Podcasts by Down Syndrome Center Podcast
This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.
Further podcasts by Kishore Vellody, MD
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#168 - Year End Update! from 2023-11-28T11:00
Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you ...
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#167 - Talk Tools (with Heather Vukelich) from 2023-11-16T16:54
Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome.
#166 - Gigi's Playhouse (with Nanci Gianni) from 2023-11-02T10:00
Nancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series. Gigi's Playhouse provides free educational, therapeutic-based,...
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#165 - Friendship Circle (with Rabbi Mordy Rudolph) from 2023-10-19T10:00
Rabbi Mordy Rudolph joined the podcast to discuss the Friendship Circle of Pittsburgh. This amazing organization was established in 2006 with the intention of creating a more inclusive communi...
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#164 - Black Down Syndrome Association from 2023-10-05T10:00
Kelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organiz...
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#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause) from 2023-09-21T10:00
Dr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopaus...
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#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd) from 2023-09-07T10:00
LaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important co...
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#161 - Special Olympics from 2023-08-17T10:00
Gary Cimaglia, Special Olympics North America’s Vice President ...
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#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro) from 2023-08-03T10:00
Down Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnose...
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#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims) from 2023-07-20T10:00
Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So ma...
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#158 - Update on COVID (with Dr. Andy Nowalk) from 2023-07-06T10:00
The official pandemic status may be gone, but COVID still lingers. Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters.
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#157 - Understanding Grief and Grieving in People with Down Syndrome from 2023-06-22T10:00
How do we help people with Down syndrome during times of grief and grieving? Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss he...
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#156 - Behavioral Analysis (with Dr. Stacy Taylor) from 2023-06-08T10:00
Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behav...
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#155 - Down Syndrome Affiliates in Action from 2023-05-25T10:00
As part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does wit...
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#154 - Bitty and Beau's Coffee Shop from 2023-05-11T15:46
Ben Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops! There will be a Bitty and...
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#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks) from 2023-04-27T10:00
Dr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glas...
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#152 - Addressing Unhealthy Eating Habits (with Shannon Frizzell) from 2023-04-13T10:00
Unhealthy eating patterns are unfortunately common in people with Down syndrome. On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patter...
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#151 - A Conversation with Friends - Happy World Down Syndrome Day! from 2023-03-21T10:00
In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!
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#150 - How to Address Throwing Behaviors (with Dr. Tarin Santamaria) from 2023-03-01T12:11
Dr. Santamaria rejoins the podcast to address a listener question on throwing behavior. What's the best approach when your child with Down syndrome has a tendency to throw objects? And how do ...
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#149 - Juvenile Idiopathic Arthritis (with Dr. Jordan Jones) from 2023-02-02T12:00
Dr. Jordan Jones is an Associate Professor of Pediatrics and Pediatric Rheumatologist from Children's Mercy Hospital in Kansas CIty, MO. Dr. Jones has a special interest in working with childre...
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#148 - Jack's Basket (with Carissa Carroll) from 2023-01-05T12:00
Carissa Carroll, Founder and Executive Director of Jack's Basket, joined the podcast today to talk about her story and how it influenced her to create Jack's Basket. This organization serves fa...
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#147 - Forget Me Not - A Powerful Documentary on Inclusive Education from 2022-12-15T11:00
Award winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not. Part American, part Quebecois, Olivier is also ...
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#146 - Hirschsprung Disease from 2022-12-01T10:00
Dr. Kelly Austin, Director of the Colorectal Center for Children at Children's Hospital of Pittsburgh, joined the podcast to discuss Hirschsprung disease. Seen more commonly in people with Down...
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#145 - The Importance of Exercise in Down Syndrome from 2022-11-17T10:00:28
Scott Quaife, NSCA-CPT, Health and Wellness Coordinator with Down Syndrome Innovations in Kansas, joined the podcast to discuss the importance of exercise in Down syndrome and overcoming potenti...
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#144 - Global Down Syndrome Foundation from 2022-11-03T10:00:14
Michelle Sie Whitten from the Global Down Syndrome Foundation joined the podcast today as part of our "Meet the Nationals" series.
For more information on Global Down Syndrome Foundatio...
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#143 - Depression, Anxiety, and OCD in Down syndrome from 2022-10-20T10:00:58
Dr. Anna Esbensen, psychologist with the Thomas Center for Down Syndrome at Cincinnati Children's Hospital, joined the podcast to answer a listener question about psychological issues that are s...
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#142 - Exciting Upcoming Events with DSA Pittsburgh! from 2022-10-07T19:12
To celebrate Down Syndrome Awareness Month, representatives from the Down Syndrome Association of Pittsburgh (DSAP) joined the podcast today to reflect on their experiences as parents as well as...
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#141 - National Down Syndrome Society (NDSS) from 2022-09-29T10:00:38
Kandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome. You can find ...
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#140 - COVID Update - Omicron Boosters! from 2022-09-16T12:53:44
Dr. Nowalk joined the podcast again to give us a general COVID update and discuss specifically the new Omicron boosters.
