Podcasts by Demystifying NMO & MOG

Episode 28 | Financial Assistance For NMO & Critical Insurance Updates w/ the Pan Foundation from 2023-08-30T08:30:20

As we wrap up Season Three of the podcast, we are speaking with Amy Niles of the PAN Foundation. Amy is the Chief Advocacy and Engagement Officer, where she dedicates her time to building relati...

Episode 27 | Double Seronegative NMO from 2023-07-12T08:30:12

Episode 27 | Double Seronegative NMO

In this episode, we look at Double Seronegative NMO. We are joined by Nicole Helton to give us the patient perspective. Then Dr. Sara ...

Episode 26 | The Employment Impact of NMO & MOG w/ Dr. Farrah Mateen from 2023-06-27T08:30:18

In the second part of our series on working with NMO and MOG, we are joined by Dr. Farrah Mateen. This year she published work that focuses on the socioeconomic impact of NMOSD on patients and c...

Episode 25 | Responding To Life’s Challenges Featuring Dr. Maggie Kang from 2023-06-13T08:30:12

Many people will recognize this episode’s guest as “Nell’s mom.” But today, we are focusing on the journey of Dr. Maggie Kang, whose world was shaken to its core when her daughter was diagnosed ...

Episode 24 | Working with NMO & MOG from 2023-05-30T19:44:27

In this episode, we are joined by Anessa Powell to discuss the many challenges that people with chronic illnesses face in the workplace, from disclosing their illnesses to finding opportunities ...

Episode 23 | Service Dogs 101 from 2023-03-14T08:30:23

In this episode, we are joined by professional service dog trainer Leslie Horton to talk about all things service dogs, including what they are, legal protections, and training. We try to clear ...

Episode 22 | Resilience & Chronic Illness from 2023-02-28T09:00:28

In this episode, Brian talks with Dr. Amy Sullivan about resilience and how chronic illness impacts mental health.

In her role as an Associate Professor of Medicine and, the Director of Be...

Episode 21 | Learning Through Social Media & Clinical Trials w/ Dr. Aaron Boster from 2023-02-14T14:40:59

In today’s episode, we welcome an award-winning physician, researcher, and educator, Dr. Aaron Boster. He is a board-certified Neurologist and the founder and President of the Boster Center for ...

Episode 20 | Health Literacy - Sifting Through All the C.R.A.A.P. from 2023-01-31T09:30:12

Brian spent more than twenty years working in emergency management as a paramedic & law enforcement officer before getting a Master’s degree in Library & Information Science. While servi...

Episode 19 | Demystifying NMO & MOGAD: All Part of the Spectrum, All in it Together from 2023-01-17T10:10:18

Season three starts with big news about the podcast. We talk with Sumaira Ahmed of The Sumaira Foundation about the podcast's growth and inclusivity and introduce a new co-host, Brian Dawson. Listen

Illuminating the Darkness of Pediatric NMOSD Through Storytelling - Meet Nell Choi' from 2022-01-31T11:00:19

In the season finale of season 2, Chelsey reviews the topics covered and seeks feedback from listeners for season 3!

To top off season 2, Demystifying NMO features Nell Choi, who shares he...

NMOSD Diagnosis Part 2: Control What You Can from 2022-01-10T18:32:57

Part 2 of our conversation on the NMOSD diagnosis, we discuss the personal 'what now?' element...On the individual level, what does coping and living with a newly obtained NMOSD diagnosis look l...

NMOSD Diagnosis: Patient and Clinical Perspective from 2021-12-22T06:00:19

In this episode, host Chelsey chats with NMOSD patient and pediatric hematologist Dr. Joanna Robles about her unique perspective and experience obtaining her NMOSD diagnosis. In their discussion...

Get Nerdy: The Latest in NMOSD Research from 2021-11-02T10:00:17

Embrace your inner nerd with host and CBJF scientific advisor Chelsey (PhD immunologist) as she reviews the emerging science and hot topics recently shared at the virtual European Committee for ...

Too Hot to Handle from 2021-08-06T04:00:19

Feeling the heat this summer?! People living with NMOSD/MS can experience sensitivity to temperature, particularly extremely hot or cold temperatures. In this episode, Chelsey chats with TSF amb...

