Episode 26 | The Employment Impact of NMO & MOG w/ Dr. Farrah Mateen - a podcast by The Sumaira Foundation and Connor B Judge Foundation

In the second part of our series on working with NMO and MOG, we are joined by Dr. Farrah Mateen. This year she published work that focuses on the socioeconomic impact of NMOSD on patients and caregivers. The work of Dr. Mateen and her team provides us with one of the most in-depth looks at the psychosocial toll, risks, unmet needs, and opportunity loss due to NMOSD.

ABOUT US:

The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.

SOCIAL & WEBSITE:

Farrah Mateen, MD, PhD

Website - https://doctors.massgeneralbrigham.org/provider/Farrah+J+Mateen/255866

Global Neurology Research Group - www.massgeneral.org/neurology/research/global-neurology-research-group

Twitter - https://twitter.com/FarrahMateen

Connect With UsWebsite - https://www.sumairafoundation.org

Facebook - https://www.facebook.com/TheSumairaFoundation

Instagram - https://www.instagram.com/demystifying_nmomog

Twitter - https://twitter.com/DemystifyingNMO

TIMESTAMPS/TOPICS:

00:01:15 Dr. Farrah Mateen

00:03:29 Impact of NMOSD on Employment

00:05:53 What We Can Learn From This Research

00:07:48 Barriers to Employment

00:10:45 Burden of Treatment

00:15:38 Time to Diagnosis

00:21:17 Age of Onset and Future Opportunities

00:24:48 The Role of Mental Health on Returning to Work

00:29:32 Unmet Needs

00:38:36 Disclosing Illness

00:41:11 Comparing NMOSD's Impact

00:44:49 Impact on Caregivers

02:34:00 Future of this Research

LINKS:

Mateen FJ, Trápaga Hacker CM. Understanding the employment impact of neuromyelitis optica spectrum disorder in the USA: Mixed methods. Front Neurol. 2023 Mar 9;14:1142640. doi: 10.3389/fneur.2023.1142640. PMID: 36970509; PMCID: PMC10033531. https://www.frontiersin.org/articles/10.3389/fneur.2023.1142640/full

Trapaga Hacker CM, Hjerthen IG, Shirkoohi A, et al. Impact of NMOSD on employment: a global survey. Presented at: 2023 ACTRIMS Forum; February 23-25; San Diego, CA. Abstract P320. https://www.frontiersin.org/articles/10.3389/fneur.2023.1142640/full

CREDITS:

Producer & Host - Brian Dawson

Guest Photo - Mass General Hospital

Music - Denys Kyshchuk from Pixabay

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Website of The Sumaira Foundation and Connor B Judge Foundation