CDC Statement on Omicron Boosters
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#139 - National Down Syndrome Congress (NDSC) from 2022-09-02T18:54:03
Jordan Kough, Executive Director of the National Down Syndrome Congress, joined the podcast as part of our "Meet the Nationals" series. To learn more about the NDSC, go to Listen
#138 - Not Down, Up Mommy (with author Antoinette Scaffidi) from 2022-08-11T10:00:30
Antoinette Scaffidi, author of the children's book Not Down, Up Mommy, joined the podcast to talk about the book and her thoughts on the importan...
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#137 - Swallowing Dysfunction and G-tubes from 2022-07-28T10:00:02
Speech language pathologist Sheri Rosen and Pediatric Surgeon Dr. Mike Morowitz joined the podcast to discuss swallow studies and gastrostomy tubes.
If you have an idea for a fu...
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#136 - Healthy Lifestyle Choices Around Food and Exercise from 2022-07-14T10:00:44
Shannon Frizzell, registered clinical dietician, joined the podcast today to talk about strategies for healthy weight management in people with Down syndrome.
For more information and res...
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#135 - COVID Update (Vaccination for Younger Children, Boosters for Older Children) from 2022-07-01T16:29:26
Dr. Nowalk rejoins the podcast for an update on the COVID pandemic as it relates to people with Down syndrome. Topics discussed include a general COVID update, COVID vaccine booster doses for c...
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#134 - The Lucky Few (with Heather Avis) from 2022-06-16T10:00:24
Heather Avis, co-host of The Lucky Few podcast joined our podcast today to talk about her journey and vision to "change the narrative" when it comes to how society views Down syndrome.
To...
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#133 - Catching Up with The Improvaneers (with Rob Snow) from 2022-06-02T10:00:25
Rob Snow (creator and founder of The Improvaneers) returns on the podcast to give us an update with how its going on the comedy show, the impacts of COVID, and the vision for the program. You can ...
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#132 - Down Syndrome Diagnosis Network (with Jen Jacob) from 2022-05-19T10:00:12
Jen Jacob, Founder and Executive Director of the Down Syndrome Diagnosis Network (DSDN) joined the podcast to talk about their work in the area of information and resource sharing for families. You...
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#131 - Domestic Adoption in Ds from 2022-05-05T10:00:39
Stephanie Thompson from the National Down Syndrome Adoption Network (NDSAN) joined the podcast today to talk about their work in domestic adoptions for children with Ds in the U.S. Listen
#130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull) from 2022-04-19T15:41:34
Dr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the lat...
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#129 - Supplemental Security Income (SSI) and Waivers from 2022-04-14T11:00
Dr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss supplemental security income (SSI) and waivers.
If there are any topics you w...
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#128 - Power of Attorney and Guardianship from 2022-03-31T11:00
Dr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss the difference between power of attorney and guardianship.
If there ar...
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#127 - Happy World Down Syndrome Day! from 2022-03-21T10:00:21
In honor of World Down Syndrome Day, I have chosen to re-release my favorite podcast episode with 3 very special guests! Enjoy!
If there are any topics you would like us to discuss on th...
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#126 - Omicron Fading? Where Do We Go From Here? from 2022-03-17T10:00:28
Friend of the podcast, Dr. Andy Nowalk rejoins the podcast to give us his thoughts on the COVID pandemic. Questions surrounding the current status of Omicron, need for masking, vaccine timing f...
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#125 - National Down Syndrome Convention from 2022-03-14T11:00:01
The National Down Syndrome Congress (NDSC) Convention is back in person this summer, June 23-26, 2022, in New Orleans, Louisiana! Dr. Vellody was joined by NDSC representatives Tamara Pursley (...
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#124 - Aorta Borealis from 2022-03-04T11:00:15
Singer and songwriter Jesse Norell joined Dr. Vellody on the podcast to share about his passion for music and how his new album tells about his journey with his daughter.
And be sure to c...
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#123 - Education in Down Syndrome from 2022-02-17T12:40
Dr. Vellody was joined by Sue Buckley on the podcast to discuss education in Down syndrome, specifically discussing speech, reading, and math skills. Sue Buckley is a leading expert in educatio...
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#122 - COVID, Omicron, Vaccines - Myths and Truths from 2022-01-25T18:52:25
Dr. Vellody and Dr. Nowalk discuss the latest on the COVID-19 Omicron variant and then answer listener questions on the COVID vaccine.
Please consider supporting the work of the D...
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#121 - COVID in Ds, Omicron Edition from 2021-12-23T15:50:45
ID specialist and friend of the podcast, Dr. Andy Nowalk, joins the podcast to discuss the latest on COVID, including the Omicron variant.
Please consider supporting the work of the Down ...
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#120 - Alzheimer Disease in Down Syndrome from 2021-12-16T11:00:20
Dr. Peter Bulova joins the podcast today to discuss myths and facts about Alzheimer disease in Down syndrome.
