Episode 27 | Double Seronegative NMO - a podcast by The Sumaira Foundation and Connor B Judge Foundation
from 2023-07-12T08:30:12
Episode 27 | Double Seronegative NMO
In this episode, we look at Double Seronegative NMO. We are joined by Nicole Helton to give us the patient perspective. Then Dr. Sara Mariotto, to learn more about testing and the future of the disease. Finally, Sumaira Ahmed talks about her personal experiences as a Double Seronegative NMO patient and the importance of advocacy in research and ensuring patients have access to appropriate care.
ABOUT US:
The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and was made possible with the generous support of Genentech.
SOCIAL & WEBSITE:
Dr. Sara Mariotto
Twitter - https://twitter.com/SaraMariottoMD
Sumaira Ahmed
Linkedin - https://www.linkedin.com/in/sumairaahmed/
Twitter - https://twitter.com/SumairaFlower
Connect With Us
Website - https://www.sumairafoundation.org
Facebook - https://www.facebook.com/TheSumairaFoundation
Instagram - https://www.instagram.com/demystifying_nmomog
Twitter - https://twitter.com/DemystifyingNMO
TIMESTAMPS/TOPICS:
00:01:30 Nicole Helton, Patient Experience
00:06:30 Self-doubt
00:08:14 Accessing Treatment
00:15:03 Dr. Sara Mariotto
00:15:22 Defining Double Seronegative NMO
00:21:42 Treatment
00:25:05 Diagnostic Guidelines
00:32:51 Research
00:37:27 Finding a Doctor and Resources
00:39:48 Sumaira Ahmed
00:42:04 Barriers to Care
00:43:10 Building Resources
00:47:03 Advocating for Double Seronegative NMO
00:50:39 Closing with Nicole Helton
LINKS:
Double seronegative NMOSD with Dr. EoinFlanagan -
Double Seronegative NMOSD Facebook Group -
https://www.facebook.com/groups/6274134689359958
CREDITS:
Producer & Host - Brian Dawson
Music - Denys Kyshchuk from Pixabay
Further episodes of Demystifying NMO & MOG
Further podcasts by The Sumaira Foundation and Connor B Judge Foundation
Website of The Sumaira Foundation and Connor B Judge Foundation