032 - Not looking in the rear view mirror, Brendan Sullivan - a podcast by Cure CMD (Matty Manley & Megan Meyer)

Cure CMD’s commitment is to create community for ALL subtypes - we’ve got another story from the dystroglycanopathy, cognitively impaired community. In this episode, Brendan Sullivan shares the story of his two beautiful daughters with Walker-Warburg Syndrome that ultimately took their lives - and then how he’s not looked in the rear view mirror since and what he’s doing to make a difference. In terms of cognitive impairment and muscle weakness - these families truly exemplify warrior/mama-dada bears! Together - Brendan is a great example of making ripples of change in congenital muscular dystrophy and while also embracing neurodiversity.

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Further episodes of Two Rare Mama Bears

Further podcasts by Cure CMD (Matty Manley & Megan Meyer)

Website of Cure CMD (Matty Manley & Megan Meyer)