Adult Down Syndrome Center
...
#119 - What About College for People with Down Syndrome? from 2021-12-02T10:00:55
Tom Sannicandro joined the podcast today to share his expertise on college options available for people with Down syndrome.
Think College
<...
#118 - Early Intervention Services from 2021-11-18T10:00:17
Erica Balint, outreach coordinator for The Alliance for Infants and Toddlers, Inc., joined the podcast today to discuss Early Intervention Services for young children. What are early interventi...
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#117 - COVID Vaccine for Younger Children and Boosters for Adults from 2021-11-05T10:00:28
Dr. Andy Nowalk joins the podcast again today to discuss the latest news in COVID as it relates to people with Down syndrome. The podcast highlights the release of the COVID vaccine for 5-11 ye...
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#116 - Unexplained Regression in Down Syndrome from 2021-10-28T10:00:50
Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression i...
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#115 - Approach to Selective ("Picky") Eaters from 2021-10-14T10:00:59
Selective (or "Picky") eaters are common in Pediatrics. Many parents receive advice on how to manage but what does the data show? Ann Meyers from Clinical Nutrition and Sarah Rossman from Occu...
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#114 - Self Talk, The Groove, and Other Common Behaviors in Ds (with Dennis McGuire) from 2021-09-30T10:00:12
World-reknowned expert and author on mental health and wellness in people with Down syndrome, Dennis McGuire, joined the podcast today to talk about common (and usually normal) behaviors in older c...
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#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria) from 2021-09-16T10:00:09
Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Cen...
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#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk) from 2021-09-02T10:00:55
Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome.
Pittsburgh Vaccine Trials Unit
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#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT)) from 2021-08-19T10:00
Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school a...
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#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk) from 2021-08-03T19:47:24
Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.
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#109 - Sensory Processing in Ds (with Dr. Katie Frank) from 2021-07-29T11:00:02
Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches.
Resources:
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#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker) from 2021-07-15T10:00:21
Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.
For ...
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#107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull) from 2021-07-01T10:00
Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specif...
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#106 - COVID and Mental Health in Ds (with Dr. Ruth Brown) from 2021-06-17T10:00
Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with...
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#106 - COVID and Mental Health in Ds (with Dr. Ruth Brown) from 2021-06-17T10:00
Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with...
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#105 - Hearts of Joy International from 2021-06-03T12:11:46
Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International. Listen and learn about the work that this amazing organization is doing to bring hope to children with Down s...
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#104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast) from 2021-05-25T18:11:21
Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy. They also discussed the National Down Syndrome Congress' Al...
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#103 - COVID Vaccination in Children with Ds (with Dr. Andrew Nowalk) from 2021-05-18T15:27:45
In our ongoing goal to keep you up-to-date with the latest changes in the COVID-19 pandemic, Dr. Nowalk joined the podcast again today to discuss COVID vaccination in children with Down syndrome...
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#102 - Orthodontic Care (with Dr. Lindsay Schuster) from 2021-05-14T10:00
Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster.
#101 - 2021 NDSC Convention (with Sarah Hill) from 2021-05-07T12:20:57
Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress. The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocat...
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#100 - The 100th Podcast! from 2021-04-28T11:00
Join us as we remember the history of this podcast and hear beautiful music and testimonials shared by our listeners. And take a listen to this song by Troy Griffith.
Troy Griffith "Ten ...
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#99 - Education in Ds - Past, Present, and Future (with Ricki Sabia, JD) from 2021-04-08T10:00
Dr. Vellody was joined by NDSC Senior Education Policy Advisor Ricki Sabia to discuss topics surrounding Education in people with Down syndrome. Ricki shared her extensive expertise in this are...
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#98 - World Down Syndrome Day Special Interview! from 2021-03-21T11:00
In honor of World Down Syndrome Day, we had some VERY special guests including my brother and parents! Listen in as they discuss their experiences 46 years ago this month and how they compare t...
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#97 - COVID and DS - Variants, Vaccines, and a New Study in Ds (with Dr. Andrew Nowalk) from 2021-03-15T19:13:04
Dr. Andrew Nowalk, pediatric infectious diseases specialist at the Children's Hospital of Pittsburgh, joins Dr. Vellody to talk about current topics of variants, vaccines, and a new study in Dow...
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#96 - Skin Conditions in Down Syndrome, Part 2 (with Dr. Jillian Rork) from 2021-03-11T11:00
Dr. Jillian Rork joins the podcast again today as a board certified pediatric dermatologist to discuss skin conditions in Down syndrome. This is Part 2 of a video podcast series on this topic. ...
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#95 - Feeding in Infants with Down Syndrome from 2021-02-25T11:00
Dr. Vellody was joined by specialists from the Children's Hospital of Pittsburgh Feeding Team to discuss techniques to effectively feed infants with Down syndrome. Many thanks to our guests on ...
