Podcasts by The Ride by Vasculitis Journey
The Ride provides a unique view of what it’s like to be a patient of a rare disease. It explores patient experiences with medication, the psychology of coping with a rare disease, and finding the humor in it all.
Further podcasts by The Ride - by Vasculitis Journey
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Special Edition: Still Staying At-Home and Maintaining Control from 2020-05-08T11:21:09
In this special edition episode, Dr. Sara Baird Amodio draws upon her background in psychology and clinical social work to offer tips on going the distance and maintaining a sense of control for st...
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Early Diagnosis: We Can Get There. No, Really. from 2020-05-06T16:01:19
Happy Vasculitis Awareness Month, y’all! In this episode, we are talking about how important it is to receive an early diagnosis and how this is a big push for the Vasculitis Foundation. We’re chat...
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It’s Not A Sprint: Living With The Long Haul. from 2020-04-22T10:46:12
In this episode of The Ride, we’re drawing upon our experiences of “living with the long haul” and the chronic nature of Vasculitis. We will be talking with Brandon and his work with the Victory Ov...
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Dispatch From Across The Pond: Living With Vasculitis In The UK from 2020-04-01T09:20:41
In this episode of The Ride, we talk with Jane Edwards from the UK about life there as a Vasculitis warrior and recently published author. We chat about COVID19, coming to grips with the emotional ...
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The Isolationist: Practical Tips for Isolating and Keeping Your Cool. from 2020-03-21T13:05:59
In this special episode of The Ride, we’re talking about isolation. Folks with rare chronic diseases know a thing or two about being isolated. Yay! We finally feel useful! We get to offer others so...
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Coronavirus Special Edition. from 2020-03-17T08:32:32
Sara takes a risk here. She discusses the impact that the Coronavirus is having on Vasculitis folks who are worried, nervous, and scared. --- Send in a voice message: https://anchor.fm/Vasculit...
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One Tough Cookie: Perseverance, Resilience & Vasculitis. from 2020-03-11T09:28:37
In this episode of The Ride, we are talking about resilience and perseverance. Vasculitis patients don’t give themselves enough credit for being some pretty mentally tough cookies. Our special gues...
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I’ve Got Friends In High Places: Altitude, Supportive Friends, and Traveling-While-Vasculiting from 2020-02-26T10:20:56
In this episode, we’re going on a weekend trip with friends to the Rocky Mountains. For whatever reason, altitude seems to affect Sara’s Vasculitis. But she will be hanging with some of her support...
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I Like To Move It, Move It: Neuropathy & Mobility & Vasculitis. from 2020-02-12T10:30:43
In this episode of The Ride, we’re chatting about a common manifestation of EGPA Vasculitis: neuropathy. This can be extremely life-altering, but with a little bit of moxie and the right support, y...
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Rituximab: Why You Should Never Listen To Hanson On A Chemo-Brain. from 2020-01-29T10:10:28
Rituximab is a common course of treatment for folks with Vasculitis. In this episode of The Ride, we will talk about what the infusion experience is like, what you can expect by way of side effects...
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Caregivers, Spouses & Significant Others. from 2020-01-15T10:21:51
In this episode of The Ride, we discuss the caregivers, spouses and significant others of folks who have a rare disease. Our special guest is Tom Amodio, Sara’s husband and caregiver. --- This ...
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Taking a Mental Toll: Mental Health & Vasculitis. from 2020-01-01T10:10
In this episode of The Ride, we discuss how Vasculitis can take a toll on your mental health. The drugs certainly don’t help, and neither does the pain, the inconclusive tests, the ups and downs. Y...
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Blood, and Tests, and Ports. Oh, My! (Part One) from 2019-12-11T10:00:52
In this episode, we discuss the ubiquitous Vasculitis experience of blood draws and Sara takes a field trip to get her port accessed for blood work. Learn what is like for patients who live with a ...
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The Ride by Vasculitis Journey (Trailer) from 2019-12-06T17:51:02
--- Send in a voice message: https://anchor.fm/Vasculitis-Journey/message
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Satan’s Little White Pill. from 2019-11-27T10:35:09
Ever wish you could re-live your 16th year and revert back to an edgy, mouthy, and pouty kid? Do you ever wonder what you’d look like with a little *extra* weight? In this episode, we will discuss ...
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The Nose Knows. from 2019-11-13T10:45:04
In this episode, we will be looking at the role sinuses play in Vasculitis. It’s kind of a thing. Really. Our special guest is Rosemary from Seattle and she will be discussing her experiences with ...
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