International Myotonic Dystrophy Awareness Day - a podcast by Leslie@GlassHalfFull.online (Leslie Krongold, Ed.D.)
from 2022-09-15T03:15:11
September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.
The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.
To learn about the different types of myotonic dystrophy, visit this NORD webpage.
In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:
Passion and Motivation to Move through the Hard Stuff
Stories of Healing with Essential Oils
Further episodes of Glass Half Full with Leslie Krongold, Ed.D.
Further podcasts by Leslie@GlassHalfFull.online (Leslie Krongold, Ed.D.)
Website of Leslie@GlassHalfFull.online (Leslie Krongold, Ed.D.)