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#94 - Skin Conditions in Down Syndrome, Part 1 (with Dr. Jillian Rork) from 2021-02-11T11:00
Dr. Jillian Rork joins the podcast today as a board certified pediatric dermatologist to discuss skin conditions in Down syndrome. This is Part 1 of a video podcast series on this topic. Topic...
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#93 - Infantile Spasms (with Dr. Nicole Baumer) from 2021-01-21T11:00
Dr. Nicole Baumer joined the podcast again today, this time to discuss a type of seizure called infantile spams that are seen more commonly in people with Down syndrome.
For more informat...
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#92 - COVID-19 Vaccine in People with Down Syndrome from 2021-01-14T17:15:58
Dr. Andrew Nowalk from Pediatric Infectious Diseases joined the podcast today for an update on COVID-19 infections in Down syndrome. We discussed the COVID-19 vaccine in general and also specif...
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#91 - Medical History of Down Syndrome (with Dr. Kristen Ehrenberger, MD, PhD) from 2021-01-04T11:00
Dr. Kristen Ehrenberger, MD, PhD joins us on the podcast today to discuss the medical history of Down syndrome. Dr. Ehrenberger is dually boarded in Internal Medicine and Pediatrics, and she al...
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#90 - Financial Planning Advice and Resources (with Rob Wrubel) from 2020-12-21T14:46:27
Listen in as Rob Wrubel shares personal and professional advice on financial planning on today's podcast. You can find more information and resources from Rob at his website at Listen
#89 - COVID Town Hall (hosted by DSA Pittsburgh) from 2020-12-10T11:00
The Down Syndrome Association of Pittsburgh hosted a virtual town hall to discuss questions related to COVID and Down Syndrome. Dr. Vellody, Dr. Nowalk, and Dr. Freeman were all present to answ...
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#88 - Hot off the Presses! Adult Healthcare Guidelines (with Dr. Peter Bulova) from 2020-11-20T11:00
Dr. Peter Bulova, Director of the Adult Clinic at the Down Syndrome Center of Western Pennsylvania, joins us on the podcast to talk about the recently released Adult Down Syndrome Healthcare Gui...
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#87 - Down Syndrome Clinic to You - DSC2U (with Dr. Brian Skotko) from 2020-11-13T12:00
Dr. Brian Skotko joined us again as a guest one the podcast to discuss Down Syndrome Clinic to You (DSC2U), a new and innovative way to get personalized healthcare recommendations for your loved...
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#86 - Learning to Read - Tips&Resources for Success (with Dana Halle). from 2020-11-06T12:00
Today, we were joined by Dana Halle, Co-Founder/Executive Director of the Down Syndrome Foundation of Orange County and
Developer and Lead Instructor of The Learning Program and LP Online...
#85 - Does having Ds lead to higher risk in COVID? (COVID and DS#7, with Dr. Andrew Nowalk) from 2020-10-27T15:02:16
Dr. Nowalk joined the podcast to give us an update on Down syndrome and COVID. We discuss 2 recently published articles that have gotten a lot of press recently.
#84 - Toilet Training in Down Syndrome (with Dr. Lina Patel, PsyD) from 2020-10-08T19:54:26
Dr. Lina Patel, psychologist from the Sie Center at Children's Colorado, joined Dr. Vellody on the podcast to talk about toilet training. Dr. Patel is the co-author of the recent book Listen
#83 - A Friend Like Anian (with Meeka Caldwell) from 2020-09-04T15:35:30
In a continuation of our discussions on Race and Down Syndrome, author Meeka Caldwell joined the podcast today to talk about her experiences as a mother and her children's book "A Friend Like An...
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#82 - COVID and DS #6, Return to School, Part 2 (with Dr. Andrew Nowalk) from 2020-08-24T19:27:16
Friend of the podcast, Dr. Andrew Nowalk, MD, PhD, joined us again for an update on optimizing safety in school re-opening.
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#81 - Updates from the DS Center, Down Syndrome Association (with Erin Kelly and Meredith Peterson) from 2020-08-21T15:36:29
Erin Kelly (Down Syndrome Center of Western PA Program Coordinator) and Meredith Peterson (Executive Director, Down Syndrome Association of Pittsburgh) joined Dr. Vellody on today's podcast to d...
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#80 - Autism and Down Syndrome (with Dr. Nicole Baumer) from 2020-08-06T10:30
Dr. Baumer re-joined the podcast to share her pediatric neurodevelopmental expertise in the dual diagnosis of autism and Down syndrome.
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#79 - ADHD and Down Syndrome (with Dr. Nicole Baumer) from 2020-07-30T19:50:28
Dr. Vellody was joined on the podcast by Dr. Nicole Baumer who is a pediatric neurodevelopment specialist with expertise in ADHD in Down syndrome.
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#78 - Race and Healthcare in People with Down Syndrome #2 (with Kimberly Ewing and Roxanne Hoke-Chandler) from 2020-07-23T10:30
Continuing in our topic of race and healthcare, Dr. Vellody was joined by Kimberly Ewing and Roxanne Hoke-Chandler.
