An Inside Look at Angelman Syndrome Rare Disease: An Interview with Amanda Moore - a podcast by WIRB-Copernicus Group

In this episode, Amanda Moore, CEO of Angelman Syndrome Foundation speaks with Steve Smith, WCG’s President of Patient Advocacy. As a mom whose son has been diagnosed with Angelman Syndrome - a rare neuro-genetic disorder that affects 1 in 15,000 children - Amanda walks through the time from receiving initial diagnosis to the odyssey of her son’s patient journey in therapy and clinical trials.

Further episodes of WCG Talks Trials

Further podcasts by WIRB-Copernicus Group

Website of WIRB-Copernicus Group