was born deafblind and with heart and kidney abnormalities 20 years ago, they didn't react the way you might expect. The loss of their first son Kyle, and a later mi...
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Episode 09: Vivian and Meghan - living with Dravet Syndrome from 2016-05-19T06:59:42
Meghan and her husband Brian never thought they would be moving almost 2,000 miles across the United States for their daughter to be treated with medical marijuana. But when their baby daughter,...
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Episode 08: Stacey and Thomas from 2016-05-02T00:57:11
This next episode is only the second time I have been able to interview a family in person. I drove up to Warkworth, NZ to meet and talk to Stacey Dodd and her son Thomas.
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Episode 00: An introduction from 2016-04-04T03:45:22
It's here! The first ever episode of The One in a Million Baby podcast. It's not perfect, but nothing is. This episode is a starting point, a way to begin. It's my way of introducing listeners to ...
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Episode 01: Jacob and Jen from 2016-04-04T03:42:43
Months ago, I emailed a group of mothers who I have met through various means, but mostly through the blog. They all have children with extra needs, whether those are medical, educational, physical...
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Episode 02: Thomas and Cassie - living with quadriplegic cerebral palsy from 2016-04-04T03:41:13
I first met Cassie when we were both pregnant. I asked a panicky question about nuchal measurements in a Huggies mothers' forum and she was one of the people who replied. At the time she was in hos...
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Episode 03: Chiara and Natalie from 2016-04-04T03:39:30
I first discovered Natalie and her beautiful daughter Chiara not long after Eva was born. I was in desperate need to find community and comfort, and Natalie's blog and her sense of realness combine...
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Episode 06: Adonis and Zinzele from 2016-04-04T03:37:09
This episode marks a special point for the podcast, because Zinzele is the first parent to contact me as a result of the podcast itself. She emailed me shortly after my first episode aired and...
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Episode 04: Lydia and Danae - part 1 from 2016-04-04T02:15:36
The podcast has had a break. A long break really. But it's back. I am so incredibly proud to introduce my next guest. I met Danae online before Eva was even born. She came to play a very important...
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Episode 5: Lydia and Danae - Part 2 from 2016-04-04T02:11:10
In the first part of this episode I introduced Lydia and her mother Danae. We heard about the challenges they have faced not having a diagnosis for Lydia, and how they have come to cope with her r...
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Episode 07: Evie and Rachel- The Super Power Baby Project from 2016-04-04T01:29:43
It is my pleasure and honour, and just well I'm giddy, to announce my next guest on the podcast, Rachel Callander, the creator of The Super Power Baby Project. When Eva was just a few weeks old, E...
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