NDSC Town Hall Meetings on Race Relations
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#77 - COVID and DS #5 - Thoughts on School Reopening (with Dr. Andrew Nowalk) from 2020-07-16T20:32
Dr. Nowalk joined the podcast again to discuss preliminary thoughts on school reopening this fall.
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#76 - International Adoption and Down Syndrome from 2020-07-06T19:10:05
Michelle Zoromski, Executive Director, Grants & Operations of Reece's Rainbow, joined Dr. Vellody on this podcast to discuss international adoption in Down syndrome.
#75 - Is COVID-19 more common in Down syndrome? A review of recent data (with Dr. Andrew Nowalk and Dr. Megan Freeman) from 2020-06-17T11:54:20
There have been several papers about COVID-19 and Down syndrome released recently that have gotten some media attention. Friend of the podcast, Dr. Andrew Nowalk, and our regional coronavirus e...
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#74 - Race and Healthcare for People with Down Syndrome (with Shauntel Neal-Howe and Valerie Williams) from 2020-06-13T15:52:19
Shauntel Neal-Howe (Vice President, National Down Syndrome Congress) and Valerie Williams (Secretary, National Down Syndrome Congress) joined Dr. Vellody on the podcast to discuss their experien...
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#73 - Stuttering (with Betsy Gilbert, CCC-SLP) from 2020-06-03T21:00:41
Betsy Gilbert rejoined the podcast to discuss stuttering in people with Down syndrome.
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#72 - Coronavirus in Ds #3 - Navigating Towards an Eventual Safe Return (with Dr. Andrew Nowalk) from 2020-05-15T18:08:05
Dr. Nowalk rejoined the podcast today to talk about timely topics such as safely bringing children to medical visits and daycare settings. We also brought a special focus on potential summer va...
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#71 - Right to Equal Medical Treatment for People with DS (with Heather Sachs, JD) from 2020-04-21T19:21:43
Dr. Vellody was joined on the podcast today by Heather Sachs, JD, the Policy and Advocacy Director of the National Down Syndrome Congress. They discussed the rights of people with Down syndrome...
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#70 - Coronavirus in Ds #2 - Myths and Truths (with Dr. Andrew Nowalk) from 2020-03-31T19:03:08
Dr. Nowalk rejoined us on the podcast to go through several myths (and a couple truths) about coronavirus/COVID-19.
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#69 - Best Practices and Resources for Online Education in Ds (with Dr. Sean Smith) from 2020-03-20T18:20:15
Dr. Sean Smith is a Professor of Special Education at the University of Kansas and is a nationally recognized expert in special education, particularly in the use of technology in educational pr...
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#68 - Coronavirus (with Dr. Andrew Nowalk) from 2020-03-10T20:23:13
Since our last episode on respiratory viruses was recorded prior to the arrival of coronavirus (causing COVID 19) in the U.S., Dr. Nowalk graciously agreed to join us to give us the current stat...
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#67 - Preventing Respiratory Illness (with Dr. Andrew Nowalk) from 2020-03-05T00:48:57
Dr. Andrew Nowalk joins us on the podcast today to discuss general prevention of respiratory illness in children with Down syndrome.
This podcast was recorded prior to the COVID-19 sprea...
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#66 - Dental Topics (with Dr. Brian Martin) from 2020-02-20T19:38:09
Dr. Brian Martin joined us on the podcast to discuss common pediatric dental issues seen in children with Down syndrome.
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#65 - Speech Apraxia (with Betsy Gilbert, CCC-SLP) from 2020-02-04T19:39:14
Betsy Gilbert of Therapy Works LLC joined Dr. Vellody on the podcast to discuss speech issues in Down syndrome, particularly speech apraxia.
To get more information on speech apraxia an...
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#64 - Sibling Topics (with Sue Levine and Brian Skotko, MD) from 2019-11-21T18:49:49
Dr. Vellody was joined by the foremost experts in the world regarding sibling topics related to Down syndrome. Ms. Levine and Dr. Skotko have numerous publications and have lead many national w...
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#63 - Research at the NIH (with Melissa Parisi, MD and Lisa Kaeser, JD) from 2019-10-31T19:33:33
Melissa Parisi and Lisa Kaeser fro the National Institutes of Health joined Dr. Vellody on the podcast today to discuss current research at the NIH. Specifically, they discussed the DS-Connect ...
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#62 - Hematologic (Blood) Issues (with Dr. Kishnani and Dr. Hart) from 2019-10-08T14:52:27
Dr. Vellody is joined on the podcast by Duke faculty members Dr. Priya Kishnani and Dr. Sarah Hart. Together they discuss the common hematologic (blood) issues seen in Down syndrome and highlig...
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#61 - Stand Up For Downs / Improvaneers (with Rob Snow) from 2019-09-18T10:00
Dr. Vellody is joined on the show by Rob Snow, a stand-up comic whose life was changed by his son. He now has a traveling improv group called The Improvaneers - and all the comedians have Down ...
