Episode 11: Fiona and Heather - living with Wolf Hirschhorn Syndrome - a podcast by Tessa Prebble

This episode features the amazingly talented writer, Heather Kirn Lanier, who writes the beautiful blog Star in her Eye, telling her story about her daughter Fiona. Fiona was diagnosed with Wolf Hirschhorn Syndrome, or 4P deletion after doctors noted her small size as an infant. During the episode, Heather explains about Fiona's diagnoses, how she and her husband Justin came to redefine what a "problem" was, and how communication has changed life for Fiona. There's also a brief cameo from Fiona herself. 

Further episodes of The One in a Million Baby

Further podcasts by Tessa Prebble

Website of Tessa Prebble