Podcasts by TSC Now
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Episode 46: Understanding drug resistant epilepsy and treatment options from 2023-10-27T18:35:16
In this episode of TSC Now, host Dan Klein interviews Karen Keough, MD, a child neurologist at Child Neurology Consultants of Austin. Dr. Keough defines drug resistant epilepsy (DRE), explains how ...
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Episode 45: The 2023 International TSC Research Conference from 2023-10-19T15:33:59
On this episode of TSC Now, host Dan Klein recaps the 2023 International TSC Research Conference: Fueling the Future held September 7-9, 2023, in Washington, DC. The conference brought together ove...
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Episode 44: Rare Conversations from 2023-04-20T15:05:18
Disclaimer: This episode is sponsored by Nobelpharma America LLC. The opinions expressed are those of the host and guest speaker individually and do not reflect the policies or positions of Nobelph...
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Episode 43: The TSC-STEPS Trial from 2023-03-15T13:48:12
In this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in tuberous sclerosis complex (TSC) called TSC-STEPS. TSC-STEPS is a study to learn more about a drug known as Sirolimu...
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Episode 42: Understanding Seizure Clusters from 2023-02-03T22:05:59
In the first episode of TSC Now in 2023, host Dan Klein recognizes International Epilepsy Day (February 13, 2023) and Seizure Action Plan Awareness Week (February 13-20, 2023) by learning about sei...
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Episode 41: Help Today, Help Tomorrow from 2022-12-27T14:02
In the final episode of TSC Now in 2022, host Dan Klein connects with two incredible advocates for individuals with disabilities and learns how families can find support to help them with both ever...
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Episode 40: Totally Super Cool! from 2022-09-09T02:28:43
In a special bonus episode of TSC Now, host Dan Klein learns about a new children’s book called Totally Super Cool, which was developed by Nobelpharma America, LLC. This Podcast is being sponsored ...
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Episode 39: Inspiring a World TSC Community from 2022-09-02T14:43:26
In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part two, Dan explores the history of tuberous sc...
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Episode 38: Galvanizing a World TSC Community from 2022-08-26T11:42:29
In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part one Dan talks to two inspiring and visionary...
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Episode 37: The MILED Trial and the Future of LAM Research from 2022-07-01T18:19:55
In this episode of TSC Now, host Dan Klein celebrates Worldwide LAM Awareness Month (#WWLAM) and raises awareness of lymphanhgioleiomyomatosis (LAM) and a pivotal clinical trial in LAM that is enro...
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Episode 34: Celebrating 20 Years of Comedy for a Cure from 2022-04-02T02:45:41
In this episode of TSC Now, host Dan Klein recognizes the 20th Anniversary Comedy for a Cure® on Sunday, April 3 at the Avalon in Hollywood, California! To kick off the celebration, Dan learns abou...
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Episode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC from 2022-02-07T21:24:11
In a very special early episode of TSC Now, host Dan Klein recognizes International #EpilepsyDay and the kickoff of the second annual Seizure Action Plan Awareness Week. In November 2020, a collabo...
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Episode 32: The 2022 World TSC Conference from 2022-01-28T20:56:18
In the first episode of TSC Now in 2022, host Dan Klein provides an overview of the upcoming 2022 World TSC Conference, co-hosted by Tuberous Sclerosis Complex International (TSCi), which will be h...
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Episode 31: The Present and Future of TSC&LAM Research from 2021-12-22T20:56:15
In the final episode of TSC Now in 2021, host Dan Klein recaps the 2021 Virtual International TSC&LAM Research Conference: Driving Discoveries Beyond Boundaries, presented by Greenwich Biosciences ...
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Episode 30: Infantile Spasms Awareness Week 2021 from 2021-11-30T07:00:49
In Episode 30 of TSC Now, host Dan Klein kicks of Infantile Spams Awareness Week 2021, an initiative from the Infantile Spasms Action Network (ISAN) that runs December 1-7. ISAN is a collaboration ...
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Episode 29: The TSC Navigator from 2021-10-29T19:55:42
In Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-use, interactive online tool to help guide individuals and families through the complexities of tuberous sclerosis comp...
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Episode 28: Comedy for a Cure® 2021! from 2021-10-01T00:07:49
In a very special episode of TSC Now, host Dan Klein provides a sneak peek of the 19.5 Annual Comedy for a Cure® on Sunday October 17 at 7:30 pm Eastern/ 4:30 pm Pacific! This will be a hybrid even...
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Episode 27: Going Back to School and Caring for the Caregiver from 2021-09-01T00:24:12
In Episode 27 of TSC Now, host Dan Klein learns how parents can prepare for the start of a new school year despite the ongoing pandemic. Dan also talks to a licensed professional counselor to get a...