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#60 - Interview with Bryan Gratton (Financial Advising tips, Night to Remember Pittsburgh) from 2019-08-21T13:00:37
Bryan Gratton joined Dr. Vellody today on the podcast to discuss two of his favorite interests - wholistic financial advising, particularly around people with special needs and the Night to Reme...
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#59 - DSAP - Past, Present, and Future (with Gina Cusano) from 2019-05-31T18:39:27
Dr. Vellody was joined by Gina Cusano, past president of the Down Syndrome Association of Pittsburgh, to discuss DSAP's history and current endeavors.
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#58 - Interview on That's Pediatrics Podcast from 2019-05-24T15:52:14
Dr. Vellody was a guest on the That's Pediatrics Podcast through UPMC Children's Hospital. Dr. Vellody discusses the impact of his brother on his career choice as well as the role of the Down S...
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#57 - National Down Syndrome Convention (with David Tolleson and Coleen Popp) from 2019-02-26T20:48:22
Dr. Vellody is joined today by the Executive Director of the National Down Syndrome Congress, David Tolleson, and the Convention Coordinator and Strategic Initiatives Director, Coleen Popp. The...
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#56 - Wearing a CPAP Mask (with Daniel Chaplin) from 2018-10-09T17:50:02
This episode is a video podcast with my good friend and self-advocate Daniel Chaplin showing how he got the perfect fit with his CPAP mask. We also get to see Daniel's dance moves at the end! :...
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#55 - Gross Motor Development, Part 2 (with Pat Winders) from 2018-09-17T17:36:01
The nationally recognized physical therapy specialist, Pat Winders, joins us for another podcast on gross motor development, this time focused on older children.
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#54 - Gross Motor Development, Part 1 (with Pat Winders) from 2018-08-07T13:38:47
Pat Winders, world-recognized expert in gross motor skills in children with Down syndrome, joins us on the podcast.
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#53 - Orthotics (with DeLaTorre Orthotics) from 2018-05-10T15:30:26
This is a video podcast between Dr. Vellody and DeLaTorre Orthotics and Prosthetics in Pittsburgh (www.delatorreop.com) regarding orthotics for children...
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#52 - Nutrition Advice, Part 2 (with Joan Medlen) from 2018-05-03T10:00
We were re-joined on the podcast with Joan Medlen, MEd, RD, LD to discuss nutrition advice in Down syndrome, including celiac disease related information. She is the author of the Down Syndrome...
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#51 - Nutrition Advice, Part 1 (with Joan Medlen) from 2018-04-27T21:35:29
We are joined on the podcast with Joan Medlen, MEd, RD, LD to discuss general nutrition advice in Down syndrome. She is the author of the Down Syndrome Nutrition Handbook (Listen
#50 - Later Childhood Speech, Language, and Communication (with Dr. Libby Kumin) from 2018-03-29T10:00
Dr. Libby Kumin rejoins the podcast to continue the discussion on speech, language, and communication in Down syndrome - this time with a focus on later childhood speech development.
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#49 - Early Speech, Language, and Communication (with Dr. Libby Kumin) from 2018-03-22T10:00
Dr. Libby Kumin joined the podcast today to discuss early communication skills in children with Down syndrome.
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#48 - Happy World Down Syndrome Day! from 2018-03-21T20:47:42
Here's just a quick 1 minute WDSD video that the Children's Hospital created to celebrate the day! Enjoy and Happy World Down Syndrome Day!
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#47 - INSPIRE Study for Sleep Apnea from 2018-03-08T11:00
Drs. Tobey and Simons joined our podcast again to discuss the INSPIRE study that uses a hypoglossal nerve stimulator for sleep apnea.
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#46 - Sleep Apnea (with Dr. Simons and Dr. Tobey) from 2018-03-01T11:00
Today's podcast features Dr. Simons and Dr. Tobey, Ear, Nose, and Throat physicians at the Children's Hospital of Pittsburgh. They joined us to give an update on sleep apnea in Down syndrome.
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#45 - Pediatric Ophthalmology, Keratoconus (with Dr. Ken Nischal) from 2018-02-22T11:00
Dr. Nischal joined us again on the podcast, this time to talk about the corneal cross-linking procedure being done for keratoconus.
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#44 - Pediatric Ophthalmology (with Dr. Ken Nischal) from 2018-02-15T16:03:58
Dr. Ken Nischal joins us on the podcast today to discuss general eye/vision care issues in Down syndrome.
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#43 - Behavioral Issues in Down Syndrome, Part 2 (with Dr. David Stein) from 2017-12-29T11:00
This podcast is a telephone interview between Dr. Vellody and Dr. David Stein. Dr. Stein is a psychologist who published the very popular book called Supportive Positive Behaviors in Children a...
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#42 - Behavioral Issues in Down Syndrome, Part 1 (with Dr. David Stein) from 2017-12-22T11:00
This podcast is a telephone interview between Dr. Vellody and Dr. David Stein. Dr. Stein is a psychologist who published the very popular book called Supportive Positive Behaviors in Children a...