Dude with NMO from 2021-06-14T13:00:17

In this episode, we focus on a rare population: men with NMO! NMO overwhelming affects women compared to men, and we wanted to tap into the male outlook and experiences living with NMO. Host Che...

Girl Power: Women's Health and NMO from 2021-04-19T12:00:18

In this episode, host Chelsey gets candid on all things related to women's health and NMOSD with Sumaira Foundation Ambassador Chelsey Tucker (TN) and Dr. Tamara Kaplan, neurologist at Brigham a...

Interpersonal Relationships and NMO from 2021-02-28T12:00:19

In this episode, Sumaira Foundation for NMO Patient Ambassadors Julie Aldridge, Kristen Hewitt and Alexis Marta share with host Chelsey their experiences navigating relationships with NMOSD. Tog...

Vaccine Preparedness from 2020-12-14T16:20:16

The Covid-19 pandemic has ravaged the world, and while we're going through another dark surge, there is hope- vaccines. The FDA just authorized and approved the first Covid-19 vaccine. While thi...

Season 1 Finale: Can't Stop; Won't Stop! from 2020-07-08T13:00

In the season finale of season 1, Chelsey chats with Sumaira Ahmed of The Sumaira Foundation (TSF) for NMO for a recap on Demystifying NMO. Sumaira shares her insights as both an NMO patient, TSF f...

Season 1 Finale: Can't Stop; Won't Stop! from 2020-07-08T13:00

In the season finale of season 1, Chelsey chats with Sumaira Ahmed of The Sumaira Foundation (TSF) for NMO for a recap on Demystifying NMO. Sumaira shares her insights as both an NMO patient, TS...

Episode 8: What a Pain in my NMO! from 2020-05-27T10:00

In this episode, host Chelsey talks all things related to NMO pain with Dr. Shamik Bhattacharyya, a neurologist at Brigham and Women's Hospital and assistant professor of neurology at Harvard Me...

Episode 8: What a Pain in my NMO! from 2020-05-27T10:00

In this episode, host Chelsey talks all things related to NMO pain with Dr. Shamik Bhattacharyya, a neurologist at Brigham and Women's Hospital and assistant professor of neurology at Harvard Me...

Episode 7: Navigating the Insurance Labyrinth, with COVID19 in Mind from 2020-04-02T22:46:49

In this episode, Chelsey chats with Marissa Shackleton, Executive Director at the Elliot Lewis Center in Massachusetts. Marissa has 8 years of experience working with patients with NMO and multi...

Episode 6: Docs' Perspective on NMO, Postpartum from 2020-03-10T13:17:16

Chelsey again speaks with Dr. Kaplan and Dr. Galetta, both practicing neurologists at Brigham and Women's Hospital and associated with Harvard Medical School. On this episode, they focus their d...

Episode 5: What to Expect When You're Expecting with NMO from 2020-02-02T15:17:53

On this episode, Chelsey follows up on the topic of sex and NMO and gets into a discussion on pregnancy with NMO. Chelsey explores this topic with Tamara Kaplan, MD and Kristin Galetta, MD, both...

Episode 4: Let's Talk About Sex, Baby from 2020-01-06T16:08

Sexual dysfunction is a common invisible symptom in NMOSD, but given the intimate nature of the topic, it's not discussed as much as it should. What exactly is sexual dysfunction? What causes it...

Episode 3: Gratitude through NMO from 2019-11-24T17:28

In episode 3 of Demystifying NMO, Chelsey shares her conversations with 3 inspiring individuals living with NMOSD: Chelsey Tucker, Ron Crowe and Marie Newbrough. In their chats, they share their...

Episode 2: NMO Treatments: Acute vs Maintenance from 2019-10-24T10:20

Episode 2 of Demystifying NMO by The Sumaira Foundation (TSF) for NMO and Connor B Judge Foundation (CBFJ) focuses on NMO Treatments: Acute vs Maintenance. Follow along to hear a candid conversa...

Episode 1: Autoimmune Disease and NMOSD Overview from 2019-09-23T18:36

The Sumaira Foundation and Connor B Judge Foundation are proud to present their first episode of their new joint podcast, 'Demystifying NMO!' Follow along with Austin Hoover, who lives with mult...