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Episode 26: The Road to Newborn Screening in TSC from 2021-07-29T05:22:17
In Episode 26 of TSC Now, host Dan Klein takes a deep dive into one of the newer and exciting frontiers in TSC research: Newborn Screening. Last Fall, the TSC Alliance hosted an Innovation Workshop...
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Episode 25: Lymphangioleiomyomatosis&Worldwide LAM Awareness Month (#WWLAM) from 2021-06-30T17:59:04
In Episode 25 of TSC Now, host Dan Klein recognizes Worldwide LAM Awareness Month (#WWLAM) by focusing on lymphangioleiomyomatosis (LAM), a rare lung disease affecting women that is characterized b...
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Episode 24: Achieving Universal Health Coverage and Driving Innovative Research Through Global Collaboration from 2021-05-29T02:21
It’s the two-year anniversary of TSC Now and we’re celebrating with a new name, the TSC Alliance! If you missed our announcement on May 16, the Tuberous Sclerosis Alliance has changed our name to t...
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Episode 23: Autism Spectrum Disorder in TSC and TACERN from 2021-05-01T02:50:38
In Episode 23 of TSC Now, host Dan Klein recognizes World Autism Month and Autism Acceptance Month by learning more about autism spectrum disorder (ASD) in tuberous sclerosis complex (TSC). ASD occ...
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Episode 22: Overcoming Hurdles with Health Plans and Specialty Pharmacies from 2021-03-30T17:41:37
In Episode 22 of TSC Now, host Dan Klein explores overcoming hurdles in healthcare, specifically to help parents/caregivers and individuals with tuberous sclerosis complex (TSC) navigate issues wit...
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Episode 21: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC from 2021-02-08T19:19:16
In a very special early episode of TSC Now, host Dan Klein recognizes International #EpilepsyDay and the first day of the first-ever Seizure Action Plan Awareness Week. In November, a collaboration...
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Episode 20: The 2021 Virtual March on Capitol Hill from 2021-01-29T15:35:46
In the first episode of TSC Now, host Dan Klein dives deep on the upcoming Virtual March on Capitol Hill taking place March 1-5, 2021. Due to the ongoing COVID-19 pandemic, the TS Alliance has deci...
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Episode 19: Infantile Spasms Awareness Week (#ISAW2020) from 2020-12-08T23:01:22
In a very special early edition of TSC Now, host Dan Klein explores the topic of infantile spasms (IS) as Infantile Spasms Awareness Week (ISAW), held annually December 1-7 to raise awareness of IS...
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Episode 18: Understanding COVID-19’s Impact on Those with TSC & LAM from 2020-11-24T23:48:20
In episode 18 of TSC Now, host Dan Klein talks to Nishant Gupta, MD, Associate Professor in the Division of Pulmonology, Critical Care and Sleep Medicine at the University of Cincinnati where he se...
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Episode 17: Gene Therapy in TSC from 2020-10-31T01:15:29
In episode 17 of TSC Now, host Dan Klein talks to Xandra Breakefield, PhD, Professor of Neurology at Harvard Medical School and a geneticist, specializing in neurology & tadiology at Massachusetts ...
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Episode 16: COVID-19 and Back to School from 2020-08-28T23:15:12
In episode 16 of TSC Now, host Dan Klein talks to two of the TS Alliance’s Education Parent Mentors to better understand how parents should approach making the decision on sending their kids back t...
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Episode 15: Managing Behaviors During COVID-19 (Part 2) + A New Partnership with SeizureTracker from 2020-08-01T00:39:07
In episode 15 of TSC Now, host Dan Klein continues exploring how to manage harmful and disruptive behaviors associated with TSC-associated neuropsychiatric disorders (TAND) during the ongoing COVID...
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Episode 14: Managing Aggressive and Harmful Behaviors During COVID-19 (Part 1) from 2020-07-01T00:13:15
In episode 14 of TSC Now, host Dan Klein begins the first of an important two-part discussion focused on how parents can begin to address aggressive and harmful behaviors associated with TSC-associ...
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Episode 13: TSC Global Awareness Month in the Age of COVID-19 from 2020-05-31T15:21:50
In episode 13 of TSC Now, host Dan Klein celebrates TSC Awareness Month and one full year of podcasting by once again reaching out to some of the Tuberous Sclerosis Alliance’s international partner...
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Episode 12: Living with TSC During COVID-19 from 2020-04-26T16:29:27
In episode 12 of TSC Now, host Dan Klein does a deep dive on the ongoing COVID-19 crisis and its impact on the tuberous sclerosis complex (TSC) community. Throughout the episode he shares resources...
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