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#41 - Up At Down Country Interview, Part 2 (Delivering diagnosis, medical masqueraders) from 2017-12-15T12:00
Dr. Vellody was invited to be a guest on the Up at Down Country radio show (http://www.upatdowncountry.com). This is Part 2 of the radio interview ...
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#40 - Up At Down Country Interview, Part 1 (Prenatal testing, Delivering the Diagnosis) from 2017-12-08T12:00
Dr. Vellody was invited to be a guest on the Up at Down Country radio show (http://www.upatdowncountry.com). This is Part 1 of the radio interview ...
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#39 - Transition from Pediatric to Adult Care with Dr. Andrew McCormick from 2017-11-30T17:32:28
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#38 - Have a Question - Ask the Doctors! (Teen&Adult) from 2017-03-24T20:50:47
Drs. Vellody, Bulova, and McCormick along with Sheila Cannon answer questions on teen and adult topics at the NDSC Convention 2016.
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#37 - Have a Question - Ask the Doctor! from 2017-03-15T19:53:50
Dr. Vellody and Sheila Cannon participated in an informal question and answer session with family members at the National Down Syndrome Congress convention in 2016.
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#36 - 2016 NDSC Convention - Medical Issues in Down Syndrome (Part 2) from 2016-12-15T13:44:27
Dr. Vellody spoke at the 2016 National Down Syndrome Congress convention on Medical Issues in Down Syndrome. This is Part 2 of the lecture, including the slides used during the presentation.
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#35 - 2016 NDSC Convention - Medical Issues in Down Syndrome (Part 1) from 2016-11-03T15:52:42
Dr. Vellody spoke at the 2016 National Down Syndrome Congress convention on Medical Issues in Down Syndrome. This is Part 1 of the lecture, including the slides used during the presentation.
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#34 - Sign Language Instructional Video from 2016-09-23T18:45:52
Teaching children with Down syndrome an alternate way to communicate is an excellent way to avoid frustrations while waiting for their verbal speech. This video from Patty Shukla Kids TV helps ...
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#33 - Down Syndrome Journeys from 2016-03-21T17:12:13
Happy World Down Syndrome Day! Please enjoy this video created by the Children's Hospital of Pittsburgh.
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#32 - Puberty and Sexuality Issues (with Terri Couwenhoven) - Part 2 from 2015-12-29T17:15:51
World reknowned expert on sexuality and puberty issues in people with Down syndrome, Terri Couwenhoven, joins us again for the second part of our discussion. Listen
#31 - Puberty and Sexuality Issues in Down Syndrome (with Terri Couwenhoven) - Part 1 from 2015-11-24T17:45:08
This podcast focuses on puberty and sexuality issues in Down syndrome. We are joined by Terri Couwenhoven who is the worldwide expert in this topic.
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#30 - NDSC Convention, Medical Issues in Down Syndrome from 2014-10-09T19:20:25
Dr. Vellody spoke to parents and families at the 2014 National Down Syndrome Congress convention in Indianapolis. This recording includes a video component with t...
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#29 - Behavioral Issues (Using Time-Out) from 2014-07-24T02:40:02
Dr. Vellody discusses behavioral issues commonly associated with Down syndrome and the use of time-out as a discipline technique.
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#28 - Adult Related Issues in Down Syndrome from 2014-06-20T19:47:30
Dr. Bulova joins us today from the Adult Down Syndrome Center to discuss issues that can arise in adults with Down syndrome.
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#27 - Toilet Training, Part 2 from 2014-05-05T20:04:32
Dr. Vellody continues the topic of Toilet Training in Down syndrome. Today's podcast focuses on problems that can arise during toilet training and ways to address those problems.
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#26 - Toilet Training, Part I from 2014-04-03T19:23:47
In this podcast, Dr. Vellody discusses assessing for toilet training readiness and general concepts of toilet training
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#25 - Happy World Down Syndrome Day! from 2014-03-21T04:01
Today is World Down Syndrome Day. Please enjoy this video courtesy of the National Down Syndrome Congress. This video contains the resolution that the adults wit...
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#24 - Sleep Apnea and Sleep Studies (with Dr. Chakravorty) from 2014-03-13T15:00:09
Dr. Chakravorty joined the podcast today to discuss sleep apnea and sleep studies.
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#23 - Cardiac Surgery (with Dr. Peter Wearden) from 2014-02-03T22:23:09
Dr. Peter Wearden joined us on the podcast to discuss heart surgeries.
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#22 - Cardiac Issues in Down Syndrome (with Dr. Linda Russo) from 2014-01-03T00:30:51
Today's podcast is on Cardiac Issues in Down syndrome. Dr. Vellody was joined by Dr. Linda Russo to discuss this very important topic.
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#21 - Down Syndrome Radio Interview from 2013-11-12T20:26:02
Dr. Vellody was an invited guest on Down Syndrome Radio in October. Down Syndrome Radio is produced by the Down Right Awesome Dads group, and their radio show c...
