Episode 28 | Financial Assistance For NMO & Critical Insurance Updates w/ the Pan Foundation - a podcast by The Sumaira Foundation and Connor B Judge Foundation
from 2023-08-30T08:30:20
As we wrap up Season Three of the podcast, we are speaking with Amy Niles of the PAN Foundation. Amy is the Chief Advocacy and Engagement Officer, where she dedicates her time to building relationships, public policy, and advocacy initiatives. She joins us to discuss how PAN helps people manage the financial burden of chronic illnesses. Amy also explains important updates to Medicare and some new insurance practices that can be harmful to patients with life-threatening, chronic, and rare diseases.
ABOUT US:
The Demystifying NMO and MOG podcast is a Sumaira Foundation project and
was made possible with the generous support of Genentech.
SOCIAL & WEBSITE:
Amy Niles & The PAN Foundation
Website - https://www.panfoundation.org
Facebook - https://www.facebook.com/PANFoundation
Instagram - https://www.instagram.com/pan.foundation
Twitter - https://twitter.com/pan_foundation
Connect With Us
Website - https://www.sumairafoundation.org
Facebook - https://www.facebook.com/TheSumairaFoundation
Instagram - https://www.instagram.com/demystifying_nmomog
Twitter - https://twitter.com/DemystifyingNMO
TIMESTAMPS
00:02:02 Amy Niles & The Pan Foundation
00:04:16 A Day in the Life
00:05:54 Serving the NMO Comunity
00:06:29 Eligibility Criteria
00:09:03 The Application Process
00:11:30 The Fund Finder
00:14:58 Medicare Updates
00:20:37 Copay Accumulators
00:24:49 Alternative Funding Programs
00:30:54 Do You Have a Copay Accumaltor?
00:32:32 Legislation to Protect Patients & What You Can Do
LINKS:
Fund Finder - https://www.panfoundation.org/find-disease-fund
Find help with FundFinder - https://www.panfoundation.org/fundfinder
Neuromyelitis Optica Spectrum Disorder - PAN Foundation - https://www.panfoundation.org/disease-funds/neuromyelitis-optica-spectrum-disorder
Everything you need to know about Medicare reforms - PAN Foundation - https://www.panfoundation.org/everything-you-need-to-know-about-medicare-reforms
Ask your elected officials to support The HELP Copays Act and ban copay accumulator programs - https://www.panfoundation.org/end-copay-accumulators
CREDITS:
Producer & Host - Brian Dawson
Guest Photo - The PAN Foundation
Music - Denys Kyshchuk from Pixabay
Further episodes of Demystifying NMO & MOG
Further podcasts by The Sumaira Foundation and Connor B Judge Foundation
Website of The Sumaira Foundation and Connor B Judge Foundation