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#20 - Endocrine Issues - Diabetes, Obesity, Growth (with Dr. Amanda Flint) from 2013-10-28T17:17
Dr. Amanda Flint joins us again to continue our discussion on Endocrine Issues. This time, the focus is on diabetes, obesity, and growth concerns.
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#19 - Endocrine Issues - Thyroid (with Dr. Amanda Flint) from 2013-10-04T13:42:16
Dr. Vellody was joined by pediatric endocrinologist Dr. Amanda Flint to discuss hypothyroidism and hyperthyroidism.
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#18 - Medical Issues in Ds, Part 6 (Q&A) from 2013-07-27T02:47
Dr. Vellody spoke at the National Down Syndrome Congress meeting in Denver, Colorado in July 2013. This is the final of six parts, an informal question and answ...
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#17 - Medical Issues in Ds, Part 5 (Dietary, Behavioral, DS Center) from 2013-07-27T02:46
Dr. Vellody spoke at the National Down Syndrome Congress meeting in Denver, Colorado in July 2013. This is the fifth of six parts, discussing Dietary and Behavi...
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#16 - Medical Issues in Ds, Part 4 (Atlantoaxial instability, Neurologic, Dental, General Pediatric) from 2013-07-27T02:43
Dr. Vellody spoke at the National Down Syndrome Congress meeting in Denver, Colorado in July 2013. This is the fourth of six parts, discussing Atlantoaxial inst...
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#15 - Medical Issues in Ds, Part 3 (ENT, Ophtho, Endocrine, Hematologic, Musculoskeletal) from 2013-07-27T02:42
Dr. Vellody spoke at the National Down Syndrome Congress meeting in Denver, Colorado in July 2013. This is the third of six parts, discussing ENT, Ophthalmologi...
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#14 - Medical Issues in Ds, Part 2 (Cardiac, Gastro) from 2013-07-27T02:40
Dr. Vellody spoke at the National Down Syndrome Congress meeting in Denver, Colorado in July 2013. This is the second of six parts, discussing Cardiac and Gastr...
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#13 - Medical Issues in Ds, Part 1 (Background, Genetics, Developmental) from 2013-07-27T02:34
Dr. Vellody spoke at the National Down Syndrome Congress meeting in Denver, Colorado in July 2013. This is the first of six parts, discussing background, geneti...
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#12 - Sleep Apnea (with Dr. Todd Otteson) from 2013-07-08T23:38
Dr. Otteson joins us for the final of 3 podcasts on ENT issues. Today, we are discussing sleep apnea.
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#11 - Sinusitis (with Dr. Todd Otteson) from 2013-06-20T01:13:28
In today's podcast, we are joined by Dr. Todd Otteson from pediatric ENT to discuss sinusitis.
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#10 - Ear Infections (with Dr. Todd Otteson) from 2013-06-06T16:23:30
Dr. Todd Otteson from pediatric ENT joins us today to discuss ear infections and the role of ear tubes in children with Down syndrome.
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#9 - Special Needs Trusts (with Nicole Bazzy, J.D.) from 2013-05-22T14:56:07
Attorney Nicole Bazzy joins us today to discuss estate planning for families with children with Down syndrome.
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#8 - Celiac Disease (with Dr. Arvind Srinath) from 2013-05-04T01:09
Dr. Srinath joins us for the final of 3 podcasts on GI issues. Today, he discusses celiac disease in Down syndrome.
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#7 - Constipation (with Dr. Arvind Srinath).mp3 from 2013-04-14T23:37:33
Dr. Srinath joins us once again to discuss GI related issues in Down syndrome. In this podcast, the focus is on constipation.
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#6 - GE Reflux (with Dr. Arvind Srinath) from 2013-03-27T10:00
Dr. Arvind Srinath from Pediatric Gastroenterology joins us today to discuss the diagnosis and management of gastroesophageal reflux in children with Down syndrom...
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#5 - Happy World Down Syndrome Day! from 2013-03-21T10:00
In honor of World Down Syndrome Day, please enjoy this short video podcast courtesy of the National Down Syndrome Society. Let's never forget to encourage our fr...
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#4 - Transition to Preschool (with Sheila Cannon) from 2013-03-08T19:53
Sheila Cannon joins us to discuss the transition process to preschool for children with Down syndrome
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#3 - ID issues in Ds (with Dr. Nowalk) from 2013-02-27T11:00
Dr. Nowalk joins us again for the second part of his interview. In this podcast, he discusses the infectious issues that arise in Down syndrome and ways to help...
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#2 - Down Syndrome Association of Pittsburgh, Family Life (with Dr. Nowalk) from 2013-02-20T11:00
Dr. Nowalk joins us to discuss the Down Syndrome Association of Pittsburgh and family related issues with having a child with Down syndrome.
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#1 - Introduction to the Down Syndrome Center of WPA from 2013-02-12T03:49
This is the introductory podcast to the all new Down Syndrome Center of Western Pennsylvania podcast series. In this podcast, Dr. Vellody and Sheila Cannon disc...
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